Hello all. Thanks in advance for you input. First, some background: Had an issue in Jan (left leg, arm and side of face went numb), suspect CT scan, few lesions on MRI, all other tests okay. Since episode, had some electrical shock-like feelings in body, pain around ribcage, issues closing hand/grippin, tingly sensation in legs and feet. Temporary - very temporary - vision issue. Neuro told me we gotta wait and see...another set of MRIs set for May.
Here are my questions:
-Does anyone notice that their legs are just dead in the morning? Mine feel numb, like lead and it takes me a few moments to do so. But, once I get do, I am fine.
-My neuro wants to do some shock therapy testing. Anyone had this?
-I am constantly fatigued and am not sure why. Anyone else experiencing extreme fatigue (i.e. sleep 10 hrs and need a nap two hours after that).
-If I sit for too long I get serious pins and needles. When I had these in the past, they'd go away after a few moments. It take about ten minutes for the pins and needles to dissipate. Any explanations?
Just wanted to get some input from you guys. You are always very helpful.
HI there. Im going to go out on a limb and venture to guess that this isnt MS you are describing....reason being; its too general. MS is alot more spread out with too many symtoms to list and no two people ever experience the same ones...
Fatigue is DEFINATELY a MS thing...however, it is also a Lyme thing, a Fibro thing, A chronic fatigue symtom as well as a Mono and CMV viral thing....see what I mean?
Shock Therapy is used for psychological conditions usually..do you mean evoked potential testing? That is done with a shock to the nerves, however its usually done on the hands, legs, fingers and toes....sounds more likely then having your brain shocked..(you dont sound like youre in need of that!)
If that is what your doctor is thinking of doing, Evoked Potentials are commonly used to test the nerves in different parts of the body...it can be helpful in ruling out MS or dx MS, but also and more commonly picks up things like Carpal Tunnel and pinched nerves.
The heavy limbs...that was one of the things which threw me. Most of us MSers expereince that ALL THE TIME. It doesnt usually fade away in a few minutes or an hour; although as stated before, all of us are different, so its possible that someone will say Im wrong, that they only get this in the AM and it goes away...personally, I have muscle spasms and a feeling of lead weights in both my legs 24-7.
Lastly, my input on pins and needles is again, this doesnt sound like MS pain. It DOES sound more like Fibro....MS pins and needles are more of a tingling and burning..I experience it all the time in my left hand...it was my initial onset of symptoms and what led to my MS dx...it doesnt ever go away, and it never feels like a foot which falls asleep...this is intense pain. In the case of why it happens, its usually a nerve thing, and in the case of MS, the nerve Myelin Sheath is being destroyed, so its usually alot more painful and longer lasting than you are describing...but again, anything is possible.
Sound like your Neuro knows what he is doing. ITs normal to repeat MRIs every 6 months to a year right up until you are dx, and longer if you start MS meds...(thats really the only way to see if they are working). In the meantime, try not to worry about your symtoms. If it was MS ( or is MS) you learn to live with all of them and count your blessings on the days you feel better than others; since MS doesnt go away, focusing now on the "what ifs" isnt healthy and wont do you any good..
But, chin up, you sound like youre doing well overall.
Nikki
__________________
RRMS- dx 05
Rebif 2005-2011
LDN Sept. 2011
"Every New Beginning Comes From Some Other Beginning's End"
the shock therapy WOULD be on my legs, toes, etc...not my brain! sorry for confusing you by using an incorrect term.
The leg numbness does last all day...it just seems much worse in the morning. As I type, they are numb/feel like lead. But, to me, it is more noticeable in the a.m., after waking.
That said, it sucks to have to wait to see what is going on.
-Does anyone notice that their legs are just dead in the morning? Mine feel numb, like lead and it takes me a few moments to do so. But, once I get do, I am fine.
-My neuro wants to do some shock therapy testing. Anyone had this?
-I am constantly fatigued and am not sure why. Anyone else experiencing extreme fatigue (i.e. sleep 10 hrs and need a nap two hours after that).
-If I sit for too long I get serious pins and needles. When I had these in the past, they'd go away after a few moments. It take about ten minutes for the pins and needles to dissipate. Any explanations?
My last shock therapy happened long ago when I ran into the electric fence. That was an electrifying moment
My legs are often "dead" in the morning. It can take me 2-3 hours to shift from low gear to second gear (3rd, 4th, and 5th gear no longer work ).
Your fatigue is familiar. I constantly run through cycles of fatigue. I simply rest and use my powerchair more.
The pins and needles, for me, have been controlled (90%) with the use of my Synergy Seating in my powerchair and a wooden rocking chair.
The leg numbness, today, has actually gone on all day at the same level of uncomfortability. Usually, it subsides to being a simple annoyance. Today it is frustrating.
Sigh.
Anyone know if my electric blanket could have caused the turn of events? Just bought it, used it for the first time last night. Read heat can aggravate symptoms (but, again, still waiting for diagnosis. Body just went haywire in January.)
Quote:
Originally Posted by MSJayhawk
My last shock therapy happened long ago when I ran into the electric fence. That was an electrifying moment
My legs are often "dead" in the morning. It can take me 2-3 hours to shift from low gear to second gear (3rd, 4th, and 5th gear no longer work ).
Your fatigue is familiar. I constantly run through cycles of fatigue. I simply rest and use my powerchair more.
The pins and needles, for me, have been controlled (90% with the use of my Synergy Seating in my powerchair and a wooden rocking chair.
Last edited by Gyrlwriter; 03-04-2008 at 08:29 PM.
That was an electrifying moment
).
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