The verdict - Multiple Sclerosis Message Board

Nenu · 03-05-2008, 01:21 PM

My neurologist got the results of blood work and spinal back today, and said he's 95% sure it is in fact MS, and that I have been living with this for at least 5 years of my life now (I'm 31).

It's nice to finally have answers where for so long, I didn't have them. I went to work in pain, popping over the counter headache medicine, trying to eek out a living so to speak.

It was I who insisted that the MRI be completed, because after being told over and over "You're incredibly healthy", when knowing in my gut that I was far from being incredibly healthy.

So moving ahead, this should be quite a journey to say the least. I'm not sure of the number of lesions that were found (I'll have to get all the details from my doctor, when I am set up), but the neuro did say a considerable amount were found. I'm just keeping a positive attitude now, dopey from all these steroids I have been fed for the last few days, and looking forward at my future and what I can do to live my life to it's fullest.

limpster · 03-06-2008, 07:38 AM

I am sorry you got the dx but happy that you are no longer in limboland.

I too have MS and you just need to find your new NORMAL.

Has the doc suggested any of the dmd's yet for you?

There is so much information out there re: MS. You can also contact the National MS society. They will send you all types of materials re: MS.

Good luck on your journey

Nenu · 03-06-2008, 06:22 PM

I'm still learning acronyms here, dmd? Right now, as I did not have a family doctor at the time of diagnosis, I'm only currently on prednisone (oral now) until they establish other medication. Luckily with the diagnosis, I now have a family doctor, but getting to see her will be a few days at least (doctors here are swamped). I had to sign the release of information forms today for MS drugs to the drug company and such.

Suffered yet another not so pleasant headache (probably due to spinal again) and laid down immediately. Luckily it went away without incident and the roids started their magic.

So I am feeling pretty good now, still a tiny bit of head discomfort, but I was elated to find that my sense of smell and taste are returning to normal (for a long time, I was without either for the most part).

I now have the tinglies down the inside of my right leg. Nothing too overwhelming, just the faint sensation. If I feel cruddy, I just lay down for a bit and things work themselves out. Going to be quite a healing process for me, going so long without this diagnosis I'm sure. I'm just happy as I said to finally have the answer, and be on the right path to proper treatment.

MSJayhawk · 03-06-2008, 07:57 PM

Quote:

Originally Posted by Nenu

My neurologist got the results of blood work and spinal back today, and said he's 95% sure it is in fact MS, and that I have been living with this for at least 5 years of my life now (I'm 31).

It's nice to finally have answers where for so long, I didn't have them. I went to work in pain, popping over the counter headache medicine, trying to eek out a living so to speak.

It was I who insisted that the MRI be completed, because after being told over and over "You're incredibly healthy", when knowing in my gut that I was far from being incredibly healthy.

So moving ahead, this should be quite a journey to say the least. I'm not sure of the number of lesions that were found (I'll have to get all the details from my doctor, when I am set up), but the neuro did say a considerable amount were found. I'm just keeping a positive attitude now, dopey from all these steroids I have been fed for the last few days, and looking forward at my future and what I can do to live my life to it's fullest.

Congratulations on your diagnosis. Although it is not what you wanted to hear, your positive attitude will greatly help you in the long run. There will be days that may bring you down, but seek the positive and you should go quite far!

Nenu · 03-06-2008, 08:42 PM

It's not what I'd have wanted to hear so to speak, but I knew the problems weren't going anywhere. Now I have a recognizable disease to work with, and luckily it is well known and there is a lot of help and research in place.

So yes, I am very positive knowing now that I do have this, and that it is something that can be treated to any degree.