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Old 03-26-2008, 07:23 PM   #1
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Unexplained Sensations! Can someone please help shed some light!

Hello! I'm new here to health boards, and I think It's great how much support is shown!
I have recently been having some weird sensations throughout my body, it first started a couple weeks ago as burning sensations in my right buttock, thigh and foot.. my right side of my face felt alittle numb and I know this may sound weird but it felt like my brain was getting the "chills" (hard to explain the feeling). I have felt it in my left leg as well! Along with all of that I have been having some really bad headaches everyday and it seems my eyes are becoming "blurry"! I was referred to a Neurologist, whom I went to see today and am scheduled for an MRI & MRA on Friday of this week! I am 31 years old and driving myself nuts trying to figure out what is "wrong" with me! Has anyone ever had any of these similar symptoms? As far as I know noone in my family has ever been diagnosed with MS.... although my father does have Agent Orange from Vietnam and it worries me that Peripheal Neuropathy is a side effect in Children of veterans... I apologize for Rambling on but I;m just trying to shed some light on all of this!!

 
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Old 03-26-2008, 07:43 PM   #2
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Re: Unexplained Sensations! Can someone please help shed some light!

HI Chell2123! Try not to panic. You are not alone! Our bodies do all kinds of strange things from time to time. I am not a doctor of course but your buttucks, leg on down to your foot burning or pain thing certainly sounds like siatic nerve trouble (which is a pinched or trapped nerve in your glute (butt) or even lower spine. I have just had 10 weeks of physical therapy for that. They give you special stretches for that. I am a massage therapist so I do know somewhat of the muscle issues. I am trained in that. But you should get a full physical from your doctor. Have them rule out things one at a time. I have had tingling in my face too. It freaked me out. Some of that with me was my allergies and sinus infection issues that can press on nerves up in the face. But again. That was me. I am not diagnosing you. Just have your doc check you out. But don't panic. I know I do and it just cause me way to much stress to keep doing that. Please let us know how you are. We are family here.

 
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Old 03-26-2008, 07:50 PM   #3
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Re: Unexplained Sensations! Can someone please help shed some light!

Thank You TEdwards83! I'm trying not to panic but the unknown is what drives me nuts!! I've been looking online for symptoms and I have many for MS... I know I shouldn't do that and that I can't diagnose myself..I guess I'm just trying to prepare myself for the worst!!!!

 
Old 03-26-2008, 08:07 PM   #4
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Anyone PLEASE!!

Can Anyone else tell me if they have had any of these symptoms as well? Thank you for your time!!

 
Old 03-26-2008, 08:19 PM   #5
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Re: Unexplained Sensations! Can someone please help shed some light!

Hello,

You say you are preparing for the worst...
I understand that, I have similar symptoms and all seems to point to MS but
I haven't got a diagnostic as of yet (trying to see a specialist).
However, from all the research I have done so far, looking at different
diseases: MS is NOT the worst!
So having MS does not necessarily mean the end of the world.

I don't want to minimize MS, it can be quite terrible, but not necessarily.

John

 
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Old 03-26-2008, 08:27 PM   #6
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Re: Unexplained Sensations! Can someone please help shed some light!

Some of your symptoms can be signs of heart concerns in women. Although you are still quite young, you should also be cleared of any cardiovascular problems while checking neurological possibilities.

The facial numbness I have had and sometimes it is not apparent to me until I look in the mirror. My neuro says that the muscles around the mouth often present signs of MS due to nerve damage. The chills you are feeling in your head, I get them too. I have spent this winter wearing a cap indoors to keep the chill away. I get the same chill in my hands (I wear gloves or wraps on my hands). Nerve damage can cause the body to lose control of the temperature regulation ability.

Please try to avoid the stress while awaiting your testing. You can get through this. In the meanwhile, you are in very good company.

 
Old 03-26-2008, 08:37 PM   #7
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Re: Unexplained Sensations! Can someone please help shed some light!

Thank YOu! I know that MS isn't the worst.. bad choice of wording on my part!!! Maybe I will try wearing a cap inside to try and alleviate the chills! I thought I was going "crazy"...... There are so many symptoms alike from MS, Shingles, Herpes, HIV... good lord.. My mind has been racing for days and despite my anxiety about the whole situation I can't seem to stop googling my symptoms!!! I have been very fortunate with being able to see a Neurologist so soon!! When I originally felt my symptoms I thought maybe it had something to do with my heart- since heart disease runs in my family but the docs say no... that's how I ended up at the Neurologist! Thank You again, It feels good to know that I'm not alone!!!

 
Old 03-26-2008, 08:43 PM   #8
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Re: Unexplained Sensations! Can someone please help shed some light!

Instead of searching the internet for symptoms, keep a journal of those concerns you have. At this time, you need to avoid the unnecessary worrying. A journal will be helpful to your doctor. Your doctor can tell you what is MS and what is not.

 
Old 03-26-2008, 08:49 PM   #9
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Re: Unexplained Sensations! Can someone please help shed some light!

Thank You MSjayhawk! - have you ever experienced the burning sensations & pain on both sides of your body or is it typical for it to be just on one side? The journal is a good idea.. I will have to do that!

 
Old 03-26-2008, 10:03 PM   #10
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Re: Unexplained Sensations! Can someone please help shed some light!

The only burning I had was when my left hip nerve bundle was under attack. The pain lasted for 9 weeks (I used a heating pad to alleviate the pain). Most often my right side is affected and both my legs. The attack depends on the lesion location. That is, lesions can occur on both sides of the brain and affect both sides of the body. Much of it depends on lesion location.

You should remember that if you have MS, do not count on the "typical" because you are uniquely created and "typical" for you might be abnormal for someone else. Also, there are 4 main MS types. This further muddles the picture. I have PPMS which means that I get no relief from MS. Some people treat their MS with meds. I have been med free for 25 years. Life does not end with MS, it begins anew.

 
Old 03-27-2008, 05:47 AM   #11
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Re: Unexplained Sensations! Can someone please help shed some light!

Quote:
Originally Posted by Chell2123 View Post
Hello! I'm new here to health boards, and I think It's great how much support is shown!
I have recently been having some weird sensations throughout my body, it first started a couple weeks ago as burning sensations in my right buttock, thigh and foot.. my right side of my face felt alittle numb and I know this may sound weird but it felt like my brain was getting the "chills" (hard to explain the feeling). I have felt it in my left leg as well! Along with all of that I have been having some really bad headaches everyday and it seems my eyes are becoming "blurry"! I was referred to a Neurologist, whom I went to see today and am scheduled for an MRI & MRA on Friday of this week! I am 31 years old and driving myself nuts trying to figure out what is "wrong" with me! Has anyone ever had any of these similar symptoms? As far as I know noone in my family has ever been diagnosed with MS.... although my father does have Agent Orange from Vietnam and it worries me that Peripheal Neuropathy is a side effect in Children of veterans... I apologize for Rambling on but I;m just trying to shed some light on all of this!!
Hey hun, you're my age! I relate to what you're saying all too well. Blurry vision when I had perfect vision for so long, brain getting the chills... I'd go to bed and I felt like there was a river flowing through my brain (I'm leaning now towards stress being the case of these sensations), headaches... DAILY! Ugh, aren't they awful? I'm now almost headache free. I do get a small one sometimes, take 1 tylenol and it's gone. Much better than the 10 tylenol (not joking) that I was munching down daily without relief. Burning sensations ~raises hand~. I still get these sometimes down my inner right leg. Right side facial spasms and feels like a nerve twitching occasionally in there.

You haven't received your diagnosis yet, which is unfortunate, because the worst part of what you're going through is the period of not having the answers. Keep that in mind. You will eventually get your answers, and there is currently no sense in worrying about the 'what ifs'. Just be diligent in finding the answers. You may have to work a bit yourself to get them. Reading about what you're going through online, because what you described is all too close to the symptoms I had, is going to cause more stress.

Best advice, and I believe Nikki said it first, don't look online for answers. Come here for support! Reason I say this... we're real people who have all been through the process. We're able to respond and provide support. If you go looking around through searches, you're going to come across everything imaginable, and you'll eventually think you have 10 different possible diseases. I was sure after looking around myself that I had HIV, Lyme disease, Lupus. Then I found this wonderful forum and support here, plus I received my diagnosis thankfully, which did end up being MS, but if you consider what I thought I had after looking for the answers elsewhere, MS is a much better diagnosis

 
Old 03-27-2008, 07:29 AM   #12
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Re: Unexplained Sensations! Can someone please help shed some light!

[QUOTE=MSJayhawk;3504338]The only burning I had was when my left hip nerve bundle was under attack. The pain lasted for 9 weeks (I used a heating pad to alleviate the pain). Most often my right side is affected and both my legs. The attack depends on the lesion location. That is, lesions can occur on both sides of the brain and affect both sides of the body. Much of it depends on lesion location.

You should remember that if you have MS, do not count on the "typical" because you are uniquely created and "typical" for you might be abnormal for someone else. Also, there are 4 main MS types. This further muddles the picture. I have PPMS which means that I get no relief from MS. Some people treat their MS with meds. I have been med free for 25 years. Life does not end with MS, it begins anew.[/QUOTE

Thank You!

 
Old 03-27-2008, 07:44 AM   #13
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Re: Unexplained Sensations! Can someone please help shed some light!

Quote:
Originally Posted by Nenu View Post
Hey hun, you're my age! I relate to what you're saying all too well. Blurry vision when I had perfect vision for so long, brain getting the chills... I'd go to bed and I felt like there was a river flowing through my brain (I'm leaning now towards stress being the case of these sensations), headaches... DAILY! Ugh, aren't they awful? I'm now almost headache free. I do get a small one sometimes, take 1 tylenol and it's gone. Much better than the 10 tylenol (not joking) that I was munching down daily without relief. Burning sensations ~raises hand~. I still get these sometimes down my inner right leg. Right side facial spasms and feels like a nerve twitching occasionally in there.

You haven't received your diagnosis yet, which is unfortunate, because the worst part of what you're going through is the period of not having the answers. Keep that in mind. You will eventually get your answers, and there is currently no sense in worrying about the 'what ifs'. Just be diligent in finding the answers. You may have to work a bit yourself to get them. Reading about what you're going through online, because what you described is all too close to the symptoms I had, is going to cause more stress.

Best advice, and I believe Nikki said it first, don't look online for answers. Come here for support! Reason I say this... we're real people who have all been through the process. We're able to respond and provide support. If you go looking around through searches, you're going to come across everything imaginable, and you'll eventually think you have 10 different possible diseases. I was sure after looking around myself that I had HIV, Lyme disease, Lupus. Then I found this wonderful forum and support here, plus I received my diagnosis thankfully, which did end up being MS, but if you consider what I thought I had after looking for the answers elsewhere, MS is a much better diagnosis

Thank You Neno! Yes the headaches are awful!! I know what you mean about looking around on the searches, I have thought that I have HIV, Shingles, Herpes, Cancer... you name it lol.. It's very distressing! LIke I said I go on Friday for my tests, so it will just be the waiting game (the worst) to find out the results, which I am hoping won't take too long- my stress level is already through the roof!

 
Old 03-27-2008, 08:19 AM   #14
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Re: Unexplained Sensations! Can someone please help shed some light!

If you're like me hun, when you hear the answer, the stress will go out the window. We'll be thinking of you. Just try to take it easy and keep your mind occupied as best as possible with other thoughts in the meantime

 
Old 03-27-2008, 07:45 PM   #15
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Re: Unexplained Sensations! Can someone please help shed some light!

Has anyone experienced Abdominal Cramping with any of their other symptoms? I don't know if it is relative or If it's just stress??? Also If anyone could let me know what their "first symptoms were I would greatly appreciate it! I'm getting no support from home and my man thinks I'm a hypochondriac and that's no help for me.... making me wonder if in fact I am nuts!! Any input is greatly appreciated!!

 
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