Ldn - Multiple Sclerosis Message Board

sue54 · 04-23-2008, 04:14 PM

I just heard about LDN for treatment of MS.,and want to learn anything I can about it. Apparently what I read is positive for any form of MS. Anyone out there that is taking LDN could you fill me in please.ie; side effects,results,any info.and where to do more research?TY.sue54

MSNik · 04-23-2008, 04:54 PM

Hi Sue, alittle more info....LDN or low dose Naltrexone is NOT approved for MS. Its not something that any Neuro Ive ever met will prescribe; however FEW family docs, will prescribe it IF YOU ARE NOT ON ANY MS DRUGS. You cannot take LDN with any of the interferons or Copaxone...On top of it, the drug itself has to be compounded and there are pharmacies across the country which will compound it for you- but be very careful about buying it overseas or even in Canada (thru a website) already compounded and delivered to your door...remember, if it sounds too good to be true...

Another thing to point out is that most prescription plans will not cover this for MS use, especially if you have an MS dx...

Less than 10% of people who actually have an MS diagagsis have ever tried LDN and those who have- very few have had success on it, but those who have had success- admit to the same thing that Kelly said...it helps keep relapses at bay. I know of a few people who have tried it, one who wishes she was still on it, and most who had absoutely no success on it at all.

Because this disease is so different for each of us, what works for one, will not necessarily work for another...but keep in mind, LDN is NOT approved for MS therapy in the USA. (and my comment about Canadian pharmacies wasnt a slam to our Canadian friends, but we all know that in the US, we get info on "ordering cheap" from Canada all the time...those are the ones to beware of...there are pharmacies in the US which mail order compounded drugs including LDN, and most doctors will recommend where to get it since it isnt available at your local pharmacy in most cases).

Hope this helps alittle..
Nikki

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Nenu · 04-23-2008, 06:21 PM

Now you folks have me curious about LDN. I still have yet to begin Copaxone due to the financial assistance approval.

Is LDN an injectable or pill? I've got medical coverage through my employer, is this subject to such medical coverage, since a doctor can prescribe it? Not saying I'd try it myself, just curious about it.

Snoopy61 · 04-23-2008, 07:55 PM

Hi, Sue.

I haven't used LDN although I have considered it. If you research LDN there is quite a bit of information on it and MS.

LDN is no different than anything else when it comes to MS - it helps some but not others.

Copaxone is the only DMD that is recognied as being okay to take with LDN.

Here is a little information about LDN ---
[url]http://www.ncbi.nlm.nih.gov/pubmed/15694688[/url]

I believe there are clinical trials on the use of LDN and MS. Currently LDN is used for symptom management but I am aware of some who use LDN and feel it is controlling their disease.

Caution: there is no magical cure or easy fix for this disease.