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Old 04-28-2008, 07:47 PM   #1
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cindys601 HB User
Its Been A Long Road...

Hello my Ms friends~

Its been a long while since I posted because I have been on a roller coaster ride with my health along with so many others out here.

I began my journey here when dr's thought what I was dealing with was MS. Here I found so many compassionate people who opened their hearts and my eyes to an exceptance of a differant life.

Here I learned that although an illness is a part of all of our lives, we continue on, just on a different path. As my body weakened, you all gave me a sense of peace within myself. When I should have been afraid, you all taught me courage!! You all made me see that stress is something to avoid and there is no room in our lives for it. And I had a cyber world of friends here that you can not find in the "real" world!!

Through all of the stregnth i recieved from you, my friends, I pushed on. When Dr's gave up hope on finding an answer, it was your encouagement that pushed me through it all and in the end, I did find my answers.

It saddens me that I can't be here with all of you in the MS friend club anymore. Though my symptoms are so close to all of yours, my diagnosis is a different one. I have been diagnosed with a brain disorder called Arnold Chiari Malformation. Surgery will be in my near future to alieviate my symptoms but, just like MS, there is no cure.

I hope that my post can remain on this site for others that are searching for answers as well. And I hope that you all continue with the great work you do everyday to help all of us newbies through our fears and the long journey of hopelessness we feel when no one else seems to care.

I have started walking a different path in life because of all of you here. I am letting go of my buisiness and taking care of myself 1st. Never done that in my life but all of your words ring in my ears on a daily basis!! LOL. I'm going to take time to enjoy life, spend time with my family and just smell the roses!!

Life is precious, love is important and happiness is a must!! I have found my peace in my world!! Thanks to all of you!! I am forever grateful!!

I think of you all often and the struggles you all endure on a daily basis. Just remember to hold your heads high because you all need to be proud of all you do to touch the lives of others!!

I hope everones feeling well tonight!! My angels on my shoulder through all of this!!

Take care~ Cindy

 
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Old 04-28-2008, 08:06 PM   #2
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Nenu HB User
Re: Its Been A Long Road...

What a great post! Glad you got your answers Sorry to hear you'll be having surgery, but I do hope that will alleviate some of the troubles. I'm unfamiliar with your diagnosed illness, so I have some reading to do.

While it's not MS (thankfully), I can honestly say you can still be a part of the family here. We're here for support, and that's what is important, not the final diagnosis.

Best of luck to you!
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Old 04-28-2008, 08:35 PM   #3
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Bearygood HB User
Re: Its Been A Long Road...

Ah, Cindy!! So good to hear from you and I am glad you finally got answers!! I am a little familiar with Chiari Malformation from other people who were in exactly the same situation as you, who thought perhaps they had MS. FYI, there are some recent posts about Chiari on the Brain & Nervous System board here.

I wish you the best of luck, Cindy. Please let us know how your surgery goes and how you're doing. I'm with Nenu -- even though you don't have MS, you're still part of the "family" here. Don't be a stranger.

May the s be with you!

 
Old 04-28-2008, 09:02 PM   #4
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MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: Its Been A Long Road...

Though not the diagnosis anyone would hope for, you now have a light at the end of your darkness. How about an honorary MS family membership!

I will remember you in prayers and lift up your surgeon so that their hands might be guided skillfully. May God bless you on the path that you will travel.

 
Old 04-28-2008, 09:21 PM   #5
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cindys601 HB User
Re: Its Been A Long Road...

Wow, I have really missed you all so much!! Its been so crazy and hectic trying to put the pieces to the puzzle together that I have been away for so long. But this is one place unlike no other!!

I've had to dedicate my time researching for myself and yes, Msjayhawk, its nice to see the light at the end of the tunnel!! And I'd be honored to be part of your ms "family" LOL

Bearygood, Its great to hear from you once again. I missed sharing your knowledge of so many things and hope to catch up with all the posts I've missed.

Nenu, thanks so much for your warm welcome!!

now that life will be at a much "slower" pace, I look forward to being back here with all the inspiration all of you have to offer!! ~ Cindy

 
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