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Old 05-13-2008, 06:04 PM   #1
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Help needed to cope wtih symptoms or get a respite from the symptoms

Hi everyone,

I have read about the burning pain, tearing pain, pin and needle pain from forumers. I have these symptoms too.

Could anyone kindly tell me how to get a respite from the continuous pain ? I have tried cold water and hold water but the pain is still there.

Thanks.

PS : Please share the experience of how to cope with the symptoms eg buring sensation pain or how to get a respite from the symptoms.

 
Old 05-13-2008, 06:21 PM   #2
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Re: Help needed to cope wtih symptoms or get a respite from the symptoms

HI there. Sorry to start off with this, but I have to, do you have, or do you suspect you have MS? The reason I ask, is because if you have it, then you probably already have a neurologist..and if you suspect it, you should be seeing one for a consult!
To answer your question though, there are so many different types of pain, without knowing what is causing it- there is no singular answer. For instance, I have terrible pain in my left hand- it can be described as burning, tingling and sometimes "I want to cut my hand off" pain! This was the onset of my symtoms which led me to an MS diagnosis almost 2 years ago....it never went away. Ive tried drugs for pain including Neurontin (garbapentin), Lyrica and something else, I cant remember right now....nothing helped me, not even alittle. Ive tried antidepressents which are supposed to work on pain- they did nothing either, and I was never depressed! Ive tried PT, Accupuncture and even holistic herbs and drugs- to date, nothing has touched the pain. My Neuro and MS Specialist both feel I have extensive nerve damage which is more than likely permanent from my MS lesions- and nothing is going to help me short of a nerve block, which would reduce any use at all of my hand! Im not ready to go that route...
SO, defining the pain and finding out if it is nerve related or muscle related will help you to figure out what is going on...a good Neuro should be able to track the pain to possible Lesions, thus knowing if it is MS related...without that info, there are a host of drugs you can try- but they may or may not work....

I hope you find relief, because I truly feel for you.
Nikki
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Old 05-13-2008, 07:17 PM   #3
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Re: Help needed to cope wtih symptoms or get a respite from the symptoms

Hi Nikki, thank you very much for the reply and the sharing of the experience.

How do you get to sleep / rest with the constant burning sensation pain ?

I am not able to feel the urge to urinate now and my muscle do not have the strength to push out the faeces ie hypotonia.

I feel like there is a rubber band around my waist. I feel a pressure up / electric shock feeling from the abdomen/diaphragm to the chest level whenever I stand up from a sitting position. Is it MShug ?

I come from a country whereby to receive subsidized medical cost (not free but the government pays some and I pay some), I have to join a queue to get to see the neurologist. My appointment to see the neurologist is seven months later.

The general practitioner doctor has commented that whether there is an early diagnosis or late diagonsis, when it is a MS, it is a MS, there is little can be done.

I agree with the GP doctor. But I do not know how to cope with the symptoms on a daily basis without any help, especially more symptoms appear every few days.

Please share the experience of coping with the MS symptoms on a daily basis.

Thanks.

ahm97sic

 
Old 05-14-2008, 11:09 AM   #4
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Re: Help needed to cope wtih symptoms or get a respite from the symptoms

HI again. And, wow. I wish I had a magic answer for you. Today, it is 82 degrees F here, which equates to hot and muggy and humid! My hand hurts so much that nothing is helping, not even staying in the Air Conditioning...you ask how does one sleep and deal on a daily basis, and all I can tell you is you do what you have to do. Meaning, there is no magic cure or answer- you just cope. I have found that staying in a cooler temp, helps alittle. Sometimes, the pain is just so bad that nothing I do makes a difference, like today- but when it gets SO BAD that I want to scream I just take something to help me sleep (or drink herbal tea) and will myself to go to bed..eventually, sleep wins out and tomorrow is a new day.

I dont know much about the healthcare in your country ( I apolgize) but is there anyway you can go to an emergency room to get faster treatment? Would the ability to go to an ER speed things up, possibly start tests and seeing a Neuro? I just wondered. I have friends in Europe who have resorted to that tactic, and it seemed to help them with expediting their need for treatment...

You asked about the MSHug, its possible it is, but it also sounds more like spasticity...something that constant, which is also affecting your bladder/bowel, might be more serious than the MS hug...I agree with your GP about nothing really making a difference, but disagree to the extent that the sooner you see the Neuro, the sooner you can start being treated for the symtoms you are having...no, there isnt much one can do about an MS dx- but yes, there are meds out there to help make you more comfortable. Can your GP help you with a muscle relaxant, or even an anti-anxiety drug, to take the edge off of some of this, for you? Taking Xanax or something in a small dose, as needed, might help you with some of the pain- at least for short periods of time.
Ill say a prayer for you..I hate hearing that others suffer what I go thru daily.
Nikki
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Old 05-14-2008, 12:41 PM   #5
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Re: Help needed to cope wtih symptoms or get a respite from the symptoms

Singapore- my favorite respite in all of Asia. If cold compresses do not help you, you may want to try what I did. I tried cold compresses, but when they do not help, I use a heating pad and overstimulate my nerves to a point where they shut-down. Will this work for you? I do not know, but it has helped me.

Singapore is not the best place to be if you have MS due to its hot/muggy year round climate.

You might see whether you can pop down to Perth to seek treatment. I recall many Singaporeans getting treated in Perth when I was in Singapore. I do not know if it would help you to run over to JB or up to KL. For knowledgeable MS doctors in your region, Australia/NZ and Japan would be my choices if you can not wait for 7 months to see a neurologist in Singapore.

 
Old 05-14-2008, 07:26 PM   #6
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Re: Help needed to cope wtih symptoms or get a respite from the symptoms

Hi Nikki and MSJayhawk, thanks for sharing the experience of how to cope with the constant pain on a daily basis.

Yes, I also live one day at a time as Nikki has said just take something to help sleep, sleep wins out and tomorrow is a new day.

I have similar thought too to go to the Emergency Department but the ER doctor is not likely to admit me as my current conditions are not considered emergency (ie.
I am not able to feel the urge to urinate now and my muscle do not have the strength to push out the faeces ie hypotonia. I feel like there is a rubber band around my stomach/slightly below chest level. I feel a pressure up / electric shock feeling from the abdomen/diaphragm to the chest level whenever I stand up from a sitting position).

Appreciate it very much for sharing the experience of how to cope with MS symptoms on a daily basis.

Thanks.

ahm97sic

 
Old 05-14-2008, 07:44 PM   #7
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Re: Help needed to cope wtih symptoms or get a respite from the symptoms

Respite from symptoms is about al we can hope for. If he pain is bad, can you get Lortab or something from your GP:? Or even codeine? I zone out on these drugs, but I'm back on Lortab because I've had *hideous* leg pain for 3 months, Decided to stop being a stoic.

Don't know what's out here for inabilty to pee, but bring a book to distract yourself and try somwhat different positions. Constpation is awful, and being on opiates agin doesn't help. Try flaxsed. Or find a good accupuncturist--mine makes me drink this horris tea n=made of who knows what, but it works.

Good luck!

 
Old 05-14-2008, 07:49 PM   #8
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Re: Help needed to cope wtih symptoms or get a respite from the symptoms

Quote:
Originally Posted by ahm97sic View Post
I am not able to feel the urge to urinate now and my muscle do not have the strength to push out the faeces ie hypotonia. I feel like there is a rubber band around my stomach/slightly below chest level. I feel a pressure up / electric shock feeling from the abdomen/diaphragm to the chest level whenever I stand up from a sitting position).

ahm97sic
If you are experiencing bowel movement problems, this may mean other concerns. Do you consume sufficient amounts of water? I hope that you can be seen by another doctor(s) while awaiting the neurologist. A bowel obstruction or other problems might arise. If you develop a fever, please go to the ER immediately.

In the meanwhile, bed rest and a cool place are warranted in my opinion. You need to have the AC or a ceiling fan on to maintain a comfort level.

 
Old 05-15-2008, 06:17 PM   #9
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Re: Help needed to cope wtih symptoms or get a respite from the symptoms

Hi MSJayhawk and taosdaphne, thanks for the advices.

I have seen a GP doctor and he uses his finger into my annus and then he asks me to use my muscles to squeeze out his finger but my muscles are too weak to do so. He said something about hypotonia and refer me to see an urologist about my bladder and bowel problems.

Thanks.

Regards,

ahm97sic

 
Old 05-16-2008, 12:03 AM   #10
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Re: Help needed to cope wtih symptoms or get a respite from the symptoms

Hi MSJayHawk,

I have been drinking 2 litres of water daily and I take food that is soft eg bread, fish, soup, milo and rice so that my stool hopefully can be soft. But I still have constipation.

I am not able to feel the urge to urinate now and my muscle do not have the strength to push out the faeces ie hypotonia. So, I have to resort to use the water hose method to flush out the faeces.

I have a fall and was hospitalized twice in Feb 2008. During the hospitalization, a MRI brain scan has done and the scan shows white spots and the possibility of multiple sclerosis according to the dcotor at the hospital.

Is it true that 80% of MS patients will have bladder and bowel problems ? How are these symptoms like ? Are they like mine ?

Thanks.

Regards,

ahm97sic

 
Old 05-16-2008, 12:27 AM   #11
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Re: Help needed to cope wtih symptoms or get a respite from the symptoms

Quote:
Originally Posted by ahm97sic View Post
Is it true that 80% of MS patients will have bladder and bowel problems ? How are these symptoms like ? Are they like mine?
I don't know about statistics, but I can imagine that due to medications/supplements etc, many with MS can experience bladder/bowel issues, and the MS itself can also cause issues.
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Old 05-16-2008, 01:47 PM   #12
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Re: Help needed to cope wtih symptoms or get a respite from the symptoms

My bladder and bowel problems are the need to go all too often when I am cycling downward.

Although bread is a soft food, it can constipate. A visit to a good Chinese shop and buy some seaweed or kelp and cook up some soup with some tofu. Avoid the deep fried Chinese snacks. You might also try some curry or some spicy Malay food. Go heavy on the veggies and fish. Some nice chicken or lamb satay would be ok if you have plenty of veggies.

While the enema may be your only recourse, the difficulty is that your body may become dependent upon the enema for bowel movement. Has a test for flora density been done? If your colon lacks the beneficial flora/bacteria, you can have problems. However, you can certainly rebuild the healthy bacteria counts in your colon by adjusting your diet.

Though it is a bit expensive in Singapore, yogurt can help. You will need to consume it daily for about 2 weeks. Additionally, you might look for the dry soy meal that is left from the tofu manufacturing. You can add this to your meals as it is not the most tasty food. I mix a little bit in my soup.

Lastly, you might try to see if accupuncture can help with the constipation or at the very least the muscle weakness.

 
Old 05-16-2008, 07:13 PM   #13
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Re: Help needed to cope wtih symptoms or get a respite from the symptoms

Dear MSJayhawk, thanks for the detailed advice.

You have definitely helped my days of coping with the constipation on a daily basis.



Regards,

ahm97sic

 
Old 05-16-2008, 08:32 PM   #14
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Re: Help needed to cope wtih symptoms or get a respite from the symptoms

No worries. I shall remember your needs in my prayers. I trust that you can enjoy a visit to the Satay Club!

 
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