| Re: Ldn
Hi Michele,
Bearygood has provide a link for you, which may help answer some of your questions.
I started on LDN when there weren’t too many people on it yet. I have helped many, many people get started on it, mostly by providing them information to present to their doctor, coaching them through the initial side-effects (very minor normally), etc.
My neurologist thought it was “snake oil” and laughed it off when I first asked for it. I had to convince my doctor by first threatening to go on the internet to get it, and ultimately doing up a “risk assessment” document for him. He did his own research, but he wanted to be sure I knew what I was getting myself into. Now he will rx it to anyone who asks, because he’s seen how it works for me, and he knows it is safe.
The neurologists at the Research Center I went to also started rxing it to patients who wanted to try it. (I know there is a new director at that Research Center, so I don’t know his take . . . but my friend still gets her LDN rx from that location.)
It is important to use a reputable compounding pharmacy, and I would definitely be sourcing that information before I considered taking it. Using the right fillers to compound is critical.
People take it in the hopes that it will not only improve their symptoms, but also to slow progression and reduce/stop attacks. Last I heard, they felt 2/3 of the people who used it experienced notable symptom improvement, and the majority saw no or little advancement in the disease process. Some might give up though, especially if they don’t get the symptom improvement they hope for.
To be honest, if one of my kids ended up with MS, I would try LDN before I tried anything else we have available. It can be combined with Copaxone (it is not recommended with the interferons, at least until recent trials are completed), and that is a good option as well.
Cherie
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