Pls offer me feedback - Multiple Sclerosis Message Board

k2626 · 08-29-2008, 05:26 PM

Hi all....about 3 months ago I started getting pulsating sometimes stabbing joint/bone pain, along with that my joints started cracking to the extreme (15 times in one minute). A few weeks after this onset, I started getting a buzzing feeling on and off in my feet. Two weeks ago I started getting muscle twitches all over my body.

I have had blood tests for SO many things- all came back okay just somewhat low D. I had a bone scan, colonoscopy, ultrasound of heart-all fine.

I went to two neuro-one said it was stress (Ummm I dont think stress causes body wide joint cracking) the other one said I was fine as the basic neuro exam was fine and I had an MRI for migraines 1.5 yrs ago (BUT I did NOT have these symptoms THEN)

Do you think I could have M/S or something neurological? Do neuro symptoms show up on MRI's before symptoms?

Thanks for helpingme

MSNik · 08-29-2008, 05:52 PM

whatever you have, it does not sound like MS. MS is a disease of the central nervous system, the eyes, brain and spine...its not a joint disease. However, what you describe could be neurological in nature. An MRI can change as rapidly as week to week, and depending on what they are looking for, sometimes "symptoms" have nothing to do with the results of the test. Blood tests and other things wouldnt necessarily tell you what is wrong, but they do help to rule out what MIGHT be wrong. You mentioned a D deficiency? Thats a big deal and can give you symtoms like you describe. Are you doing anyting about it? Make sure if you are taking extra vitamin D that it is D3 - called calcipherol in the bottle.
If you are still having pains and aches- and are still concerned then you have every right to pursue more testing...time to find a good Neuro, the one you describe doesnt sound very competent. Starting new, now- might give you answers.
good luck and dont panic...ok?
Nikki

k2626 · 08-29-2008, 09:17 PM

Thanks so much for your feedback. Its hard not to panic when I have no answers and am in pain.

So MS does not cause muscle twitching, feet buzzing and joint/bone pain?

I will take your recommendation and get another MRI-it wont hurt right--no extra radiation?

Thanks again

MSNik · 08-30-2008, 08:08 PM

Hi. No, I never said MS does not cause muscle twitcing. Muscle spasms are a part of MS at times, for many- but not all patients. Feet buzzing, or any other tingling sensation in the extremeties can also be an MS thing, I havent been able to use my left hand or fingers in 2 years due to constant tingling pain...
Joint pain is NOT usually assocaited with MS, but someone here will tell you they have it...no one has the same set of symtoms with MS..
But my point is joint pain can be caused by arthritits- buzzing feet can be caused by restless leg syndrome- so can muscle spasms....all of these things can be caused by Lyme disease, Lupus and a host of other diseases...nothing you said screams of MS by itself.

Yes, you should get another MRI, I now get them quarterly- my brain and spine...no, there isnt radiation in an MRI, its magenetic and it wont hurt you.

Go see a good neuro...now is the time.
good luck
N

Bearygood · 08-31-2008, 07:43 AM

k2626, while some of the sx you're describing can be found in MS, the "cracking" makes me wonder if you've been tested for Lyme and if so, to which lab your blood was sent.