Hi There...I'm new here!!! - Multiple Sclerosis Message Board

Willow97 · 09-04-2008, 03:02 PM

Just wanted to say this is my first time on this Message board, and I must say it is the best one I have come across...just seems to have a more human touch!

I am in the midst of trying to find out what is going on with me...a really long journey(nightmare, more like it)...

Anyway, I was diagnosed with Fibromyalgia Nov/07, I really think there is more going on.

Since approx. June/06 I have had many episodes of symptoms (ie. internal vibrations- all over my body, vision-double, blurry, smokey and sometimes achy eyes, tingling and numbness in different places- hands,feet, legs and most recently my face and tongue went almost completly numb(scary). sensation of cold water dripping on legs or sitting on a wet chair. arm pain and weakness, leg weakness, cognitive problems across the board, head tingling(like an egg was cracked over my head) I'm sure there is more but I'm sure you get the idea...

I am just so sick and tired of being sick and tired....I did have an MRI in June/07 that came back all clear. Then the symptoms got better for a while, but everytime it comes back it seems worse and a little different. I am finally going to a Neuroligist on Monday...I just want answers so I can try to get my life back...

Sorry, so long I just got on a roll.....Any imput you have would be appreciated.............. thanks Willow97

DavidLeeK · 09-04-2008, 03:11 PM

Willow, welcome to the forums and sorry to hear about your symptoms

there are so many things that can mimic MS, that it can be hard to find the problems sometimes

the neurologist should be able to get you on the right path to diagnosis, hopefully another MRI, blood work, and go from there

keep us up to date on what is happening

Nenu · 09-04-2008, 03:49 PM

Welcome Willow!

A lot of your symptoms you mention do sound in the field of MS, but certainly not restricted to MS.

When you had your previous MRI, was it brain only? Make sure if possible to have an MRI from head to spine. Lesions from MS can also appear in the spinal area.

How long do your symptoms present? You mention they come and go. Make sure you make a list up for your appointment of symptoms you've experienced so you can provide this to your neurologist you see, who will ask about symptoms.

april1848 · 09-04-2008, 04:43 PM

Welcome!

I agree with Nenu that the symptoms could be MS, but they could be something else. Make sure you get bloodwork to rule out other things, like Lupus, that mimic MS. An MRI of the cervical spine is a good idea, and a spinal tap may help you get answers too. To diagnose MS, you have to rule out everything else first.

You may also want another MRI of the brain, since lesions can appear somewhat quickly. There are people on this site with MS who have clean MRIs. Seeing a neurologist is a great idea! If he/she can't figure it out, I would suggest seeing an MS specialist. They know exactly what to look for.

This is a tough journey. Please feel free to come here often and ask questions or vent. Everyone here is incredibley supportive and understanding. You will never be alone here! Please keep us updated and let us know what the neuro says.

Tasia W · 09-04-2008, 05:39 PM

Willow,welcome to the board. You are right this board has a great "human touch" and hope that you find the answers and support that you are seeking

Tasia