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Old 09-24-2008, 06:49 PM   #1
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End Stage

How long does someone who has been diagnosed as having "end stage" MS usually live for?

 
Old 09-24-2008, 07:23 PM   #2
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Re: End Stage

Since you do NOT die from MS, ive never heard of end stage MS.. who is telling you that someone is dying from this disease?
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Old 09-24-2008, 08:07 PM   #3
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Re: End Stage

Though very rare, there is a malignant form of MS. I read the story of someone who died within 8 years. The progression was quite rapid. This type of MS is extremely rare.

Here it is:
Marburg's Variant of Multiple Sclerosis is a very aggressive form of MS where the disease advances very quickly and relentlessly. It is associated with severe axonal loss and leads to rapid disability and death. It is also known as Acute or Fulminant MS. Marburg's MS often strikes in younger people and is usually preceded by fever (not always).

Last edited by MSJayhawk; 09-24-2008 at 08:14 PM. Reason: Add

 
Old 09-24-2008, 09:03 PM   #4
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Re: End Stage

I have a friend who lost his wife to a very aggressive form of MS. She most definitely died from the disease. It was 9 years from her initial diagnosis until she died. She spent the last two years of her life either with hospice care at home, or in a nursing home. I guess you'd call the last two years end-stage MS. No medications helped her at all at that point. It was quite sad, as her children were still at home, and had to grow up much too quickly.

Your doctor likely has some statistics her or she can tell you about survival rates and MS. In most cases, it is not a fatal disease. There are very rare cases where it is.

 
Old 09-24-2008, 09:03 PM   #5
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Re: End Stage

Sorry..accidental double post...my return key stuck on the computer

Last edited by supernova_krose; 09-24-2008 at 09:05 PM.

 
Old 09-25-2008, 04:18 AM   #6
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Re: End Stage

I work at a long term care facility or nursing home and a resident was recently admitted with the diagnosis of "end stage" MS. She is only 36. I did read up on it but could find nothing about life expectancy for "end stage". It is so sad. She has 2 teenage daughters who I have yet to see come visit her...don't know if they are busy or maybe it is just too dificult to see their mom that way. Her mom and fiance' come daily. She takes no medication because they don't help. She is very thin...about 89 pounds at 5' 6".

Thanks to all who have replied.

Last edited by tigerlilyx61; 09-25-2008 at 04:22 AM.

 
Old 09-25-2008, 09:49 PM   #7
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Re: End Stage

Well this is a eye opener.. I had never heard of this "end stage" Hmm scary huh??

 
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