A little scared and confused.. - Multiple Sclerosis Message Board

Robbysmom · 11-25-2008, 06:14 PM

Hi All,
I am new here, having come to these boards quite a lot lately to try and decipher what is going on with myself..still a bit confused, and honestly a lot scared, as I am a mom and sole caregiver to my 4 year old son (my husband works out of town) and therefore need to be healthy (not my choice apparently). That being said, here's the long short about me.
About a year ago I woke up feeling completely stiff in the joints from the waste down. Doc took lots of blood and X-Ray, said fibro. On to this year, about 3 months ago..sudden numbness and weakness travelled around. Now this is gone, and for a month, fasciulations all over, and oh, I have numbness over my right eye, used to come and go now there pretty much all the time. 2 days ago, the neck and back area really stiff and hurting (used toget the neck aches too on and off started a year ago).
Went to neurologist, sent me for MRI (today) with and without contrast. Well, I managed the without, and had a little freak out (i'm cloustrophobic) nd left without getting the contrast part .
Can't believe I did that, but needed to get out of there.
Sometimes my calf muscles feel weak, sometimes they don't. Sometimes my arms of fingers feel week (or PULLED) if you know what I mean, sometimes not.
I am having a bad time with anxiety waiting for the new blood tests to arrive (I was told it would take 4 weeks, I'm on the 3rd). Any thoughts? I haven't heard or read a lot on this site about the numbness over the eye thing, which seems to be my symptom that sticks around the longest. Also, my right ear bothers me when I type, like it's popping along with the typing?
I don't know either.
Any ideas?
Thanks so much.

MSJayhawk · 11-25-2008, 06:56 PM

Try to focus on things other than your body's problems. It will alleviate some of your anxiety. If you go the route of the MRI, you can get a sedative to negate the claustrophobia.

You are making the right steps toward a definitive diagnosis. It is difficult, but like many before you can attest, you can get through this.

Keep a journal of your symptoms (where they are, what you were doing when they happened, etc. ad nauseum). Keep on keeping on. I have you in my prayers.

duncan1 · 11-25-2008, 07:11 PM

Since you live in a region that is endemic for Lyme Disease, I guess your Dr tested you for this?

Robbysmom · 11-25-2008, 07:12 PM

Hi,
Thanks so much for getting back to me. I actually did have the MRI today, just didn't stay for the contrast part (I was about to jump out in the very beginning but made it through the entire first part!) I spend a lot of time on the boards trying to figure out what's wrong with me, but in my heart I think I know. I just want to be able to take care of my son, that is what breaks my heart, the not knowing what will happen.
Thanks for your reply and have a very Happy Thanksgiving.

Robbysmom · 11-25-2008, 07:13 PM

We just moved here a little less than a year ago from Tampa FL. I was having symptoms there. But yes, they tested me there and here. Both negative. My neurologist sent my new blood tests to California..I think to the big lyme lab there. Just to be certain.