I was diagnosed a year ago, and I was seeing a MS Specialist at Vanderbilt in Nashville. I haven't been totally happy, so I started seeing a WONDERFUL Specialist in Franklin, TN. After seeing him only once, I get a letter in the mail saying he will no longer take my insurance after January 1. I'm so upset and sad!
Can anyone recommend a good MS Specialist in Nashville, and tell me why you recommend him/her? I've been told Dr. Fallis at Summit is good, and Dr. Wagner at St. Thomas.
I saw posts from niki12 about going to a specialist in Nashville, but she didn't name names. niki12l, if you're on there please post and tell me who your dr. is and if you like him/her!
Hi, Donna. I don't have details but I've seen great recommendations for Dr. Fallis. Also, although this one is at Vandie, a recommendation or 2 for Dr. Harold Moses.
Just also wanted to mention that I got the same type of letter the other day from my insurance company re: my PCP. I love my doctor so I was definitely distressed. Called his office and was told that it was a clerical error! I realize that this isn't always going to be the case but if anyone gets this kind of letter, I definitely recommend going to the source to confirm that the information is accurate.
Dxed RRMS April '07
Not on DMDs
I think I got the same letter you received in the mail. I was trying to research new doctors and ran across your post. I was quite upset also. I had been going to this doctor for several years. My problem is I am not taking conventional treatment. I started on a new treatment last year. It is a chemotherapy called Campath. It is a 3-5 year treatment. I don't know if I can find another doctor who specializes in this treatment. If there is anyone out there who knows a MS specialist out there in the Nashville, Louisville, or St. Louis area who does please give a shout out. These treatments have to be pre-approved by insurance each time. It depends what mood the insurance is iin if they will. Thank God they approved the first one.
It was very upsetting to receive the letter from my doctor to say he no longer will accept my insurance. MS is an expensive disease to deal with and this added insult to injury.
JuFlem: Were you seeing Dr. Hunter as well? He gave me the paperwork for the Campath clinical trial he's a big part of. He wants me to consider that, or possibly starting Tysabri after a January MRI. Of course since my appointment with him next week will be my last, all that is a moot point. I'm so upset, and very sad about it. I called his office, and nothing seems to be going to change any time soon. I haven't called Blue Cross policy yet. I can't imagine them caring.
What is so preplexing is that with this office cancelling many popular insurance carriers, isn't he going to lose most of his clients?
Yes, I was seeing him and have been for several years. I was floored when I got his letter. I took my first Campath treatment the last of April first of May last year. I just saw him last month to set up for my next treatment for this next May. He never mentioned anything about the insurance. This leaves me in a bind because by starting the treatments I can't go back to conventional treatment now. Am searching for another Doctor who does Campath.
I can imagine he will lose alot of patients. I knew insurance was always a sore spot with him because he always had binders with stuff he had typed up about how insurance didn't pay right and how government didn't ruinging Medicare and things. I just never thought he would shut down not taking anyone's insurance.
MS is such an expensive disease. I can't afford to be out of pocket all the office visits and I sure can't afford the expense of the chemotherapy. I was one of the lucky ones that my insurance paid for the treatment. So many the insurance doesn't pay for it.
I don't know what insurance you have. I know a lady who lives in my county that her insurance wouldn't pay for hers. It's costs a couple of thousand plus infusions costs, medicines you have to take during treatments, lab work, MRI before, etc.
He's a very intelligent doctor. I just don't understand his thinking on this.