It's been a while. - Multiple Sclerosis Message Board

lizziebee74 · 02-22-2009, 05:37 PM

Hi all.

It's been a little over a year since I was last here. Early last year I was referred for an MRI and consultation with a neuro/MS specialist due to a vision disruption and some other symptoms. I did not go through with it and convinced myself it was all psychological or migraine related.

Today, I finally had my MRI. After some symptoms came back and new ones appeared within the last few weeks, I went to see a new doctor (we moved). I didn't do so hot on the balance and reflex tests, so she sent me to get the MRI.

Anyway, In 5 days or so I hope to hear, nope not MS (or anything else). It's all in your head.

i learned a lesson last time and have kept up with my body better over the last year. My problems this time around--several weeks of complete exhaustion (spent a four-day weekend in pajamas on the couch unable to do much of anything), frozen knotted muscle in upper arm, numbness (thigh, arm, hand) tingling (hands, fingers, arm, face) dizziness, spinning, loss of balance, severe headaches, back pain across the kidney area, blurred double vision and light and floaters, trouble concentrating, feeling that legs are not connected to torso--like I was pulling strings to pick them up--not sure how else to describe it. Oops, forgot eye pain.

Oh well, all psychological right? We can only hope.

I hope you all have a great Oscars night.

Lizziebee

MSJayhawk · 02-22-2009, 09:17 PM

Welcome back. I think many can relate to their first time with MS and thinking "I am crazy". It is good to hear you are moving forward. Do let us know how things turn out.

lizziebee74 · 02-23-2009, 05:17 PM

Thank you MsJayHawk. I really don't know what to think about it all. I went in today and my primary care doctor says my blood results suggest that I don't have Lupus, Lyme Disease or Diabetes--three things that they ruled out last time too. I don't think that all my symptoms suggest MS.

The eye pain, for example, could have something to do with sinuses or migraines maybe. Its not like a dry scratchy pain, more of a pulling...like the whole back of my eye has strings on it and when I look to the left the strings on the right and bottom pull and hurt. Does that make sense? Anyone ever experience that? It's not debilitating pain, just there, sometimes an ache, sometimes a pull.

Do any of you have problems with your ankles or knees failing and falling or feeling like you stepped down through the floor? The balance issues are scary and I didn't realize how bad they were until the doctor had me do some things in her office. I tend to "pull left" like a car and seldom ever bend down without feeling like I'm going to fall on my head. I can't shave my legs in the shower anymore even when I feel good. : (

I have no one to talk to right now because I'm the one everyone talks to--instead of the other way around.

I don't know what I want anyone to say.

MSJayhawk · 02-23-2009, 05:47 PM

Quote:

Originally Posted by lizziebee74

The eye pain, for example, could have something to do with sinuses or migraines maybe. Its not like a dry scratchy pain, more of a pulling...like the whole back of my eye has strings on it and when I look to the left the strings on the right and bottom pull and hurt. Does that make sense? Anyone ever experience that? It's not debilitating pain, just there, sometimes an ache, sometimes a pull.

Do any of you have problems with your ankles or knees failing and falling or feeling like you stepped down through the floor? The balance issues are scary and I didn't realize how bad they were until the doctor had me do some things in her office. I tend to "pull left" like a car and seldom ever bend down without feeling like I'm going to fall on my head. I can't shave my legs in the shower anymore even when I feel good. : (

I have no one to talk to right now because I'm the one everyone talks to--instead of the other way around.

I don't know what I want anyone to say.

My eye pain is sometimes as you described. Most of my pain has always been situated in my right eye.

Legs feeling like they will fall out from under you (down through the floor), yes, I have felt the same.

I have no experience leg shaving, but you might consider sitting on a shower stool. Leg weakness is always a problem for me. You can, however, adapt your lifestyle to fit your disability. Balance issues can be scary. I use a service dog for my worst balance issues. I also use a power chair indoors.

It is very important for your well-being to have someone with whom you may speak candidly. You might see if there is a MS support group in your area. I understand what you mean when you say everyone speaks to you. A support group may very well alleviate this burden as you can speak freely with others. Fair weather friends are likely to flee, but if you can establish some core friendships, you might find you have a strong foundation. If a local MS support group is unavailable, you might wish to make an inquiry with a local pastor as many churches have different groups for support.