seriouslly, i have ms and scoliosis, i need help! - Multiple Sclerosis Message Board

sauce 007 · 02-23-2009, 11:08 PM

who else suffers from both?

MSJayhawk · 02-24-2009, 06:45 AM

I do not suffer from both, just MS. I have a friend with scoliosis; I know how much it affects her.

glamour girl · 02-24-2009, 10:09 PM

I know how painful Scoliosis can be my friend also has it. I have MS; but
Don't know anyone who has both. My heart goes out to you. I can feel the fustration in your post.

supernova_krose · 02-24-2009, 10:24 PM

How much degree of curvature is your scoliosis? Is the scoliosis causing you pain?

I've got scoliosis, but the degree of curvature is less than 30 degrees, so too small to really be treated for (other than braces as a child to stabilize it.) If the degree of curvature is too large, it can cause problems with lung capacity, or damage other internal organs. My friend's daughter had multiple curves, the largest of which was 80 degrees, and she had to have surgery where the doctor fused a large part of her back. They can do the surgery now without putting metal bars in, and recovery doesn't involve wearing a cast for a year like it did when I was a child (and one of my best friends had such a cast in high school.)

If you need information about scoliosis, try posting at a spinal disorders message board, you may get more help there. Or, try telling the folks here what problems you're having because of the complicating factor of scoliosis with MS.

Are your doctor's helping you at all?

Good luck to you,

Kay

lindkaye3 · 02-24-2009, 10:44 PM

Hi there;

I have both, scoliosis and MS. My scoliosis started when I was about 10. I ended up wearing a brace for several years and it did help some. I have an "s" curve. After having my 1st daughter, my upper curve started getting worse to the point I had a 50 degree curve and needed surgery. I had rods put in and a couple years after taken out as I was having issues with them. At this time, I have a few problems with my back aching at times, and not being able to bend, but thats about it. As for the MS, I was just recently diagnosed with this. I also have RSD (reflex sympathetic dystrophy) in my leg after my total knee replacement -which gives me a great deal of pain and issues with lack of mobility. I am hoping the MS does not proceed in this area also. I know scoliosis can be painful. Are you under a dr's care for the soliosis? Wish you luck and if you need to talk - please feel free to contact me. Hang in there.