my doctor thinks i have ms - Multiple Sclerosis Message Board

lexie 2 · 03-01-2009, 08:48 PM

i have electrical shock like feeling going down my spine and leg. when it's really bad it causes my leg to jump and makes it hard to walk. the electrical feeling goes throughout my entire body with any type of movement and or loud sounds, but the strongest feeling is down my spine and leg. while all this is happening i lose consentration, my words, my ability to stay focused this lasts from 3 days to a week and a half then goes away for a month or two lately when it comes back it has been worse. i just want to go to bed and not move a speck, i feel like i will go mad. i can't make myself move as fast as i used to and i'm so tired that i ach. does anyone else experance this and has it turned out to be m? that's what my doctor thinks it is but ofcourse i have to have a mri for which i'm now waiting for this is my first posting and would love to hear from anyone thanks

MSJayhawk · 03-01-2009, 09:51 PM

Yes, I have been there and I experience many symptoms daily. You are not crazy, though you may feel that at times. MS is not fatal. It does, however, slow you down.

You may need to make lifestyle changes. I have endured my MS (med-free) for at least 30 years from when my first symptoms appeared. I have learned to listen to my body and learn my triggers. Triggers are those things which can cause flare-up's. For me, some of my triggers are temperature, lack of rest, etc. You need to discover your own triggers.

For me, when I have cognitive problems, I rest my mind. I read and study to keep my mind exercised. I also stretch my muscles as well as use a passive exercise machine. Though I am not well as I once was, I live one day at a time.

Set goals for yourself which are obtainable. As you progress, make the goal a little harder, but do not blame yourself if you can not accomplish what you want. Be proud of being able to accomplish what you can.

I know that without my personal journey with my Creator, I would be lost. Each day I know that I am blessed.

I truly hope you have something which is treatable, but should you have MS, keep coming here to be among your fellow MS gals and guys. In the meanwhile, I will keep you in my prayers.

lexie 2 · 03-02-2009, 08:16 PM

Quote:

Originally Posted by MSJayhawk

Yes, I have been there and I experience many symptoms daily. You are not crazy, though you may feel that at times. MS is not fatal. It does, however, slow you down.

You may need to make lifestyle changes. I have endured my MS (med-free) for at least 30 years from when my first symptoms appeared. I have learned to listen to my body and learn my triggers. Triggers are those things which can cause flare-up's. For me, some of my triggers are temperature, lack of rest, etc. You need to discover your own triggers.

For me, when I have cognitive problems, I rest my mind. I read and study to keep my mind exercised. I also stretch my muscles as well as use a passive exercise machine. Though I am not well as I once was, I live one day at a time.

Set goals for yourself which are obtainable. As you progress, make the goal a little harder, but do not blame yourself if you can not accomplish what you want. Be proud of being able to accomplish what you can.

I know that without my personal journey with my Creator, I would be lost. Each day I know that I am blessed.

I truly hope you have something which is treatable, but should you have MS, keep coming here to be among your fellow MS gals and guys. In the meanwhile, I will keep you in my prayers.

hi there thankyou so much for the words of encouragement. i can't tell you how much they ment to me. i will take your advice but one thing i'm not sure how to is to relax my mind. my thoughts never stop, except when i'm doing something like this, which by the ways really helps. i do have a personal relationship with my creator, my God, i can't imagin my life without that, regardless of my health issues. thanks again and i will be back and to all who read this i will let you know if it is ms or not. my doctor has also said it could be a tumer or brain cancer but really believes it's ms. i think waiting to find out what it is, just may do me in well not really thanks msjayhawk for your reply lexie 2

MSJayhawk · 03-02-2009, 09:50 PM

I read to relax my mind. If you really need to zero-out your brainwaves, veg out in front of a TV. Studies indicate that watching TV lowers your brain activity. Pop you favorite DVD/Tape in and watch it. When I was at my worst, I watched several DVD's. It did help as I never finished any movie without falling asleep.

lexie 2 · 05-12-2009, 07:48 PM

hi all I wish i could just stop dx'ing myself. i first came to this health board a couple of months ago when my Dr. told me that i may have ms. since then i have being reading this board almost everyday. i read one post and i say oh that's me i must have ms, and then another and i don't have it. i know this can't be helping to keep me sane, but it does help to read and know that i'm not alone, in dealing with difficult and painful health issues. I haven't even had my first mri, but i'm 53 so if I do have ms wouldn't i have already been dx'ed by now? I have over the years had things go numb, problems with my left foot dropping, my bowel's moving with out my knowing or feeling it except for the obvious, and other things but they come and go, and when gone out of mind. but lately and what caused my Dr. to even sujest that i may i ms is that i have a very strong electrical like feeling going though me, that get's so bad that it causes my leg to jump so bad it become unsafe to walk. and when this is happening my concentration becomes so bad that i can't focus or even process the slightest little thing. I start biting my tongue, because my jaw becomes so stiff, infact everything feels stiff almost a frozen like feeling. the thing is, that it come and can last up to a week and then it's gone as if it had never happened. I can go a week or two and feel perfectly fine then it's back again. Has this happened to anyone else? And if so, do you know what it is? I'm thinking because of my age that i don't have ms but i would like to know what it is that i do have. or maybe i'll just stop dx'ing myself. my mri is july 6th and i have a ap with my jp soon so i think i'll get him to book me a ap. with a neurologist right away so i don't have to wait so long after the mri. if i don't need the ap. it can be cancel. now i'm just rambling. any help out there? i would love it thanks i know this is very much like my first post because i just read it. sorry for that maybe i just need to vent i don't even know if this is how i post something new except to go back to my previous post hope i'm doing this right it comes with being old