Quote:
Originally Posted by Bearygood  Lisa, I'm unclear -- were you officially dxed with ON? I sincerely don't mean to alarm you but I'm asking because according to the studies, being treated by oral steroids alone is actually not recommended. If you're interested in learning more you can research the Optic Neuritis Treatment Trials (ONTT).
I hope you get better soon! |
hi, Good point Bearygood, I have only had ON once and I was treated with ACTH [adreno-cortico-trophic-hormone] big brother to Predisone, 2 injections per day over a 40 day period. I am also concerned that the Prednisone is effecting your hormones to the extent of having an extended menstrual period. This reaction to any MS medication is not to my knowledge normal.
I had ON 25 years ago and the Dr's can still see what they call an opaque disc, this is the retinal disc - a bunch of exposed nerves, that gathers and sends information to the brain regarding vision. This is the only part of the body where the nerves can be viewed. In an optic neuritis event the disc dies and effectively goes white if the loss of sight is total. It took me over a year to even recover a glimmer of light, as the nerves regained some blood supply and the healing started. I have 6/20 vision in the left eye now.
Whatever your diagnostic outcome I sincerely hope that you have courage, strength, patience and wisdom to deal with the outcome.
Tanya dx. 1984
Re: New ON & Prednisone 
Linear Mode
