To Take Or Not To Take - Multiple Sclerosis Message Board

jalmsalter · 05-26-2009, 03:02 PM

I went to c dr. last week and I am getting ready to start tysabri... I am just wondering if anyone has taken this drug, and what were your thoughts on this med.
I am not presently on anything bc I can't handle the needles

I just want all of these sensations to stop, and I hope this medication will help!!

MSNik · 05-26-2009, 04:47 PM

Hi there. Its not likely that your symptoms will stop, you are aware of that? The idea behind Tysabri and all other MS drugs is to slow down progression, thus reducing the chances of MORE symtoms starting. The ones which are already happening, probably wont go away.

Im experiencing the same thing with Rebif. The onset of symtoms when I was dx 3 years ago included tingling and burning in my left hand and fingers. Ive tried every single drug known for nerve pain and nothing has stopped including 3 years on Rebif; however Im happy to say that I havent had a single relapse or any additional MRI activity since starting my drug.

Good luck to you....keep us posted

nikki

MSJayhawk · 05-26-2009, 08:16 PM

I treat my symptoms without meds. Stretching, cold compresses, avoiding triggers, acupressure, and heating pads. The sensations will likely persist, but they may go away. Meds are no guarantee.

jalmsalter · 05-27-2009, 01:01 PM

MsJay,
Do you work, or stay home?? I am super stressed out from working and having two kids(13,11) and I am considering seeing if my dr will help me w/disability

I am starting to slur my words, and the confusion is scary!! My kids are really giving me a hard time about my ms and I just want to CRY like a baby

MSNik · 05-27-2009, 02:22 PM

Jamsalter,
How long have you had MS? is this possibly because you are new to the disease, or am I mistaken and you have dealt with this for some time? Im only asking because you sound really frustrated and if this is something new that you are dealing with, it would be understanding that you feel this way. MS comes and goes for the most part...the symptoms that is...however, anxiety and worrying about all that you are dealing with, can make it harder to deal with.
I hope you are geting the support that you need from your other family members? And, I hope you realize that there is help for your kids understanding available...the MS society has all sorts of help . I utilized it and it helped me quite a bit...
I hope things get easier for you soon.
nikki