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Old 06-26-2009, 08:17 PM   #1
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Could this be MS? Pt II

I am starting a new thread because the last one has become too long and because I am entering a new stage here.


I will begin with a general update. It has been more than a week and a half since I saw the neurologist. I am now taking Lexapro at 10 mg (a bump from 5 mg) and Xanax at .25 mg. (Gotta add that I was in shock at how cheap the Xanax was... especially after paying a hefty price for the Lexapro) I have to say that I am feeling 100% This has calmed me down considerably. My anxiety and stress levels have reduced a great bit. I will say that most of the symptoms that I was suffering from have disappeared.

Since taking the anxiety medication, there are only a few things that I am still going through. If you remember my list from the previous thread, there was a good 20+ symptoms that I had to endure. Currently I am still only battling:

-fatigue (still sleeping 11 hours a more every night)
-excessive yawning (yawning as I am typing!!! This one scares me)
-hoarse voice (I have to clear it constantly)
-petechia (the blood specs are continuing to appear on right arm only)
-sudden onset of canker sores
-muscle twitching

I was glad to see that my hand buzzing has subsided. It is still not completely gone, but it is minimized. It has gone from a buzzing to just a fine tremor. Upgrade?

I am also finally over the stuttering, which has plagued me the last few weeks. As for the slurring, I am not slurring a lot, but I still have trouble saying words. This is where my bulbar ALS fears come back. The excessive yawning, the hoarse voice... I need to bring this up front and center next neurologist visit.

About my ALS fear. I have been told that I am way too young to get the rarest form of a rare disease. Saying this over and over gets me through the day. I am also wondering how much acid reflex is playing a part in this. I have GERD, or what I am thinking is LPR (silent heart burn). From what I have read, the acid reaches your voice box causing irritation... thus a hoarse voice. This, with my constant globus sensation, (something in your throat feeling) I am praying is caused by the acid. I even saw an ENT months ago who confirmed acid reflex, but I am wondering if what she saw was atrophy instead.

Well, aside from a few other problems, I seem to be over the most concerning symptoms. Unless anxiety medication can suppress MS, I am going to put MS out of my mind because most of those symptoms are now gone

I will see my neruo again in early July, and I hope it will be the last time I will ever need to see him.

Last edited by blues1986; 06-26-2009 at 08:18 PM.

 
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Old 06-26-2009, 08:43 PM   #2
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Re: Could this be MS? Pt II

Blues, glad to hear you are feeling better. Most of the yawning and sleepiness are coming from the drugs you are taking. Please know that both the Lexapro and especially the Xanax are sleep inducers. And, Xanax is highly addictive. Be careful with it. Taking one a day is no big deal, but if you are taking more then that, its going to be hard to quit it- and its not the kind of medicine you will be on for too long.
The rest of the symptoms should calm down as your body recoups from the last few weeks...
Continue to feel good!
Nikki
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Old 06-26-2009, 09:03 PM   #3
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Re: Could this be MS? Pt II

Quote:
Originally Posted by MSNik View Post
Blues, glad to hear you are feeling better. Most of the yawning and sleepiness are coming from the drugs you are taking. Please know that both the Lexapro and especially the Xanax are sleep inducers. And, Xanax is highly addictive. Be careful with it. Taking one a day is no big deal, but if you are taking more then that, its going to be hard to quit it- and its not the kind of medicine you will be on for too long.
The rest of the symptoms should calm down as your body recoups from the last few weeks...
Continue to feel good!
Nikki
I actually began this excessive yawning stage weeks before I started taking any medication. It was the exact same time when I began to sleep excessively as well.

As far as the xanax goes, I am taking 3 doses a day. I am not sure about how addiction works, but right now I am not concerned about that. I seem to forget taking it most of the time. I was told to take one in the morning, afternoon, and night. I always seem to forget the afternoon and night dose.

 
Old 06-26-2009, 09:25 PM   #4
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Re: Could this be MS? Pt II

Gee Blues...thats an awful lot of Xanax for anyone to prescribe. You said you go back in July, right?? Hopefully, you will be either taken off of it completely or you will be comfortable saying that you only need one pill a day. This dose you are on, would put most people in a walking coma! Be careful driving and especially do not drink on this stuff. ...it will seriously impair you. I question any doctor who put you on such a high dosage. Its not recommended, especially not in someone who has not taken a drug like this before....if he started you at this dosage, whats he planning on doing when you build up a tolerance to it?? which wont take as long as you think...within a month, youll be hooked .
Be careful hon...this doctor is treating your complaints- not your problems.

Anxiety is always a symtom of something else...whether or not its MS or any other neurological disease, the anxiety part of it is just a symptom. He isnt treating anything but that right now, and honestly, youve been passed over as "being anxious" but no one has given you any indication of what is causing it, have they? Im not loving this doctor you are so fond of......but as long as you are starting to feel better, thats important. I just hope you continue to, and dont backslide when you get used to this drug.

Hugs to you.
nikki
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Old 07-07-2009, 06:07 PM   #5
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Re: Could this be MS? Pt II

Just wanted to update that I am seeing my neurologist tomorrow. I am going to ask a million questions regarding the blood results and I am going to ask a few questions that I have been building up since my last appointment.

Since beginning the stress medication, I am feeling 90%, only a few things still bothering me.

I should add that my fathers new state job will finally mean that insurance will be the best I have ever had. Of course, I graduate college next May which means my coverage is gone when I leave school. Maybe I should consider grad school..?!

 
Old 07-08-2009, 02:04 PM   #6
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Re: Could this be MS? Pt II

Definately consider grad school! Let us know how your doctor appointment went...glad to hear you are feeling better!
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Old 07-12-2009, 08:38 PM   #7
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Re: Could this be MS? Pt II

Well, I finally have a chance to tell everyone how my neurologists appointment went on Wednesday.

If I could describe the appointment in one word, it would be disappointed. I walked out of the clinic feeling like I was just robbed. I was in the exam room for no longer than 5 minutes before it was over.

The exam consisted of going over the blood tests, going over any new symptoms, and renewing my prescriptions.

I learned that I had the Epstein Barr Virus which he said normally means you have mono. I asked if that meant 100% I had mono, and he said he could not say. He told me that I had traces of the virus in my blood, and said that it was probably mono. He said that the virus was all but out of my system.

He told me that I did not need any further blood tests because he felt it would be pointless to do so.

Well, I should not complain. He kept asking if there were any new symptoms. When I told him no, he asked about my current ones. After telling him I was at about 95%, he felt confident with that.

Next thing I knew, he was bumping up my Lexapro to 20mg ( I didn't know it went that high?) and gave me more Xanax. He told me that I will start to come off the Xanax, and soon after the Lexapro. He told me to only take the xanax when I felt I needed to. He said that with my improvements, I should be able to come off the medication in a short while.

With that, the appointment was over. A grand total of 5 minutes. I should not complain though, because there were a lot of people there that had obvious disorders, and I appeared to be completely fine. After having time to think about it, he probably had patients that were far worse than I was that he needed to see.

He wanted me to make an appointment in three months, but since school will be in by then, I held off from making an appointment.

I shall leave with two final notes.

First. My mother was diagnosed with bechets disease a couple years ago. If you are not familiar with it, its because it is more common in the middle east and japan. It is a disease that attacks the immune system, and one that causes inflammation and sores in the mouth and what not. It's hardly ever seen in the U.S., but it looks like me and my twin brother might have it. The hallmark sign of this disease is mouth sores...aka canker sores. My mother gets them all the time. I have been having them off and on my entire life, but they are becoming more vicious as of late. I just got over a sore on my tongue.. and not too long ago, one that was on my uvula. The disease is accompanied by other things as well, such as joint pain and skin problems. Although it is too early to tell, me and my brother might have the disease my mother has.

Could bechets be playing a role? Maybe.

Second. My great grandfather died this past week. He was 93. This was my last great grandparent. I have seen four great grandparents die over the last five years. It is sad to see them go, and they will be missed. My family members have traditionally lived long and healthy lives, thus the longevity of my last great grand parent. I am hoping I have THAT gene. No need to wish me condolences please.

I guess in conclusion, it appears that stress and anxiety can cause a great deal of symptoms. Just when I thought I was truly sick, I was put on medication and now I am feeling better. Although there are a few symptoms STILL lingering around, they are not consuming my life. I know that I need to shut off the computer and go out and enjoy life. See you all, and thanks for the support. Good luck with your MS battles.

Last edited by blues1986; 07-12-2009 at 09:02 PM.

 
Old 07-13-2009, 05:45 AM   #8
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Re: Could this be MS? Pt II

Hey Blues- good luck to you. Im sure that we all wish you well. Personally speaking, you seem to be having more and more doctors point you towards anxiety issues; and Ive never heard of a Neuro appt which ended that quickly and left a patient as disastisfied as you. WIth that said, I would be remiss in not telling you that you shouldnt give up, and you should continue to seek out a Neuro who meets your needs. Whether or not you had Epstein Barr or Mono, which are very closely related- both of them CAN result in MS.....studies are being done now, showing that there MIGHT be a link....

Find yourself a new doctor. Remember to keep all that blood work and those tests you have done (ive been telling you that for months) and take everything to a new doctor. Between your mother's history, your symptoms and your battle to cope with this- there is a doctor out there who will see the link and monitor you properly. DO NOT skip your next 3 month appointment- even if you have to wait until 4 months to do it, as, getting off those drugs is important and staying on them might mask any real problems you might have....you dont want to ever stop those drugs cold turkey and should only stop them with a doctor monitoring you.

Sorry to hear about your grandfather- I too, have lost all 4 in a short time- you said no condolences, but I am sorry for your loss.

Let us know how you make out and Blues- please contact the local MS society in your area...or the area where you go to school. Let them know what you have been thru and ask for suggestions. If nothing else, the next doctor you see, should be an MS specialist and nothing else- you really need someone to follow your symptoms and help you manage whatever it is you are dealing with.
Good luck to you.
Nikki
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