Re: Tysabri: Need advise from experienced users!
xly, I wont be as good a reference as someone who is on Tysabri, but since we dont have allot of them posting, I wanted to give you my thoughts and also tell you, I had this same conversation with my Neuro less then 2 weeks ago.
First, according to your other posts, you are in the middle of an excaberation and are on Steroids, right? If Im right about that- dont do anything until you see how you recover from the relapse. Yes, Tysabri is strong stuff......but what my Neuro drills into my head is that if you start Tysabri, and this relapse was just a fluke - meaning you wont have another one for a few more years....then what happens 5 years from now, if you truly do progress and you are already on Tysabri? THere is "no where left to go" from already being on the strongest drug out there!
Rebif kept you healthy for this long....and this might be a fluke. OR, it might not be..but until you get your "legs" back and see how the steroids do for you..dont make any rash decisions. If in fact, the steroids dont help you....and the damage is done, then and only then , would I consider Tysabri as the next option.
Good luck....and I feel for you. This is one decision that stinks to have to make!
RRMS- dx 05