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Old 10-11-2009, 05:32 AM   #1
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Aaubree HB User
To take or Not to take!?!? Tysabri

I'm 28 yrs old was diagnosed in 04... 1 Day after i was put under and had a tooth pulled!! Was like a real bad flu for 4 weeks. I've had Numbness, tingling ,loosing eye sight, Balance problems and Dizziness............ My last MRI was last Dec. Many Many lesions unfortunately i got the results about 3 month ago! BUT......I have NOT had ANY SYMPTOMS or relaps!!!! My doctor wants me to go on Tysabri..... But i dont know what to do??? I feel NORMAL...HEALTHY....Back to my old self!! So please ANY INFO and or opinions are wanted very badly....

 
Old 10-11-2009, 07:47 AM   #2
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MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: To take or Not to take!?!? Tysabri

Aaurbree-
Hi. I was confused reading your post...have you been on any other MS drugs?

The fact that you had a tooth pulled, probably has nothing at all to do with your problems, something got you diagnosed, prior, right?

Were you having MS symtoms at the time of your diagnosis??

Tysabri is usually a last defense type of MS drug. Doctors dont usually prescribe it, unless the Interferons (rebix, avonex and betaseron) and Copaxone have shown to be ineffective. So, back to the first question- have you been on any of those?

Tysabri works for many people, however the risks are higher then with the above mentioned drugs....and you have to be monitored very carefully if you are going to start Tysabri infusions. Its not a drug you can do and forget in between. The fact that your last MRI showed increased lesions, is not good. You may feel back to your old self, but if they are going to continue you are going to have a relapse and new damage in the future...the idea of all the drugs, Tysabri included, is to stop progression. SO, taking one of them isnt a bad idea. Ive been on Rebif for almost 4 years, and actually am quite pleased that I am. I started with over 50 lesions and in the 4 years of twice yearly MRIs, no new ones have appeared and no new symtoms have taken over; even if I do still have the orignal problems which led to my dx....

give us some more info on yourself and we can probably offer more opinions...but honestly, being on one of the MS drugs, is probably a good idea if your radiographical tests (MRIs) are showing progression.

Nikki
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RRMS- dx 05

 
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