I've been doing some research on this for the past 24 hours. It was brought to my attention that I shouldn't get the shot because it can trigger an exasberation. Others say that if it's not a "live virus" then I should get it. Of course, there are other reasons why I do/don't want to do it but I'm just asking on an MS level. Safe or not? What are you all doing about this H1N1 thing? Do you also get the normal flu shot?
I'm going to call my neurologist's office a little later and see what their feelings on it are.
in my state- its mandatory that you get both shots unless you can provide documentation why you shouldnt (from your doctor). My Neuro and MS specialist both said YES to getting both of them.
I had them both almost a month ago- and did not have any reaction to either. I had them a few days apart- almost a week. I get the seasonal flu shot every year, and have never gotten the flu- nor had any negative reaction.
I should also note that I was exposed to the Swine (H1N1) as well as the seasonal flu shortly after I had the vaccines- Im in and out of hospitals, where there was a large outbreak...I did not get any symtoms and never got sick.
Its personal, but just so you understand- there are two ways to administer both vaccines. One way is the nasal inhalant. STAY AWAY FROM THAT ONE. This is the live vaccine...
The second way is the actual shot (into your shoulder or bicep). This is the killed vaccine and safe for anyone to recieve..
Hope this helps.
RRMS- dx 05
Last edited by Administrator; 11-20-2009 at 09:55 PM.
I asked my MS specialist if I should get either of the flu shots. Before I could finish, He said "Don't even think about it". UCSF MS center isn't recommending it. I still wonder if I should. I think it is a personal choice. I agree with MSNIK, definitely get the shot form if you decide to do it. Hopefully, we all stay healthy this winter. There are a lot of nasty bugs going around, very early in the season.
Just another point of view, but the CDC is recommending the flu shot for anyone with neurological disorders...also the H1N1 is on the same list. Also the National MS society recommends the flu shot, but when asked about the swine shot, they refer you back to the CDC (center for disease control) which takes you back to THEY also recommend it...
I asked my Neuro and he said definitly to the regular flu shot, which I get every year. He said no to the swine flu shot since there is no info on how people with ms react to it.
I sort of wonder is it better to chance an attack and get swine flu shot or get the swine flu and then an attack. I have been contemplating it!
If you are healthy (besides the MS--my aunt has MS but she still eats healthy and exercises regularly) there is a good chance you will not get the swine flu. Why not just stay healthy than CHANCE it and get the vaccine which is NOT properly tested, even for the general public....to me there seems to be nothing to contemplate!
Hello, I have reviewed all of the scientifc advice and my shot is booked for next Tuesday. I think it is really important to take an objective rational view and the risks attached to catching H1N1 far out weigh the slight risks attached to the vaccination. Side effects are very minor and for people suffering from underlying health issues or who are pregnant it is vital to get vaccinated. My daughter will also be getting the shot next Tuesday. I hope this helps and I wish all the best.
Hi, depending on where you are in the country (world) the SWINE flu shot might be something worth investigating further....in NJ, wher I live, there have been several deaths and over 300 cases of it in the hospitals, where people are REALLY sick! I have MS, and I got the swine flu shot, along with the regular shot, and am glad I did...both my stepkids have gotten swine flu, and Ive been exposed to it, and havent gotten it.
As for having MS and having had the shot- no adverse effects for me at all.
My nerologist is not recomending the H1N1 necessarily for MS since it is a "hyperactive immune system" not a compromised one . In addition, doctors are on the lookout for Guillain-Barre syndrome, which is a demyelinating disorder.
I had only the regular flue shot.
If anyone is interested - there was a new relase by the CDC (center for disease control) last week, which is documented in Neurology Now, the magazine- stating that MSers ARE not only advised to get the H1N1 shot, but also they are to go to the "head of the line' if there are shortages in your area.
Recent updates as to who is in the higher risk groups for complications from this flu has now established criteria making MS patients one of the highest..
We are now considered to be priority in being immunized; however only with the injectable "killed virus' not with the inhaled "live virus'.
For those of you who were advised against getting this a month or more ago, the new information contradicts that advice. You might want to read up on it and talk to your doctor again, as they are saying a second wave of this is probably going to hit in the spring.