lack of support - Multiple Sclerosis Message Board

denised · 03-29-2001, 10:50 AM

i am shocked to see how many people view eachothers posts but dont bother to reply. the people who are posting need help and information. i myself am dissapointed in the lack of caring. i really am going through a very difficult time and need help and answers. i thought that this board would be a nice place to get help. maybe i am wrong but i dont see that many people offering the helping hand to others.
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mlg01 · 03-29-2001, 12:34 PM

I dont think its a lack of caring at all. I have read every post on here but have not replied because frankly I am so newly diagnosed that I dont have any of the symtoms that everyone else seems to be experiencing. I have a little numbness in a few fingers and thats it. Otherwise I feel great. I have Avonex injections once a week and have no side effects from that either. I read these posts because it gives me a better undertanding of what could happen and it makes me feel very thankful that Im doing as good as I am. I found alot of good websites that gave me very good info and my doctor is wonderful and so is my mate. Feel free to email me any time you need to vent.

denised · 03-29-2001, 12:42 PM

thank you so much for responding! i am also new to all of this and i also am not experiencing the many things that others have to live with. my symptoms are there but not huge. thanks!

GinniBoBinni · 04-02-2001, 09:45 AM

I think also that a reason people do not respond is that they do not have something valuable to say. There are many posts here that I simply do not know enough about to respond. I would hate to post some arbitrary response to a question and have someone rely on it as truth only to find it causes more problems for them.

I do not have bad symptoms, am about to start Betaseron injections, and am hoping for the best. I think this message board is a good place to learn about the disease from real people, with real experiences.

yorkiemom · 04-02-2001, 11:34 AM

I agree with Ginni. I have read every post here which applies to me at this time. I have been diagnosed only 3 weeks, and I don't know as much about this disease as other people. I beleve we are all compassionate to the situation, but sometimes have nothing new to add.