anyone have this weird symptoms??? - Multiple Sclerosis Message Board

Denise_F · 03-30-2001, 02:59 PM

I was wondering if any of you have a symptom early in the morning, before you get up where you feel just awful, like there is little razor blades on each blood vessel?? It is not the usual tingling but it goes away once you get up?? Just curious, I had thought it was a side effect of steroids but I am not on any now (or have been for a month and a half now)I am worried I am going back into another exacerbation!

Thanks!!

yorkiemom · 04-02-2001, 01:44 PM

denise, I have not had any blood vessel tingling. I wanted to ask you how long did it take after getting off the steroids to feel better? I took Solumedrol for 7 days, and have been off for 4. I'm just now able to get off the couch without breaking a sweat.

Denise_F · 04-02-2001, 02:22 PM

Hi,

It took a good while. I never got to do 7 days but I think I am headed there. I always do 3 day and it really takes about a week for the full effect. I know that is disheartening but hang in there. On my first infusion I called EVERYONE asking when does it work!! The good thing about 7 days worth ( i hear) is that you don't repeat it in a month like i ended up doing.

Good luck and take care,

Denise

Mcahoe · 11-22-2004, 05:57 AM

Hi-all I can say is quit using steroids for MS. Get your doctor to perscribe LDN. Get on google and look this up. It can save you if you have MS!

Quote:

Originally Posted by Denise_F

I was wondering if any of you have a symptom early in the morning, before you get up where you feel just awful, like there is little razor blades on each blood vessel?? It is not the usual tingling but it goes away once you get up?? Just curious, I had thought it was a side effect of steroids but I am not on any now (or have been for a month and a half now)I am worried I am going back into another exacerbation!

Thanks!!