trying not to let this get me down - Multiple Sclerosis Message Board

tamitrue · 03-26-2001, 07:23 AM

I am 29 years old, diagnosed with R/R MS in February, 2001, currently not in remission, taking Copaxone. My doctor has suggested that I take some time off work and see if I can't get to feeling better. I love my job! My first thought is to ignore him, but my body is letting me know that this is not possible. I have told my boss that I want to work 1/2 days for a couple of weeks and see if this helps. I am so dizzy and buzzing feeling by noon that I am scared to drive home. Is there anyone out there dealing with this also? I don't want to stay home! I am on so many different meds that I thought one of them might be causing me problems, so I systematically stopped taking some of them. Nothing has helped. Luckily my job is a good one and they will pay for me to take time off and recoupe. I am just afraid that I might have to stay off work forever, since my job is so stressful. I just wondered if anyone had any words of wisdom for me. I am trying not to let this depress me.

Tammy

GinniBoBinni · 03-26-2001, 08:54 AM

Hi!

I am in the same boat. Just dx in Dec. 2000 with RRMS. I am still working, though I am having an attack presently, and the fatigue makes me dizzy also. I found that if I just take breaks, go rest in my car, and drink LOTS and LOTS of fresh veggie juices every day, it really helps. If you want to talk, email me at ginnibobinni@yahoo.com

Keep your chin up!

Ginni

yorkiemom · 03-26-2001, 01:55 PM

Hi, I've just been diagnosed last week with MS. I know how you feel. I, too, am still working and will do so until I cannot. Best as we can figure, I've had it 4 years, with exacerbations coming at 2 year intervals. This is my first time to find this forum, and I plan to come back daily. Glad this is here. Right now, I am on day 4 of a 7 day Solumedrol run for optic neuritis, and then I think it's on to Copaxone. Worst part of the day iswhen I first wake up...will I be ok?

GinniBoBinni · 03-27-2001, 08:58 AM

I have the same experience as you!! I had optic neuritis some 6 years ago, then about 2.5 years later had an exacerbation (tingling, numbness, weakness, etc.) and again, just in December had another, which lead me to the neurologist and consequential diagnosis. YOU WILL BE OK!!! My mother, at the age of nine had Polio. Her doctors told her she would NEVER walk again. Today, she runs 11 miles every day and does yoga. If you want to be well, you will be well. I am at ginnibobinni@yahoo.com if you want/need to chat.

Ginni

lc · 04-01-2001, 09:12 AM

Hi
I was diagnosed 3 years ago.I have ahigh powered very stressful job.I inject interferon.I to have a problem with feeling lousey mid to late morning.
This is excerbated by stress....lack of fluid intake (water)....to much reliance on caffene /nicotine...and a lowering blood sugar level.
So to improve the situation....I said improve...then avoid the stimulants(caffeine/nicotine etc.)
Drink loads of water.
Make sure that you eat little and often.(I take doggie bags to work with alsorts).And I get it out during meetings....surprisingly I end up sharing .
Make sure you have a lunch break....and rest.
Often do either some Yoga or a meditation.
It refreshes you.
If any body can improve on this let me know...I know its a lousey feeeling.It can make you feel like you are going to pass out,nausious,light headed and generally that you want to curl up or have a head transplant.
Rest for half hour.....my boss has invested in a couch for my office.
Hang in there
lc