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Old 11-19-2001, 08:53 PM   #1
ROSICOLE
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Angry Very scared- husband with blurred vision while driving!

I have made a couple of posts here since my husband was diagnosed with MS last week. Tonight I witnessed something that terrified me. I was following my husband home when he almost ran a red light and came very close to getting into an accident. When he pulled over he seemed disoriented and did not realize he had almost hit another car, twice! He said his vision was distorted, blurred, and he was seeing double. We left his truck and I drove him home and put him to bed.

I am so confused and scared because I asked the doctor if something like this could suddenly happen and he said no. He said this vision problem could occur but that it would be gradual and would not affect his driving. My husband drives a semi and delivers beer and I do not feel safe letting him go back to work!

I intend on calling the doctor first thing in the morning. I am very worried about optic neuritis. If anyone has had this problem or knows someone who has I could really use some advice, PLEASE!

Thanks!

ROSI

 
Old 11-20-2001, 06:49 AM   #2
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MY HUSBAND IS 41 AND WAS DIAGNOSED WITH PRIMARY PROGRESSIVE MS IN APRIL. FOR ALMOST A YEAR BEFORE HE WAS DIAGNOSED HE KEPT COMPLAINING ABOUT HIS VISION. HE HAD GREAT DIFFICULTY DRIVING ESPECIALLY AT NIGHT. WE TOOK HIM TO TWO EYE DOCTORS WHO SAID HIS EYES WERE FINE (20/35). WELL WE MADE A JOKE OF IT AND I STARTED DOING ALL THE DRIVING BECAUSE HIS DRIVING SCARED THE HELL OUT OF ME. AFTER HE WAS DIAGNOSED WE WERE REFERRED TO A NEURO OPTHAMOLOGIST. NOT ONLY DID HE HAVE PERMANENT DAMAGE TO HIS OPTIC NERVES BUT HIS VISION IN BOTH EYES AND DETERIORATED RAPIDLY (20/400) AND HE IS NOW LEGALLY BLIND. HE ALSO HAS SEVERE COGNITIVE PROBLEMS AND CANNOT WALK WITHOUT ASSISTANCE. MY HUSBANDS IS A SEVERE CASE, AND AS YOU KNOW EVERYONES DISEASE PROGRESSES DIFFERENTLY. PLEASE GET YOUR HUSBAND TO A QUALIFIED EYE DOCTOR. YOU SAID YOUR HUSBAND SEEMED DISORIENTED, KEEP IN MIND THAT MS CAUSES COGNITIVE DIFICULTIES, ESPECIALLY MEMORY AND SLOWED REACTIONS, AND STRESS MAKES IT WORSE. HAVE YOU BEEN TO THE CAREGIVERS WEBSITE AT MS-BOARDS.ORG, THEY ARE A WONDERFUL GROUP OF PEOPLE. SORRY MY POST COULDN'T HAVE BEEN MORE POSITIVE, BUT MS DEFINITELY AFFECTS YOUR ABILITY TO DRIVE WHETHER VISUAL OR COGNITIVE.


 
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Old 11-20-2001, 08:25 AM   #3
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Rosicole, this probably has to do with your husband's ON. I had it in March for the first time, and driving was scary for me. There were places that I couldn't see out of the ON eye. I started closing the eye and driving with just my good eye. That eventually put a strain on the good eye, of course. Doc put me on 7 days of IV Solu-medrol, which was aweful for me. Gained 20 pounds, felt like death warmed over...Tell husband to hang in there. Usually will straighten out all it's planning to in a month or so. Sometimes, there is permanent damage to the eyes. Hope not for him. Good luck.

 
Old 12-06-2001, 08:00 PM   #4
 
Join Date: Dec 2001
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Rosi,
Hi-- my dad has had MS for the past 35 years. He was diagnosed 6 months before I was born.

What the doc told you is not true, although he may just not know all the different ways the disease can display itself-- believe me, I heard the stories of when my Dad was first diagnosed. He first went blind in one eye, the next day it was the other, but the first was fine. He's had eye tests at various times over the years, and the tests will be fine, or he'll be prescribed glasses, and within a couple weeks his vision will change again.

I recommend finding a specialist as soon as you can so you get the info you need-- a general pract just can't know EVERYTHING on every disease, and try the MS society for more info.

All the best,
Cheryl
CherScoled@yahoo.com

 
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