Help!! Very confused - Multiple Sclerosis Message Board

donny1 · 05-21-2002, 12:12 PM

Hello,
My name is Tamara Pflipsen. I need some direction and I don't know where else to turn.. I have gone to the doctor and seen a specialist and they both told me that all me symptoms are stress related. I have had these symptoms for about 2 years and they seem to be getting progressively worse. I am so confused. The doc did a nerve test on me and said everthing was fine. I have a question about numbness. If the part of my body is tingling but I can still feel it, is that numbness? I just know that I can't go back to the doctor, I am so frustrated being told that there is nothing wrong!! Could I be making all this up in my head? Am I making it worse by thinking about it? Please tell me where to turn..

Thank you,

Nygabnet · 05-21-2002, 02:43 PM

Hello Donny:

As someone who has had MS for many more years then I care to remember, I must tell you that many illnesses mimic MS. What you re experiencing is referred to as parasthesia and is not being numb. Many people confuse this but there is a total difference. If you are not satisfied with your neurologist I suggest seeing one who is totally a MS specialist. This being one who treats at least 3/4 of his patient body for this illness. IF you are totally blank, call the NMSS at 1-800-fight MS and ask for a "MS Specialist" I must tell you that many do not take insurance so that might be a problem, so remember to ask if they take insurance.

Do not walk behind me for I may not lead, Do not
walk ahead of me, for I may not follow. Do not walk
beside me either. Just leave me the hell alone.
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donny1 · 05-21-2002, 02:55 PM

Thanks for the reply,
It does help me to feel better, would this thing you told me about also help explain short term memory loss, getting easily confused, twitching all over my body and pain in my eyes? Lately it seems that I can't even answer the telephone without thinking really hard about what I am going to say, or I have to take time to remeber a word, things like that.

LHowells · 05-22-2002, 07:59 AM

Donny,
I have Fibromyalgia (FMS)& Myofacial pain syndrome (MPS). These 2 mimic MS very closely. Including the pins and needles, cramps, tremors, tingling etc. I'm going to be tested for MS also because of the recent diagnosis of nerve damage on my left side with no nerve root compression in my back (Had an MRI 5-11). My suggestion to you is find a rheumatologist or Fibro doctor who can assess you correctly.
Good Luck to you,
Kim/LH