WHEN DRUGS DON'T WORK - Multiple Sclerosis Message Board

ulTRAX · 06-21-2002, 03:12 PM

A friend of mine, who hopefully will post himself here sometime soon, has been diagnosed with progressive MS. The diagnosis was confirmed at Yale but that was only a record review. No additional tests were done there. He has been on Copaxone for about 9 months and had one treatment with Novatrone about 2 months ago. Nothing has seemed to alleviate the symptoms.... though who knows, maybe without these meds, he’d be worse.

It might be totally coincidental but he came down with the symptoms shortly after the Lyme Disease vaccine.... a vaccine that has its own problems. Whether the vaccine is masking Lyme itself is another question.

So my question is if these drugs don’t seem to be having any positive effect... it a sign that there could be something else going on that might be mistaken for MS?

mlgable · 06-24-2002, 11:44 AM

MS has no cure and any drugs used may help one person but not do anything for the next individual. In my own mind I wouldn't doubt that there may be a connection between the lymes vaccine and his MS but that is just a personal feeling. I am not sure if there are newer methods of testing for MS but when my girlfriend was testing back in the 80's the most positive test for MS was to do a spinal tap and that fluid was sent to a lab out in CA that specifically tests for MS. Perhaps your friend needs to ask his docs more questions about his case and his meds to find out what exactly they hope these meds will do for him etc.

ulTRAX · 06-24-2002, 12:09 PM

mlgable wrote: "“MS has no cure and any drugs used may help one person but not do anything for the next individual.”

I’m well aware of this But I’m also wondering if it could also mean there’s something else going on.

“In my own mind I wouldn't doubt that there may be a connection between the lymes vaccine and his MS but that is just a personal feeling.”

I believe the Lyme vaccine has been known to cause transverse myelitis and I’m not sure whether that can be confused with MS in a MRI or spinal tap.

“Perhaps your friend needs to ask his docs more questions about his case and his meds to find out what exactly they hope these meds will do for him etc.”

I’m trying to encourage him to look at other possibilities. What if it’s not just MS but some combination of factors... MS and Lyme? Or an ineffective vaccine run amok WITH untreated Lyme?

F-Man · 06-26-2002, 05:57 PM

for what its worth, the symptoms of lymes disease can be similar to early MS. I recall that when I was being diagnosed, lymes disease was something they made a point of checking for right away.

rhody · 07-03-2002, 10:38 PM

In some rare cases, as I've read, people with MS symptoms linked it to their mercury-silver dental amalgams. I'm one of those people that linked my mercury-silver dental amalgams to my fibromyalgia symptoms. I write about it all the time - mostly I just describe my personal experiences and opinions - and things that I've read.

I have intimate knowledge of what happened to me, and how I was cured (to a point), but I know only a little about people that have claimed to have been cured of MS symptoms, after the removal of their dental amalgams. I point it out, so that you or anyone else can do some research about it.