What type/form of MS do you have? - Multiple Sclerosis Message Board

Mom_of_two · 06-19-2003, 10:56 PM

I'm curious, since I was just officially DX today with MS; Relapsing-remitting. My first clue was optic neuritis back in March, also numbing/tingling in legs and arms, extreme fatigue and some uncoordination. Oh, also had bladder infection in January. Doc recommends Copaxone, but is leaving treatment completely up to me. I have to go back for another extensive eye test of some sort and he wants more blood work done. Those of you taking Copaxone, any severe side effects? He told me Copaxone is working on a pill-form and it might be available in another couple of years. That would be great news! I hate shots.

avia · 06-26-2003, 09:20 PM

Have you been tested for Diabetes?

Mom_of_two · 06-27-2003, 01:27 AM

Hello...I'm pretty sure I have been checked for diabetes. I've had lots of bloodwork done recently, and I'm almost positive diabetes was one of them. Why do you ask?

Amy M · 06-27-2003, 09:08 PM

I have been on Copaxone for 14 months without any exacerbations. I still have my problems but I am quite happy with the drug. I have heard that the others really do give people flu like symptoms spoke directly with 3 individuals and they had either stopped therapy all together because of it or took their shots on the weekends and planned on being sick all weekend. One individual male is on a weekly one and he does like it but that dosen't seem to be the norm. I hate shots and still am not use to doing it, and cringe every time but I also have 2 kids and I get my courage knowing I need to care for them. I pray for a pill or patch or some alternet administration of it. As far as side affects injections sites aren't pretty for a few days, slightly puffy red or you can see where the drug disperesed itself. I have bruises but not so bad, not enough to try to hide just little reminders to add to the fatigue, pain, and unable to sleep well, and going from a very igh IQ to just above "slow". But I would not switch therapy, I had been having some sort of exacerbation 3 times a year prior, so to have them virtually non existent is a very encourageing thing! I would start asap, as it takes about 3months to really have it in your system to start protecting you, if you can afford/be insured for it go for it!

God Bless, Jesus Loves you

goddess · 07-05-2003, 07:38 AM

i've been on copaxone for almost 2 yrs and i love it. i was getting flare ups constantly before starting meds and now i have only had 1 in almost 2 yrs and it was minor. my legs felt a little like rubber. the only symptoms i can say i have now are nothing major. i get fatigue easily and the heat or humidity kills me!! those are small things that one can learn to adjust to, compared to other symptoms i've had which were just awful. so jump right into the copaxone. i PROMISE you it'll be the best thing and you'll have no regrets. good luck and write if you need anything!!

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