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shellymay 01-24-2010 09:00 AM

Back Pain!!!
 
Does anyone ever experience pain in their lower back and I mean it hurts so bad all day and all night and nothing helps it. It also feels sore like you have really worked out but I haven't, and then sometimes it feels like its in my lower spine almost my tailbone area. I also have pain in my lower intestinal area almost like where my ovaries are and diarrhea. Does anyone have anything like this? Sometimes it' not all at the same time but when it is, it's almost unbearable!!


Michelle

MSNik 01-24-2010 11:38 AM

Re: Back Pain!!!
 
Hi Shelley, I saw where you asked me what my back pains were like, and figured this was a more appropriate place to answer your question.

Mine arent lower back- mine are in my shoulder blade area. I know that I have 3 buldging discs in my spine in the C spine area...however, every ortho person I have seen insists that it is NOT what is causing my pain and its MS related...im starting to doubt it. Ive seen some of the best spine docs, who all want to do surgery on me (not happening) so now im seeing another pain specialist to have my MRIs looked at and get another opinion. By the way, Im now going on Tuesday- instead of the 10th- they had an earlier opening..

But my pain is blinding white hot pain which seems to start as soon as Im up for 3 hours and lasts well until Ive tried to lay down and sleep. ITs a burning, searing pain, which Im convinced is from the discs...we'll see. I do not want surgery and in fact will refuse to have it. But I have had 4 months of intense PT, and it did absolutely nothing. Neither did accupuncture- so maybe it is MS related...will keep you posted.
Nikki

shellymay 01-24-2010 12:10 PM

Re: Back Pain!!!
 
MSNik,

Sorry to hear about your back problems that you are having! Mine is not a burning searing pain, it is constant aching and at times intense pains that shoot from my hips up, not sure but it feels like it goes up my spine. Keep me posted as to your doctors appointment and I'm glad you got in sooner than the 10th.

Michelle

MSJayhawk 01-24-2010 10:50 PM

Re: Back Pain!!!
 
I have had two separate bouts with extreme pain in the lower back down through my left hip, left thigh, and numbness from just above the knee to my toes. I have had this twice, so far, and the only thing that helped me was heat. The pain was 9-10 on a 0-10 scale and it was 24/7. I tried the cold treatments to no avail.

I tried a heating pad and it worked. I move the pad about starting with the area that "feels" most painful and then I will move on to the next spot as soon as the heat numbs the pain. It does not cure anything, it just relieves pain so I can sit, sleep, or live! The last round with the heating pad came in August 2008 and lasted through December 2008. I am still rehabbing my left leg.

The first time I had the pain I sought help from my GP and Neuro for 2 months. The last time I felt the pain start, I got on the heating pad ASAP. Even now, as soon as I even sense a pain "down south", I use the heat pad. I have not had severe pain since December 2008 and no continual pain since Feb 2009.

I hope you get some relief! :angel:

shellymay 01-25-2010 11:06 AM

Re: Back Pain!!!
 
MSJayhawk,

I am so glad to hear that your pain is subsiding!! I have tried the heating pad and you are right it does help! After these bouts of severe pain, are you sore in your muscles in your back, like you have worked out and your muscles are sore? Today I seem to be having severe neck pain! I'm soooo tired of hurting all the time!!

Michelle

MSJayhawk 01-25-2010 09:02 PM

Re: Back Pain!!!
 
The muscles certainly do feel like they have had an 18 hour workout! Increase your hydration and after heat therapy, increase stretching. Some of the pain can be attributed to atrophy or dehydration.

I am happy to hear that you are getting relief!! Just remember to keep the heating pad moved, or allow cooling time, otherwise you can damage your skin. :angel:

shellymay 01-26-2010 08:36 PM

Re: Back Pain!!!
 
MSJayhawk,

Thanks for getting back with me and thanks for the advice!! I never thought about keeping the heating pad moved around because you can damage your skin. I've only been thinking about stopping the pain!! Thanks again!

Michelle

ChrisRenee79 01-27-2010 07:40 AM

Re: Back Pain!!!
 
Hi Shelley!

The back pain you're describing sounds exactly like the pain that started for me about 2 years ago and began my "MS adventure"... I tried PT as Nik mentioned, as well as muscle relaxers, heavy pain meds, etc. (all docs thought it was a disc problem until my spine MRI showed no issues)... heat helped me as well, but when I finally got to see a Neuro, she also prescribed Baclofen because the heat wasn't taking all the pain away and it had become hard to walk. If you're ok with taking medications to treat your symptoms, this might be something you want to ask your neuro about - for me there are no side effects such as drowsiness or feeling "out of it" but Im not sure if that is the case for everyone. I will say that using heat and taking the Baclofen when the pain becomes unbearable has been a much better alternative than taking something like Percocet all the time since I hate the "drugged" or "out of it" feeling that opiates usually cause.

I hope that you continue to find relief using whatever method you feel is best for you...

All the best,

Chris

shellymay 01-27-2010 11:12 AM

Re: Back Pain!!!
 
Chris,

Thank you so much and I will talk to the neuro about baclofen. It's good to hear that it doesn't make you drowsy because I hate that feeling, hope it doesn't make me that way either. Thanks again!

Michelle

MSNik 01-27-2010 06:13 PM

Re: Back Pain!!!
 
hey Shelley-
I tried Baclofan and it worked for me as well, however it DID make me feel hung over the next day. My doctor prescribed Flexeril for me, same type of drug, and I only use it when I absolutely have to- but it does help....and I dont feel as hung over I usually take it at night....you can ask about the difffernce in the two.

I also wanted to tell you that last night, I got a steroid shot in my back, up around my shoulder blade...they called it a trigger point injection. He said it would take 2-3 days before Id feel better. I had one very long, very ferocious day, and drove almost 200 miles today (for work) and honestly, my back isnt hurting like it normally would; so maybe it is starting to work for me. The specialist I saw is NOT convinced that my disc issues are causing my pain....and yet not convinced that its MS either. I have MRIs scheduled in mid Feb and a follow up MS appt the first week of March, so it was decided that after we see how my MS looks, and be sure there is no new lesions or progression, Im going to go back and see the pain specialist again- and let him know how this trigger point thing worked out. At that point, if Im stil having pain, a spinal injection might be the next step, which would be done in the out patient unit at the hopsital, under flouroscopy...thats a good way to have injections done, keeps them from hitting a nerve and makes everything clearer.....the thought doesnt thrill me, but its better then surgery! Ill keep you posted.
Hugs
Nikki

shellymay 01-27-2010 07:29 PM

Re: Back Pain!!!
 
MSNik,

That's wonderful news!! I'm so glad that you have found something that is helping you!! Please keep me posted as to how it works for you!

Michelle

armchairgenius 02-08-2010 10:46 AM

Re: Back Pain!!!
 
I read you post. I too suffered with same problem. Did you ever find a successful remedy?

shellymay 02-08-2010 10:57 AM

Re: Back Pain!!!
 
armchairgenius,

No I haven't found anything that helps! Have you been diagnosed with MS?

Michelle

MSNik 02-08-2010 05:07 PM

Re: Back Pain!!!
 
Michelle, The trigger point injection took the edge off the pain, now it hurts rather then "screams"! Im still having pain though...MRi scheduled for Feb 17- and follow up on March 2nd- so we'll see what the doctor says! Im going on vacation March 13th! I have a feeling it will help tremendously to go somewhere and relax for a week! (we are heading to St Lucia).
I really hope the MRI shows something other then just buldging of the discs this time- even if it shows them being worse, at least it will give me an indication that this isnt MS related....and my neuro really doesnt think it is.
Hope you are feeling better.
Nikki

Wilc516 02-11-2010 06:09 PM

Re: Back Pain!!!
 
Hello, I have just been diagnosed with MS and have some very severe lower back pain. It had ached before, but it has increased dramatically since I had a lumbar puncture done last Tuesday. It is right in my spine just above my tailbone. I am hopeful that the pain subsides and soon!!!! My GP mentioned that sometimes after a LP a clotting issue can cause some pain so I hope it goes away.


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