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Old 07-24-2003, 08:45 PM   #1
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Chyene HB User
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Hi, my name's Chyene. I need some advice. i went to my doc. and she done a CPK and my levels were a little above normal, few weeks another one was taken and were 1 point from beening abnormal. She told me i had myositis(no other test were done)that was about 8 monthes ago and now i am having some real bad tingling in my left arm(from top to bottom) even if i'm using my arms. i also have the same feeling in my right arm,but not as much. this is happening about 80% of the time in my left arm and sometimes only in my right.
i also have a LOT of trouble standing, walking, or getting up and down steps if i set for a while. I am also having some real strange feelings in my legs, if i'm not moving them a lot i feel as if i don't kick,or move them a lot that they feel as if they don't belong to me(if that makes any sense) they just hurt deep down inside like crazy.mostly mid section.I don't sleep real well at night unless i take a pain pill(ultracet). I've also been DX with asthma but feel like that might be a mistake, even though i do have trouble breathing from time to time.Does this sound like i might have MS to you? i am going back to my doctor in a week or two and i want to talk to her about it. thanks Chyene

 
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Old 07-24-2003, 08:50 PM   #2
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Chyene HB User
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chyene again, i forgot to mention that i have awful problems with my neck muscles,and my shoulders also. can't lay anyway that they don't hurt. i have been checked for arthritis 2 or 3 times and was told every time that i had none.

 
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Old 07-25-2003, 09:57 PM   #3
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jltk HB User
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Hello Chyene,

I was diagnosed with MS 9 yrs ago. I have felt the feeling that your legs are not connected on many occations,. I have found that it is best to behonest
with your doc and tell him or her that you are afraid it might be MS and ask for the appropriate test.
Lots of luck
Kathy

 
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Old 07-27-2003, 12:16 PM   #4
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harley HB User
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Hi Chyene,
Have you been tested for Lyme Disease????
I have all your symptoms and thought I had MS too... It's frightening...
My symptoms are all left sided.
From my neck to my toes.
I was told I had probable MS,Fibromyalgia,Lupus,RA,CFS.
I also live in Tennessee.
I see a LLMD a (lyme literate MD in Missouri.
Theres not a dr who treats Lyme in Tennessee in fact the dr's here will tell you there NO Lyme here.

 
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Old 07-27-2003, 04:30 PM   #5
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Chyene HB User
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thanks for the replys,i will be going back to my doctor in a few weeks and i will ask her these ? .
the tingle in my arm and hand is starting to ease off a little so maybe it's not as bad i thought. thanks
chyene

 
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