Need to know! - Multiple Sclerosis Message Board

Renee016 · 07-29-2003, 07:12 PM

I need to know if anyone has pain that jumps around (i.e right leg one day, left leg the next, sometimes the calf, sometimes the shin, etc.)

Also, how often do you get flare ups? (Sorry, don't know the correct word.)

Do any of you women have symptoms that are worse during menstration?

I would greatly appreciated any and all input - I am trying to find a diagnosis for myself - MS is only one suspect that the doctors are testing me for. Tommorrow I am seeing a spine specialist in Manhatten to rule out other suspected disease.

Thanks,
Renee

Amy M · 07-30-2003, 04:04 PM

I have constant total pain that seems to come from my spine. I have fatigue always. I was having "flare ups" about every 6 months with a new symptom before starting medication. Which since starting copaxone I haven't had any.

And yes when it is that time of the month every month I have greater fatigue, and more pain, as I have noticed a pattern . My doctor is in tune with me and I am able to control most of this with meds though Thank God!

Sorry I can't help with the jumping around pain, but it wouldn't surprise me much.

God Bless

hmay8 · 07-31-2003, 09:38 PM

Hi Renee, I too am in search of what is wrong with me. I supposidly have ms. Was dx May 1st. Three weeks later my neuro wasn't so sure anymore.He never undx me. He still sent a letter to my gp saying I have ms. But he wont treat me.

I do get pain and weakness in the same place. However, It does jump around sometimes and confuses me. For example; In my left hand I get twitches that make my fingers go back and forth. It will do that for a few days then my right hand does it(not as bad as the left). Then they both will twitch then it goes back to just the left again.

Also I get a weak leg durring my flair-ups. It is usually in my right leg. Once and a while my left leg will give out and I fall but usually it is my right leg. My muscle feels like someone is grabbing it and trying to pull it out. It cramps up and I fall ALOT. I have a cane now.

Have you had any tests done? If so what were the results? I hope you find your answers. Let us know what you find out. Good Luck.

hmay