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Old 02-26-2010, 02:51 PM   #1
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Atypical Migraine?

Does anyone have experience with an atypical migraine diagnosis? I have an orbital MRI scheduled for possible optical neuritis in left eye, but doctor also mentioned atypical migraine as the culprit.

Some loss of vision in left eye, intense eye pain, some color distortion, lid lag and slightly larger pupil in left eye. Just took a shower and now I have lovely halos around everything.

Had headaches before. Now pain is all in eye.

IV toradol didn't do anything for me.

 
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Old 02-26-2010, 04:38 PM   #2
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Re: Atypical Migraine?

Optical Neuritis can be very painful. Ive had it 3 times. Your symtoms definately sound like it could be the diagnosis.... atypical migrane just means a migrane without the headaches.... its a general diagnosis, and shouldnt be considered to be definate, until all further testing is done.

Heat is a major contributor to ON pain. You said you just got out of the shower. Heat sensitivity is also a huge MS indicator. Do you also get dizzy or feel weak and almost confused when you get out of the shower? DO you notice a half hour later, you feel better? If this is the case, try taking less hot showers, and as you get used to the water temp, start COOLING it down before you get out. I know, its cold, and we all want to make it hotter before we get out, but this can very definately increase your symtoms, even the eye pain and halos...cooling down your body temp should help considerably.

If you have ON it doesnt have to mean you also have MS- although the two can be closely related....if you have migranes, you DEFINATELY should be seeing a MS doctor, who can rule out MS. Most general Neuros cant tell the difference from a MS lesion to a Migrane lesion. They are different and an experienced MS doc can pick it up easily....

Get the test done, see what they tell you. The standard treatment for ON is IV Solumedrol. Dont let them put you on a pill pack of Prendisone without reason. That was the old treatment and now it is not considered a good idea . Most of the time, being on a pill pack will result in the ON coming back and being worse. IV meds will decrease the inflammation and help the cause- getting rid of the ON.

when you get your results consider making an appt with another Neuro, one who specialises in MS. He can both dx and rule out MS- and he can definately tell you which way to go from there..

Nikki
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Old 02-26-2010, 05:16 PM   #3
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Re: Atypical Migraine?

I have definitely noticed my vision and fatigue is worse after a shower or in the car when the seat warmer is left on. Even though it has been brutally cold I still keep my thermostat (my right leg) out of the comforter.

I had a round of symptoms including vision problems last year. By the time I got into the neuro and had MRI it had passed. But happily the brain MRI was clear. He said likely it was migraines.

He asked me to come in again if it ever started up. So fast forward a little less than a year to dizzy spells, numb left arm, 2 weeks of headaches, and now even worse vision problems. Still possibly migraines. But with the new vision loss and inability to see a pattern (all colors wash together) and dim otherwise, he wants to do the orbital MRI. It just seems to be getting worse and I'm afraid it will go completely.

my hand feels like those squishy balloon toys that are filled with water or something. Looks normal so its not swelling. So weird. This has been constant since the eye started up. Heaviness, stabbing pains and tingling come and go.

It's really the heat sensitivity issue that makes me want to educate myself about MS. I appreciate the discussions here. It's a real world view rather than a checklist.

 
Old 02-26-2010, 06:14 PM   #4
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Re: Atypical Migraine?

Lizziebee, I really feel badly for you. What you are describing is so common to so many of us...Im glad that you find this forum helpful.

You really should have the orbitol MRI done- they can also send you to a Neuro-Opthamologist, who can see your Optic Nerve without doing the MRI, simply by administering drops and looking behind your eye...painless and quick- youll have an answer within minutes. But whichever way you decide to proceed- you have to know that MS isnt easily diagnosed....and your doctor is right about one thing- DONT GO AROUND WITH A WRONG DIAGNOSIS! If he wants to take this slow and steady before giving you a label- there is nothing wrong with that.

However, keep in mind that it can take people years to get a MS dx, because every few days, your MRI can change and BOOM! Those lesions can show up which werent there the week before. SO, having your MRI repeated at least every 6 months is a good idea. One day, no diagnosis, the next day a true diagnosis...thats how it worked for many of us.

Heat sensitivity is SO common to MSers. It doesnt affect all of us (me it does) but like everything else with MS, no two cases are exactly alike. It might be a clue to what is going on with you, so experiment with keeping your body temp cooler and see if it makes a difference. I havent had a hot bath or been in a hottub or sauna in 5 years. My showers are "tepid" and my heating blanket went into the trash 5 years ago too. Amazingly, it makes a difference!
Keep me posted!
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Old 09-01-2011, 02:20 AM   #5
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Re: Atypical Migraine?

Hey everyone. I'm back with another round. I haven't seen a neuro since my MRI of the orbits. I accepted the atypical migraine diagnosis, addressed the vitamin d deficiency and moved to a tropical location. Now almost a year and a half later I've had a little reality check for the past two weeks. It all started with the lid lag again and all my old symptoms are back.

Ended up in ER with worst migraine of my life during all of this. Lots of other things going on that I would report if the pain in my eye weren't so severe right now. Anyway, I got a neuro consult. I was scolded because apparently I was supposed to check in with the neuro as soon as I got here a little over a year ago. I honestly thought I was done. Got to feel normal for a long time though, and I really appreciate that. Just so anxious about the testing.

I look forward to catching up on what I've missed.

Liz

 
Old 09-01-2011, 07:30 AM   #6
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Re: Atypical Migraine?

Welcome back. I am sorry you are not doing well. If you have MS, you can certainly have migraines. Back in high school I would get terrible migraines each autumn as the season changed. My neuro told me this was probably MS related as he was reviewing my onset forensically.

Please follow-up with an MS specialist as you might be headed for a bad episode. Denial and stress are two enemies of MSers.
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