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dlt1200 · 03-16-2010, 04:11 PM

I have been in a 4 month medical system nightmare!! Plenty of symptoms...plenty of tests....no answers!

My symptoms began early last Dec as an extreme left sided low back PAIN. Hurt so bad I couldnt move. 5 days later numbness in left shin area and slight drop foot noticed. MRI of back showed nothing abnormal. Doc diagnosed as Piraformis syndrome and through some trigger therapy and accupressure pain subsided--almost all. Drop foot is getting better as I continue to stretch and exercise. During this process noticed some internal trembling off and on mostly at night and a numbness that comes and goes in my left thumb. Had tons of bloodwork all good, pelvic ct-good, but I cant get a cause or real diagnosis. Some of the things I read here are like my symptoms and some I dont have such as eye issues, heat intolerence, or urinary issues. I have had two different neuros tell me that thy think it is unlikely it is MS. I insisted on an mri of the brain but of course 4 more weeks until I can get that done. Anybody share anything with me that might help me through this process? It has been an anxiety nightmare. I havent slept good since this all began.
DLT

MSJayhawk · 03-16-2010, 08:27 PM

Have you been seen by a neuro who sees MSers? It certainly sounds like something is going on. I would seek out a second opinion if the neuros are not providing you with good service.

dlt1200 · 03-17-2010, 06:40 AM

Actually both of these neuros are suppossed MS doctors. How does one go about finding a MS specialist in their area? They are not listed in yellow pages that way.

D

MSJayhawk · 03-17-2010, 07:28 AM

You can get information from your local MS Society or Association local chapter.

When you meet with the doctors, do they follow the McDonald criteria? This is the accepted guideline for diagnosing MS.

For me, I drive 2 hours north to KUMC (University of Kansas Medical Center). As an alternative I could drive to Wichita, but KU is where I was originally diagnosed and I will stick with my doctor because she is excellent. I have seen a local neurologist who had the bedside manner of a cockroach. He claimed he knew MS, but it was clear that he did not. There is another neuro near me, but he sees mainly Parkinson's and others. He does not, as far as I know, see anyone with MS. The doctor a KUMC sees only MS and ALS patients. Other doctors see only Parkinson's etc.

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