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Old 03-21-2010, 11:47 AM   #1
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Traveling with MS

Hi everyone! Just wanted to post a quick thread about traveling with MS and MS drugs, specifically syringes. I have traveled all over the world now with my Rebif and this was the first time that I have ever been stopped at an airport. Interestingly enough, it wasnt a US airport, but an overseas one which questioned my drug bag (as I call it). I didnt have a place to properly dispose of my needles where I was, so I used a small portable sharpies container and brought back the used syringes. I had used up all my actual filled syringes....

If any of you ever travel either nationally or internationally, here is the latest which the TSA says MUST accompany your travel bag. You MUST have a recent prescription for your drug (you can tear off the side of the box which your last shipment of needles came in). You MUST have a prescription or letter from your neuro stating that you have MS and this is the reason for carrying the drugs on a plane. You should NOT pack it in your luggage, but carry it in a carry-on so that it doesnt not freeze in transport.

Fortunately, I had all this with me- however Ive always had it and only this one time was ever asked to actually show it on a trip. Funny enough, after they realized that these were used syringes and not full of medicine, they still didnt confiscate them and asked why I was bringing them back with me. My explanation of disposing of them properly, rather then throwing them out in the resort's garbage can, seemed to earn me a few points!

By the way, a vacation IS the best medicine for MS! Although it was 90+ degrees and humid where I was, I still managed to keep cool by alternately jumping in the ocean and the pool all day...I had no relapse feelings at all, even my tingling and numbness seemed less noticeable. Of course those who 'know" me, know my stress level is usually thru the roof from work and school so not having that on me probably did lower my symtoms....but none the less, remember that even with MS, you can have wonderful vacations and still travel with your drugs and MS supplies. I just wanted to share with you all what you should be thinking about traveling with as the summer months approach and more of us schedule vacation time....

Hugs,
Nikki
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Old 03-21-2010, 05:05 PM   #2
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Re: Traveling with MS

Thanks for this info. When my Rebif nurse was here I asked her about traveling with the syringes. She didn't have the answers, said to check with TSA, so this is helpful. Not that I have any plane trips planned but for some reason I really wanted to know!

Glad you had a nice vacation. Relaxation is a wonderful thing!

 
Old 03-22-2010, 06:14 AM   #3
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Re: Traveling with MS

Thank you so much for posting this....I am travelling on Thursday and this is very helpful information.

 
Old 03-22-2010, 12:24 PM   #4
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Re: Traveling with MS

Youre both welcome! I started traveling with my Rebif about 4 years ago, so I was aware that I had to have a recent script with me, but this newer thing- having a note from your doc which states WHY you are carrying syringes, is a newer TSA requirement. Ask your doc NOT to date it, then you can use it indefinately..

Have fun wherever you are going! Ive never been stopped prior to this, but at least if you are, you'll know what to have with you!

Hugs
Nikki
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Old 03-22-2010, 01:57 PM   #5
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Re: Traveling with MS

Hi,
Another thing I would say about travelling is to remember to declare your MS or in my case so far I have to declare TM on your health insurance. I am UK and if you fail to declare something you need treatment for when on holiday you will not be covered. Is this the same in the USA? I had to pay £40 extra for me to be covered because of TM. I am glad you had a good holiday.
Susie.

 
Old 03-23-2010, 04:24 AM   #6
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Re: Traveling with MS

Susie, in the US, its up to the individual health insurance that we choose if we can be treated overseas or not. For instance, my insuarance allows me to be treated anywhere in the world, if it is an emergency - and we do not have to declare anything ahead of time or get anything pre-certified. We just get treatment and then have it submitted to our insurance company for payment; however, the out of pocket expense part is higher. Instead of it being a 100$ co-pay for an emergency room treatment, outside of the US, its 500$...everything after that is covered.

Some people I know who have smaller insuarnce companies, will not allow treatment outside of the US without prior authorization, so if you wind up in a foreign country with a relapse or even a heart attack, they cannot treat you until they call the insurance company and request authorization; otherwise nothing is paid for...

US is crazy when it comes to health insurance! But good tip for the EU posters who read it!!
Nikki
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