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Old 04-06-2010, 02:23 AM   #1
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ravenschild HB User
Unhappy Please help

Hi,I have suffered from migraine with aura since age 11, i am now 55, 12 years ago my migraines became different and i was getting a lot of wierd symptoms for example patchy numb type feelings on right side (pinky,calf, and forarm) also a tingling on one side of tongue. Unlike migraine this lasted for weeks then eased off. I have had these symptoms some and go for the last 10 years sometimes with headache sometime not. i have had a straightforward MRI which was normal. I have now been habving these symptoms for 9 weeks on a daily basis sometimes beginning as soon as i wake other times later in the day I have also had bad vertigo which lasted 6 weeks but has now eased. The feelings are mainly on right side but do migrate to left on occasion. I am at my wits end. Is is possible it is MS, i have read that MS does not always show on MRI. (my MRI was not contrast) My blood pressure is good I am not overweight and I don't smoke. Dr ruled out TIA.Is it possible this is MS i am sort of hoping it is I just want to be able to know for sure what is wrong with me.

 
Old 04-06-2010, 05:47 AM   #2
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MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: Please help

Ravenschild, you sound panicky. Please dont be. It wont help your symptoms. Youre asking if something could be MS related. Anything is possible, however you dont mention any of the other more common symtoms that MSers suffer. And, the simple fact that you have dealt with this for so long, doesnt sound like MS.

MS is progressive and more then likely more symptoms would have reared by now...but thats not always the case. MS is very individualized. Not everyone has all the same symtoms.

Have you seen a Neurologist? You stated that you heard that not all MSers have something show up on the MRI. Thats not exactly true. One of the most important things that doctors look for on an MRI is lesions. Its part of the McDonald Criteria to diagnose MS. However, lesions can show up at any time. Just because they werent there two weeks ago, doesnt mean they wont show up next time. They need to do a MRI of the brain and Cspine - with and without contrast in order to tell you that there is nothing on it...

So, please, since you are nervous, find a MS specailist, a Neuro with a fellowship in MS, who can help guide you through proper testing and help you get some conclusive answers. In the meantime, try not to worry...it wont help you to be stressed out.

Let us know how else we can help.
Nikki
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Old 04-06-2010, 05:59 AM   #3
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ravenschild HB User
Wink Re: Please help

Thanks for your reply to my post. As you say i have had these episodes on and off for the last 12 years, my doctor (not neurologist) say probably complex migraine and the neurologist seems to agree. My problem is they just say I may have to live with it and don't give me any clear answers. I know they saw a small spot on my scan but didn't seem to think it was significant but didn't say why. I have never had a scan of my cspine, I just feel i deserve to be taken more seriously. i am not really paicky just really fed up of not knowing what is causing all this. the symptoms are intermittent but daily, this episode started just after Christmas holidays. My doctor has refered me to another neurologist (a lady this time) I am hoping she wont see me as a neurotic 50 something As i said if i was told yes it is MS at least i would know something and that is better than not knowing
Thanks again for taking the trouble to answer. i will let you know how i get on.

 
Old 04-06-2010, 07:45 AM   #4
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Re: Please help

Nobody here will think your a 50 something neurotic! We all know how hard it is to get a diagnosis, no matter what it is....but for the record, YOU have to be your own advocate! You have to push and push and know what you are asking for, in order to get anywhere....leaving it up to the doctor to decide how to proceed is the number one mistake patients make. If you are concerned about your body and you want answers, take control! That means, yes, starting with a new doctor, having a list of symtoms and questions and asking about particular tests. Im still not convinced you are looking at MS, Id be surprised if you were, but anything is possible and the best way to rule it out is to have the right tests performed. So, ask about having a repeat MRI, wiht and without contrast, make sure it is both the Cspine and Brain....read up on the McDonald criteria which is what doctors use to dx MS...and make sure this new Neuro has patients with MS, so you know she is comfortable with all the different ways the disease presents. If she doesnt, ask HER for a referral to a MS specialist.

You have to start somewhere and its obvious that this is high on your list of concerns- getting answers! So take that frustration and turn it into something positiive. Let us know how it works out...

and by the way, Welcome to Healthboards! I didnt properly welcome you last time....we really hope youll find some comfort and answers with us. Be sure to check out the other boards on Healthboards which pertain to headaches and other diseases, some of them might have some answers for you as well.
Nikki
__________________
RRMS- dx 05

 
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