It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Multiple Sclerosis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 04-24-2010, 02:10 PM   #1
Senior Member
(female)
 
Join Date: Apr 2010
Location: Western New York
Posts: 248
JodiH HB UserJodiH HB UserJodiH HB UserJodiH HB User
How to select the best treatment?

Curious how you all decided which treatment to take and have you changed them along the way? I was going to do avonex but the weekly flu symptoms and long needle not good. I am going to try copaxone beginning with the auto injector because I think this is the only way I will get used to the feeling of shots every day. Also, they say no flu side effects... has anyone on copaxone experienced anything different other than the rash/skin reactions? As much as I am dreading the arrival of my meds, I am one of those people that cannot swallow pills so injections should be better than pills for me.

 
Old 04-24-2010, 03:17 PM   #2
Facilitator
(female)
 
Join Date: Sep 2006
Location: USA
Posts: 8,779
MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: How to select the best treatment?

Since there are no pills for MS on the market yet, you dont have a choice! Ive been being told for almost 5 years that "any day" there will be an oral form of interferon, however 5 years later, still waiting. The clinical trials have not been all that wonderful....

So here it goes. Copaxone almost killed me. I was on it for 3 shots. The first one led to me feeling dizzy and sick all night long, the second one led me to calling 911 and having an epi pen jammed in my thigh and the third one, in my doctors office, under supervision, led me to ending up in the hospital almost dying. Im allergic to Copaxone! But thats just me, and its really REALLY rare. The most common side effect that I see posted here is the dimpling of the skin. You definately get dimples which do not go away after a time being. The redness and bullseye mark do tend to fade, but youll always have one or two on your body.

Avonex and Rebif are the same drug. Avonex came out first. Patients complained that they got that "need a fix feeling" after 4 or 5 days because their blood levels were dropping off. Its given once a week. Rebif was brought out, same drug, given 3 times a week, in order to keep blood levels more consistent. Same side effects, flu like symtoms. Rebif DOES have an autoinjector. Rebif also has the smallest needle on the market.

Rebif, Avonex and also Betaseron are Interferons, a chemical which is naturally in your brain.....so when you add this to your body, chances of being allergic to it (as opposed to Copaxone which is synthetic) are low...however the flu like symtoms which are described do exist. For some people, they dont get them. I hear of the lucky ones who dont get symtoms now and then on the board. Everyone I know personally went thru the first 3 or 4 months of getting side effects and then BOOM. They stop completely and never come back. Keeping in mind, that you only get the side effects on shot night and they only last 6 hours or so, its really not that bad. I hated it, but I never missed a day of work or school due to it. I figured for 12 shots a month, I needed to get thru it. I am still glad I did so.

Most doctors will sugest that you choose what med you want by yourself. Its not uncommon for them to send you home with a bag full of literature. Its a tough call. I was all about taking the most aggressive option. I have over 50 lesions on my brain. My insurance wanted me on Copaxone first, which I gave into, knowing that within a year, my doc would probably switch me to something stronger. It happened much sooner, since I couldnt tolerate the Copaxone. I was able to get Rebif approved. My doc did ask me Avonex or Rebif, but i went for the Rebif mostly because I had known so many people who switched because Rebif is actually easier to tolerate. Because you take it 3 times a week, instead of once a week, the body gets used to it quicker and the side effects are actually lower! Im repeating myself, but I really am glad I choose Rebif.

Whatever you choose, youll be on it for 6 months, and then youll repeat your MRi. If you havent had any relapses during that time (and you might, it takes 6 months for ALL of them to build up in your bloodstream) and if your MRI doesnt show any new evidence of attacks, youl stay on it for a year and be monitored by your doc....if in the first 6 months too many things go wrong, or if the MRi shows alot of activity, you will be switched sooner. Most MSers get yearly MRIs, I get them every 6 months because I have so much activity going on at any given time. Because I have so many lesions, I have black holes, which form when the brain tissue can no longer support the scar tissue. Its scary, but it doesnt seem to be affecting me in anyway.

I hope this helps....you really need to do what is BEST FOR YOU. No one can tell you what to do...its very personal. However, I applaud that you want to get on one of them asap and not wait and see what happens.
Nikki
__________________
RRMS- dx 05

 
Sponsors Lightbulb
   
Old 04-24-2010, 03:52 PM   #3
Senior Member
(female)
 
Join Date: Apr 2010
Location: Western New York
Posts: 248
JodiH HB UserJodiH HB UserJodiH HB UserJodiH HB User
Re: How to select the best treatment?

Is this the same Msniki that works full time, kids etc and has over 50 lesions w/black holes...you are incredible. what an inspiration. Are there any outward signs of MS an
average person would pick up out of curiousity....you are amazing... I am totally in sync w/you on the meds the only question is you mentioned "the doctor would switch you to something stronger"--- rebif/avonix stronger than copoxane? How do the different shots feel? I had no idea about the small rebif needle w/auto injector. She never told me rebif at all....

 
Old 04-24-2010, 05:31 PM   #4
Facilitator
(female)
 
Join Date: Sep 2006
Location: USA
Posts: 8,779
MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: How to select the best treatment?

Hi Jodi. Yup, its me. There is only one MSnik.
And, yes, sometimes I am superwoman. However, many times, Im exhausted, short on energy and have to say no to the things I would love to say YES to. But I want you to know something. 4.5 years, I was in your shoes....the only difference was that I had so many more lesions on my brain. I knew what I was up against but attitude, determination and persistance kept me from giving in and giving up.

To answer your questions, why you werent told about rebif, I dont know. Its the most used drug out there....you can certainly research it on your own. As far as the strength of the drugs. They do work the same way, at least the Interferons do, Copaxone is very similar, but works sligthly differntly. Each drug has its own studies, which provide the answers which disclose how effective they are. You really have to research it. Look for the studies thru government sites. Unfortuanately, Im not able to provide those for you. But there is NO RIGHT ANSWER as to which one is right for you.....what works for one of us, might not for another. Alot of it is unfortunately trial and error. The good news, is that you can always switch drugs. But to answer another question, Rebif is the smallest needle on the market and only Rebif and Avonex have autoinjectors...

As for me and outward signs....first of all, I dont disclose my MS. No one at work knows. That goes into another topic, which you can research here on Healthboards, look up MS and disclosure and read about people's experiences...so not many people know what to look for. My famly, my husband and my closest friends know- and they see the foot drop when Im exhausted. My husband can look me in the eyes and know if Im hurting. I try not to complain often- save the pity parties for when you really need some attention, because no one wants to hear the "i dont feel goods" all the time. And, he can tell when Im exhauted too. He will send me to bed and say "get some sleep" and I know he knows that I really need to do so. When Im especially MSey, I feel cognitive things...forgetful, sometimes I cant find the right word to say what Im trying to say....times like that, I stay away from people if I can. Being in sales and on the road all day allows me to set my own schedule...when things are bad, I try to do alot of stuff from home and behind the scenes. So far, its working!

What else can I answer?
Nikki
__________________
RRMS- dx 05

 
Old 04-24-2010, 06:10 PM   #5
Senior Member
(female)
 
Join Date: Apr 2010
Location: Western New York
Posts: 248
JodiH HB UserJodiH HB UserJodiH HB UserJodiH HB User
Re: How to select the best treatment?

Funny I am seeing how already I need to decide what I want to tell my husband because I think I'm at risk of him tuning me out as I'm complaining too much right now so I need to start picking my moments. My work situation is different...most of my colleagues know because this has all happened over a two month period when I woke up one day w/vertigo so they have been concerned and asking how I've been doing. Of course, as I've gone through all of these tests, I never suspected this would be the conclusion. I also flew prior to my test results and had a worse time than usual w/my ears and now I am reluctant to fly for business so I did disclose from that perspective. I am in the investment/insurance business and wish I had gotten more life insurance but I am having my husband get more as I suspect I will be the one needing more care. I always am fortunate to have been employed at same company for 20 years as I am so worried about benefits. I do have disability but not long term care. I am so happy to see how well you are doing. I will follow in your footsteps. What made you find this site and how do you have time to stay up on it when you are so busy? I do a lot of public speaking in my field and sometimes think maybe someday I'll be a "superwoman spokeswoman" for ms like you!

 
Old 04-25-2010, 07:15 AM   #6
Facilitator
(female)
 
Join Date: Sep 2006
Location: USA
Posts: 8,779
MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: How to select the best treatment?

Hi Jodi. Thank you for the very nice compliments. Let me tell you my abbreviated story. My MS symtoms came on very fast. Within 72 hours of my intial onset problem, my GP had me getting a CT scan, which showed abnomalities...it wasnt the pinched nerve which they expected to find. A Neuro was called in to look at my films (I was still there) and asked me if I would be willing to have an MRI right then and there. I was alone. I was afraid and no one was telling me much. BUT I liked this Neurologist. I had called on him professionally, he has one of the best reputations in the area and hes a likeable guy...so I said yes. After the test was complete, he asked me if I would like to meet him at his office (which was in the Medical office building attached to the hosptial) and talk. Of course I said yes. It was at that point that he was honest, and told me what he suspected...

Bascially everything happened really fast. He had me come the very next day to have a EMG, which is a nerve conduction test, to rule out Carpal Tunnel, remember all my symtoms were in my hands and fingers. He also had me do a EEG for my eyes, to rule out any kind of seizures- and finally a spinal tap, just to be sure there wasnt any infection going on in my brain. Fast forwarding only 24 hours later, he was sending me to an MS Specialist to verify what he already was 99% sure about. I took all my test results, my list of what had gone on over the past week and amazingly enough, it was during the history and physical that the MSspecialist's nurse was asking me questions that alot more came out. Yes, I was having balance problems. Id gone from wearing 4 inch heels to 1 inch heels and was basically living in flats whenever I could. Yes, heat did affect me. When I would get out of the shower and blow dry my hair, Id wind up on the bathroom floor in tears becaue I was confused, aggitated and felt like someone had been torturing me! All of these things started adding up....
The MS specialist concurred with the regular Neuro, and said yup. MS.

Long story short, I kept seeing the MS specialist the first 2 years, twice a year, but I was using this likeable regular Neurologist for my meds and for regular appointments and of course questions! Lots of questions. The regular Neurologist fortunately has one of the biggest MS practices in the area and he is well versed in all things MS, plus he is in my backyard and takes my insurance. After year 2 I realized this paying out of pocket for my MS specialist really wasnt doing me any good- he never said a thing that I didnt already know from my other Neurologist, and I eventually just kept myself on his patient list, visiting him about every 18 months. My regular guy handles all my meds and all my issues. I also go see the MS Specialist when he speaks, because he is one of the leading reserachers in MS on the East Coast. He often speaks at University hopsitals in the Philly and NYC area. (I live smack in the middle of two major cities).

You asked how I found this site. Youre going to laugh. Just like you, researching topics I came across it. There was a girl on here, who (much like me) had been dealing with MS for about 5 years and had alot of good information. I followed her posts, asked her questions and basically used her for a sounding board and personal lifeline for the first year. I think she saved my sanity and my mind that first year. I promised myself that if ever someone needed information like I DID, I would give back as much as I could- because this is virtually the only site Ive ever found where people really connect and give each other the benefit of their experience. I wanted to give back what I had gotten.
Over the years, there have been a few like you- people who keep coming back and asking things which I can help with. And, Im so grateful to be able to help. Ive seen others who I helped go on to help newbies- and it makes me smile because I remember when they were asking the same questions.

Im not superwoman, and I am seriously busy these days with Grad school a job which is eating up all my time and brain cells-and my family...but honestly, this is a "break" for me. When Im on the computer 6 hours straight trying to do a major paper, coming here for 20 minutes and posting about MS really gives me the "feel good" feeling that we all need to experience.

About the healthcare, long term insurance, etc. You have to weigh it out. I dont have long term care either....and I cant get it. I waited too long, no one will touch me because of the pre-existing condition- at least not the type of coverage I really want. I was able to find a policy which is affordable, but ony lasts for 6 years. From the time I use the first dollar, I have 6 years of coverage which includes a home care nurse, an assisted living facility or a nursing home. Being that this is the business Im in (dealing with patients in all 3) I know more then I want to know about this. Its scary. So, I just put one foot in front of the other and trudge on. I have life insurance, but thats virtually for funeral expenses and nothing more. Ive gotten my husband additional insurance, so that if something happens to him, Ive got some cash to keep myself afloat. You cant worry about it. Honestly, I know its going thru your mind now...but you cant fixate on it. May I ask what age group you are in? Im 43...a very young 43, but 43 nevertheless. Ive worked my butt off for the past ten years , starting college at the age of 30 and now doing my PhD at the age of 43, which I just started- and its a 3 year program. I have absolutely no desire to give into MS and yet, I can honestly say there are days when the screaming pain in my hands, the fatigue from running all day and staying up all night, really catches up with me. At that point, I try really hard to take a whole day and do nothing.

Youll see, this gets easier. I always tell people when you have been dealing with this for a full year, youlll look back and kick yourself. Its not the big deal that you thought it was once you get used to it. Finding out you have MS is all about how you handle it. Yes, its a series of acceptance. And, yes, there will be a few "why me' moments in there. And, youll eventually come to realize that you arent any different now, then you were a year ago, before you knew.

I know you are having some difficulty getting used to the idea of shots....and I was scared to death! My husband gave them to me for the first 8 weeks. Dont make that mistake. He was out one night and wasnt around to do it for me, and I freaked out, screaming and crying, postiive that if I didnt get the shot on time, Id be sick forever....I made myself sick. Then, I went up to the bathroom, iced my leg and jammed the shot into it! Ive never ever allowed him to give me another shot. Because I also travel for work, its important that I can take care of myself....I learnd the hard way that having the ability to take care of yourself, also gives you self confidence, and thats really important.

So, the nurse will come, from whatever company you choose, and will practice with you and youll see how easy it really is. Copaxone and Rebif are both sub-cutaneous, meaning "into the skin" as opposed to into the muscle, its easier that way, and hurts alot less! They will stay with you for a few hours that first time, and come back again and again until you "get it". And, we will all be here to walk you thru any questions until you are comfortable. Youll see, in a month, giving yourself a shot, will be like brushing your teeth. You just do it, and dont think about it.

Thats my story- and there is plenty more to share with you as things come up...but for now, just remember, 99% of this is mind over matter. It takes a strong person not to let this pull them into depression- but it takes a smart woman to realize that you arent any differnt then you were a year ago and there is nothing written in stone that you will ever progress beyond where you are right now! And taking meds, will give you that insurance you are looking for. Dont worry, it gets easier.
Nikki
__________________
RRMS- dx 05

Last edited by MSNik; 04-25-2010 at 07:15 AM.

 
Old 04-25-2010, 03:24 PM   #7
Member
(female)
 
Join Date: Aug 2004
Location: California
Posts: 75
plus1more HB User
Re: How to select the best treatment?

Quote:
Originally Posted by JodiH View Post
Curious how you all decided which treatment to take and have you changed them along the way? I was going to do avonex but the weekly flu symptoms and long needle not good. I am going to try copaxone beginning with the auto injector because I think this is the only way I will get used to the feeling of shots every day. Also, they say no flu side effects... has anyone on copaxone experienced anything different other than the rash/skin reactions? As much as I am dreading the arrival of my meds, I am one of those people that cannot swallow pills so injections should be better than pills for me.
Hi JodiH, I chose Copaxone. I've been on it for about nine months, and I have no regrets. It took me six months to decide to do injections or be med-free. I attended an MS Forum and did research on the medications available because I had no clue what MS was. My neurologist wasn't pushing one med over another. Some deciding factors for "my body" where that I have Hashimoto's Disease (thyroid problem), and I also didn't want flu-like symptoms, so I decided on Copaxone. The needle is super thin, and I put it into the AutoJect everyday. I just make sure to rotate the injection site everyday the way your supposed to: heating pad before, ice pack after injection. I won't lie, for me, it does give a good sting for about a long minute on my thighs, but then it's over. I also experienced a rare reaction three months after being on Copaxone. I had what is called flushing, and I could possibly experience it again. The reaction came immediately after injecting my thigh. It was a bit scary. I thought I was experiencing a stroke. It felt as though someone had a blow torch to my face and my jaw tightened up with a horrible pain going straight into my abdomen and exiting my back for about 20 minutes. It's six months after the rare reaction, and I haven't had any other problems. Shared Solutions has been great with me, and they have the kindest people working for them. Still no regrets, and I wish you the best on whatever decision you make. Take care

 
Old 04-25-2010, 03:42 PM   #8
Senior Member
(female)
 
Join Date: Apr 2010
Location: Western New York
Posts: 248
JodiH HB UserJodiH HB UserJodiH HB UserJodiH HB User
Re: How to select the best treatment?

Hi Plus1more, thanks so much for the response. I watched the copoxane dvd today and I am petrified about the needle. I didnt' realize the whole thing has to go in... how does it feel-- I will try the hot and cold afterwards. Do you touch or rub it afterwards? Oh my, I can't believe this is happening.. When were you diagnosed?

 
Old 04-25-2010, 03:49 PM   #9
Senior Member
(female)
 
Join Date: Apr 2010
Location: Western New York
Posts: 248
JodiH HB UserJodiH HB UserJodiH HB UserJodiH HB User
Re: How to select the best treatment?

Nikki, I'm glad you restated your history because it's hard to search through all the threads to find everyone's history. I'm 44, high energy, fit and very ambitious so it sounds like we're in the same category. We were both diagnosed quickly albeit you had many more lesions. It's funny about the symptoms because I have always had bladder problems and restless legs etc but the MS dr. said I have no lesions in my spine/neck so she wasn't concerned about the bladder being MS related but of course I am freaking out because in addition to my constant bathroom breaks, I actually had my bladder "spazzing" during my episode. I watched the dvd today for copoxane and almost hypervenilated. I think my husband is going to have to do this.... this is crazy.... some of my friends tell me to think of this like diabetes or high blood pressure. Do you still have balance problems and wear only flat shoes? During episode I couldn't stand on a heel for the life of me.

JodiH














or rheumathoid arthritis You just need to manage it.

 
Old 04-25-2010, 04:51 PM   #10
Facilitator
(female)
 
Join Date: Sep 2006
Location: USA
Posts: 8,779
MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: How to select the best treatment?

Jodi. BREATHE. One thing at a time , ok ? I promise, the needle thing is no big deal once you are taught how to do it. It gets easier with each shot and it doesnt take long to get the hang of it. With the autoinjector, yes, it goes in, but it goes in only 1/2 inch (at least with Rebif). Did you also look into Rebif, they have videos online you can watch...

Yes I occasionally, when Im really tired, get balance problems. In the dark, forget it- I fall over. The heel to toe test at my neurologists office leaves me swaying like a drunk...however, on MOST days, I dont have the problem, and I stick to wearing cute flat or 1/2 inch heels, even with my suits and work clothes. Weekends are all about flip flops and sneakers!

I also forgot to mention the bathroom issues. First of all, I have urgency problems...always feeling like I have to go, and then going, but my bladder doesnt empty all the way and 3 minutes later, Im back in the bathroom. Also, when you do sub-cu shots, they tell you to increase your hydration. So, I drink more water then I ever used to, which is a vicious cycle, because I find myself back in the bathroom....I also have constipation problems. Long before I found out I had MS, I was having these issues and was seen by many a GI doctor. Ive been scoped every which way possible, and there is nothing wrong with me. I also do not have any spinal or neck lesions, however it definately affects me in this way. I didnt know this either, until I was dx with MS. I try to eat more fiber and eat things which help you stay regular. The new cottage cheese and yogurts do help, if you eat them regularly!

Does that help?
nikki
__________________
RRMS- dx 05

 
Old 04-25-2010, 11:48 PM   #11
Member
(female)
 
Join Date: Aug 2004
Location: California
Posts: 75
plus1more HB User
Re: How to select the best treatment?

Quote:
Originally Posted by JodiH View Post
Hi Plus1more, thanks so much for the response. I watched the copoxane dvd today and I am petrified about the needle. I didnt' realize the whole thing has to go in... how does it feel-- I will try the hot and cold afterwards. Do you touch or rub it afterwards? Oh my, I can't believe this is happening.. When were you diagnosed?
Hi JodiH, Don't drive yourself crazy. If you want to attempt to slow down the MS monster, you're heading in the right direction. I was diagnosed in January 2009, but I didn't start the injection regimen until I was totally mentally prepared, and that took me until July 2009. The whole decision just had to be only mine. Copaxone supplies you with their AutoJet, so you never have to stick the whole needle in, just the little tip shoots out. I have NEVER had to stick the whole needle all the way in. As a matter of fact, I asked for a backup AutoJect just in case I manage to break it, I have no desire to inject without it. Another good thing is they send the nurse to your home for your first injection, and (s)he will give a real hands-on training with and without the AutoJet. After I withdraw the AutoJect, I apply slight pressure on the site with a cotton ball for a minute, then I do the cold pack. I do, on occasion rub the knots on my arms, but not until a couple days after. So this is what's working for me, but don't you dwell on the needle. Your just driving yourself insane. Keep us posted on your progress. Take care

 
Old 04-26-2010, 06:08 AM   #12
Senior Member
(male)
 
Join Date: Mar 2008
Location: Naples,fl
Posts: 111
sodapopper HB Usersodapopper HB Usersodapopper HB User
Re: How to select the best treatment?

Hi- I started Copaxone January 1, 2008- 3 months after being diagnosed. My Neurologist and MS specialist gave me all the usual reading material so that I could educate myself on my options. When it came right down to it, my Neurologist, who has approximatly 200 ms patients in his practice, recommended Copaxone. He feels that the studies for Copaxone are looking better and better all the time and that because it doesn't cause the flu like symptoms, I would "feel" the least affected by it. I have had really good luck with the drug so far. No funny reactions or dimpling at the site. When I first started taking the med, I would get a hive or bump at the site, or an occasional bruise, and would ice it down. Now- it is very rare for me to get a reaction at the site. Some spots- like the leg and abdomen can be more uncomfortable than other areas, but I don't even have to ice them down anymore. I use the regular syringe, not the autoinject. My wife(who happens to be a nurse) injects me for the most part, but when she's not home at shot time, I inject myself. It's kind of a joke between us, but she says that when she's irritated with me, she sort of enjoys poking me with sharp objects. That may sound sick, but I guess we try to find the humor in it. It makes it easier. It is really no big deal and is just a fact of life for me now. I try not to dwell on it.. I usually do my shot around 6:30 pm and if we are out for the evening, I'll either just inject myself a little early, or take it along with me in my pocket. I/we have injected in the car, restaraunts, parking lots, and public bathrooms- and nobody has ever noticed what we were doing. Try not to be preoccupied by the idea of a shot. I actually think my wife had a harder time with my MS diagnosis than I did. I never did the "why me's", it was more of a "why not me" attitude and I've adjusted ok. I think it was harder for my wife. I remember my Neurologist telling my wife (when she was having one of her many emotional breakdown's in the Doctors office) that a year to 18 months into this diagnosis, we would get used to the idea of me having a chronic illness and we wouldn't be so preoocupied with the what if's. He was right. I am doing well- working about 45-50 hours a week at a physically demanding job, raising 2 young children, working out several times a week, and living on the go most of the time. Good luck to you. You'll do fine with the shots.

 
Old 04-26-2010, 01:12 PM   #13
Senior Member
(female)
 
Join Date: Apr 2010
Location: Western New York
Posts: 248
JodiH HB UserJodiH HB UserJodiH HB UserJodiH HB User
Re: How to select the best treatment?

Hi Sodapopper, oh I wish my husband was a nurse... what works better before and after injection--ice or heat? It sounds like such a routine each day. I am thinking I'll do it in the am after showering--maybe I'll set it all up in the kitchen so I can have a chair handy w/supplies. My emotional meltdowns are in check now. I am thinking of this more of a chronic condition rather than a debilitating disease. I do believe my dr that it is a much more benign condition these days. Thank you fo rthe note and humor, Jodi

 
Old 04-27-2010, 04:13 AM   #14
Senior Member
(male)
 
Join Date: Mar 2008
Location: Naples,fl
Posts: 111
sodapopper HB Usersodapopper HB Usersodapopper HB User
Re: How to select the best treatment?

I never tried heat, but when needed (in the beginning) I would use ice post injection. It helped with the sting and the swelling. Again, good luck to you and keep us updated and just take one day at a time.

 
Old 04-27-2010, 07:11 PM   #15
Junior Member
(male)
 
Join Date: Aug 2009
Location: Northern Virginia
Posts: 45
AntibioticMSer HB User
Re: How to select the best treatment?

Quote:
Originally Posted by MSNik View Post
Since there are no pills for MS on the market yet, you dont have a choice!
No Pills that are FDA approved as a disease modifying drug.

There are folks, like my wife, who have been on shots and found they did not help, or stopped helping, or had limited beneficial help. I'm not out to be disrespectful of shots. I'm just saying there are limits to what they do and folks ought to know that.

Folks also ought to know that there are other avenues other than those those the neurologist is allowed to share with you, but they require your own research and due diligence. There are oral therapies,that are helping thousands, but none of them are FDA approved. Ken
__________________
Don't Allow What You Know To Get In The Way Of What Might Be

Last edited by AntibioticMSer; 04-28-2010 at 06:48 AM.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Please Help.... Herpes Select Test confusedlove Herpes 6 08-14-2010 03:50 PM
Treatment Tmunn Multiple Sclerosis 8 04-26-2010 05:19 AM
SELECT Trial suspended: selenium and vitamin E IADT3since2000 Cancer: Prostate 1 10-28-2008 09:36 AM
How to select a Surgeon KennyH Cancer: Colon 5 02-04-2006 10:16 PM
HSV Select Tests... cmill32 Herpes 2 12-05-2005 01:43 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added











All times are GMT -7. The time now is 06:21 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!