It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Multiple Sclerosis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 06-23-2010, 10:08 PM   #1
Junior Member
(female)
 
Join Date: Jun 2010
Posts: 35
Danz93 HB User
Lesion confusion/New to MS

I am trying to stay strong. Just started on copaxone and the Swank diet. Eliminating stress. However, I can not get it out of my mind of what the lesion talk entails. I have many brain lesions, none on my spinal cord, and my neuro tells me NONE of my lesions are active.

What is the difference between active and inactive brain lesions?

And, any advice on living with RRMS is greatly appreciated!

 
Sponsors Lightbulb
   
Old 06-24-2010, 05:51 AM   #2
Facilitator
(female)
 
Join Date: Sep 2006
Location: USA
Posts: 8,894
MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: Lesion confusion/New to MS

Hi welcome to health boards. being newly diagnosed is scary, but you have come to the right place.
I dont know how many "lots' is to you, but I have over 50 lesions all on my brain, none on my spine- and let me tell you that my life hasnt changed one bit, except for adding shots to my world.

I am in grad school. Im in sales and work about 50 hours a week and travel with my job.I have a family includingb 3 kids and a husband..... Ive gone on vacations all over the world with my shots, too. Other then taking it easy, and trying to stay out of the heat, and (in the pool) keep my body comfortable, nothing has significantly changed for me.

An active lesion is one which is "glowing" on the MRI and currently doing damage. Being on Copaxone, you are supposedly eliminating any future activity. Its not a 100% sure thing, but it will decrease the chances of anything being active in your future. Of course I hope someone told you it takes about 6 months for Copaxone (and all the drugs for MS) to really build up in your blood stream and get to full capacity to work.

Active lesions are currently attacking, doing damage-
Inactive lesions are scars which have already done their thing and have settled down. A lesion is just that- a scar. The body attacks the myelin sheath of the nerve (covering). What is left is a white scar on the brain or nerve, which shows up with your MRI. Glowing- bad. .....old scar, small white marking.

ITs very important that you do NOT try to look at your own MRI films or CD and say "oh my god, I have a TON of white dots!" because most of them are supposed to be there. Thats why radiologists go to school for ten years! ok? Placement, size and specifics are what a radiologist or neurologist is looking at, when they read your MRI. SO dont freak out if you see a ton of white stuff on it.
I have over 50 lesions on my brain, thats considered quite alot. ITs all about where they are which determines if there is a problem due to this number. Fortunately for me, where mine are, I guess I had brain matter to spare, because it hasnt actually dont me any significant damage. I have loss of feeling in my left hand and fingers and some occasional pain in my shoulder and back. But overall, this is MS and its not the worst thing in the world to be dx with.

Let us know how else we can help.
Nikki
__________________
RRMS- dx 05

 
Sponsors Lightbulb
   
Old 06-24-2010, 09:13 AM   #3
Junior Member
(female)
 
Join Date: Jun 2010
Posts: 35
Danz93 HB User
Re: Lesion confusion/New to MS

Thank you so much for explaining that.

As I wrote, I was only told I had "many" lesions on my brain. (none on my spinal cord..) So..after I started my research, I was obsessed with finding out what the difference was in active and inactive. I am grateful for your explanation and the hope you have given me with living with this disease.

I wish us all well and happiness.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
OCD Lesion - Help please! Carlos74 Foot & Ankle Problems 18 08-10-2010 08:19 PM
Liver Lesion Found but Questions about what it is susieq14 Liver & Pancreas Disorders 9 07-23-2008 08:56 AM
1.4 cm lesion found on us, but different on MRI-SCARED-HELP!! dawnmn Liver & Pancreas Disorders 7 03-31-2008 11:24 AM
What Is A Lesion yvonne58 Back Problems 2 03-05-2008 09:02 AM
Osteochondral Lesion of the Talus Bone/ OCD MatthewKirk Bone Disorders 1 08-07-2007 11:21 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 01:49 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!