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Old 08-10-2010, 08:03 PM   #1
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Question narcotics for MS

Hi, I'm currently on morphine 15mg ER twice a day and 2 Ultram 200 mg ER a day. The morphine takes away about 70% of my lower back, hip side and front thigh pain, I can usually only feel it when I'm sitting or laying on my side except for earlier today when the front thigh pain was worsened by walking. Morphine makes me really tired so I take the ultram which decreases the weakness in my arms and legs so I can carry my 9 mo. old son, evens out the fatigue and was in hopes of helping the other 30% of pain, so far it hasn't.
I'm just curious what other people are taking for their pain management and how much of it and for what type of pain (location) I see a pain management specialist so I can try something new if I'm told it would work better. I thought the morphine would kill the pain but it doesn't. I used to take vicodin but my tolerance became way too high - in the end it wasn't working either.

Oh and does your pain come and go throughout the day or is it constant? Like I said I usually only feel mine when I sit or lay BUT that is when I AM on pain killers. Otherwise it's constant.

Thanks!!!

 
Old 08-10-2010, 08:58 PM   #2
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Re: narcotics for MS

Do you have MS? There is a pain management forum on this site that might better assist you. If you have MS, then you are at the right spot. I do not mean to put you off.
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Old 08-10-2010, 09:32 PM   #3
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Re: narcotics for MS

I am on the Fentanyl Transdermal System (patches). They work well for me. You change the patch every three days. It doesn't take all the pain away but takes the edge. I hope they find something that works for you.

 
Old 08-10-2010, 10:02 PM   #4
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Re: narcotics for MS

Hi, I'm pretty sure I do but I don't know for sure from the doctors yet. My mother had a positive MRI but before she got to the neurologist she passed away. I have about 20 symptoms, some developed years ago, some came and went... A few months after I gave birth I must have begun what would be called a "flare up" because a truck load of symptoms hit me with a bang and just keep getting worse. It's hard to say though because I have endometriosis (also an immune system related) and SOME of my symptoms COULD be caused by that, even though I took some hormones to mimic pregnancy which took the abdominal pain away - the symptoms remained which make me think they're not related. You're more likely to develop MS if you have Endometriosis.
Even if my pain management doctor can't see a lesion on my lower back MRI (without contrast) I think I will head to the neurologist any way.

Thanks for replying, I didn't know there was that link on this site.
Sorry this is such a long reply.


Quote:
Originally Posted by MSJayhawk View Post
Do you have MS? There is a pain management forum on this site that might better assist you. If you have MS, then you are at the right spot. I do not mean to put you off.

 
Old 08-10-2010, 10:51 PM   #5
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Re: narcotics for MS

[QUOTE=dmunich;4305016 You're more likely to develop MS if you have Endometriosis. [/QUOTE]

Actually there is no definite predictor for those who might develop MS.

That said, you will more than likely need to go through a tedious evaluation. Make an appointment with a neurologist who specializes in MS. If you need help, you can contact your local MS Society or Association for a list of doctors who specialize in MS.

The neurologist can help you sort through things. There are over 400 diseases which can mimic MS. With a bit of luck, perhaps yours is something easily remedied!
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Old 08-11-2010, 05:46 AM   #6
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Re: narcotics for MS

I have MS and endometriosis (just thought I would let you know)
Its great to hear you managed to get pregnant and have a baby! congratulations on that.
I have 2 blocked tubes thanks to endo so will need IVF.
Sativex is the new cannabis spray that might help with pain???? I don't know

 
Old 08-11-2010, 02:22 PM   #7
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Re: narcotics for MS

Just wantd to add, there is no link between endometriosis and MS. Women in the right age group are likely to develope Endometriosis and it does not link it to MS, its a coincidence....and that a pain specialist is not the right place for a MS patient to really be treated...pain specialists specialize in narcotics..morphine and fentynol are not the right drugs for MS pain only because both are seriously addictive and both need to be increased regularly.

However, if there are extenuating circumstances and a secondary diagnosis to MS, then it might actually be appropriate...neurologists will not recommend going this route until all other routes have been exhausted though. Between PT, aqua therapy, short acting NSAIDs, long acting NSAIDS, nerve pain drugs like Gabapentin and Lyrica, there are many avenues to try before heading for the narcotics...

Dont mean to offend anyone. If there are reasons why your doctor is going this route, then there are reasons...but in general, narcotics are a last resort for a Neurologist and a fast fix for a Pain specialist.

Nikki
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Last edited by MSNik; 08-11-2010 at 02:23 PM.

 
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