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Old 06-06-2011, 02:01 AM   #1
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Late onset signs?

Hi All,
My teenage daughter is undergoing testing for ms. She will receive her dx on Wed. Whilst reading up on ms, I have discovered that I may have late onset ms. About three years ago I had tingling sensations in legs and it felt like i had no feeling in part of left leg. One hot day I felt almost paralysed for s short while in arms, saw a dr who suspected lyme disease. Saw a neuro who conducted a muscle test (I was also having vocal problems, couldn't articulate properly). Neuro suspected myasthenia. Negative results, so no further examinations, I went on to being ok. Over the past five months I have had extremely annoying itching problems, mostly feet, hands and arms. Saw family doc who said it's probably allergy. Meds don't help. We've had a bout of hot weather and it got so bad I almost crashed the car w two daughters in it while on way home from family do. I sweat profoundly from fairly low temps and feel quite foggy. Had a slight dizzy spell a while back, too. Anyone out there who had late onset symptoms like mine? Had tingling in tongue and around nose, too.

 
Old 06-06-2011, 05:06 AM   #2
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Re: Late onset signs?

Hello Lommie and Welcome to HealthBaords.

I am sorry to hear MS is suspected for you daughter I hope testing shows what is wrong with her but I really hope it's not MS.

MS was once known for affecting those between the ages of 20 & 40. This is no longer correct, MS can affect anyone at any age. There really are not late onset signs. Symptoms of MS are the same regardless of age. MS causes damage to the Cental Nervous System (CNS) which is the brain, spinal cord and optic nerves. Damage to the CNS from MS can cause numerous symptoms at any age.

It is not uncommon to have MS many more years than the actual diagnosis date. Symptoms of MS can be quite subtle and easily brushed aside. If you are concerned about MS you will need to go through some of the same testing your daughter has or is going through.

Best wishes to both of you
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Old 06-25-2011, 07:59 AM   #3
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Re: Late onset signs?

I'm new here, too and have been doagnosed with MS at age 63, now almost 67. All I can say is that it is really strange and frustrating, because even with the diagnosis, it is difficult to tell if a problem is simply age related, MS, both, or something else... At 59, I went to a neuro who ordered only MRI of brain.. She said "leisions" were typical for age. So relieved, I figured I did not have MS.. (A younger brother had it years ago and committed suicide over it.. ) Then at 62, a numb patch brought me to neuro in new town that I lived. Clinical test showed that something was going on, so he ordered MRI of spine as well, because leisions on brain might not be MS.. I showed leisions on back and was diagnosed... Even though I may have had symptoms for years, I think late-onsed is a lot different from younger diagnosis... I would like to compare notes with others...
Good luck to you!!

 
Old 06-25-2011, 08:04 AM   #4
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Re: Late onset signs?

Hello LOMS and welcome to HealthBoards

I am curious as to way you think late onset is different than being diagnosed younger?
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Old 06-25-2011, 08:57 AM   #5
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Re: Late onset signs?

Quote:
Originally Posted by Snoopy61 View Post
Hello LOMS and welcome to HealthBoards

I am curious as to way you think late onset is different than being diagnosed younger?
Hmmm... I had drawn that conclusion a while ago, and now I cannot remember all my reasons..;o) There are articles; I wish I could quote one.. LOMS tends to be faster, hits men and women equally, does NOT usually start with optic neuritis... That's stuff I read..
My problem is confusing it with other problems.. I cannot tell if I'm having a flare.. (I am supposed to be rrms).. Maybe I was out in the heat too long.. maybe it is arthritus.. or sciatica.. or overduing something... I tell my doc, but he just looks at me and nods.. I should ask him next time, but I believe he will just say something like: we cannot be 100% sure.. That is what my Physical theropist says, a very young guy.,. He says that whatever it is, they work on the symptoms.. I could say more, but my 95 yr ole mom needs me.. Thanks for responding to me... And good luck with your ms,,,
PS: what is difference between quick reply and quote reply?

 
Old 06-25-2011, 10:58 AM   #6
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Re: Late onset signs?

Welcome.

There are many concerns with MS, however, LOMS should not be one to worry you. I would ask your neuro what the latest info is and ask a storm of questions- just make sure you leave each appointment with the answers you need.

That you mom is 95 tells you that you have a lot more life to live too. Aging can cause many concerns and you have noted some already. Over doing anything is not good. You need to pace yourself and watch the heat. Staying hydrated is very important.

I am sorry your younger brother killed himself. MS is not a life ending proposition. Slow down your pace and smell the roses and other beauties life brings us. There is no reason you cannot live as long as your mom.

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Old 06-26-2011, 05:26 AM   #7
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Re: Late onset signs?

Quote:
Originally Posted by LOMS View Post
Hmmm... I had drawn that conclusion a while ago, and now I cannot remember all my reasons..;o) There are articles; I wish I could quote one.. LOMS tends to be faster, hits men and women equally, does NOT usually start with optic neuritis... That's stuff I read..
My problem is confusing it with other problems.. I cannot tell if I'm having a flare.. (I am supposed to be rrms).. Maybe I was out in the heat too long.. maybe it is arthritus.. or sciatica.. or overduing something... I tell my doc, but he just looks at me and nods.. I should ask him next time, but I believe he will just say something like: we cannot be 100% sure.. That is what my Physical theropist says, a very young guy.,. He says that whatever it is, they work on the symptoms.. I could say more, but my 95 yr ole mom needs me..
Hi LOMS,

I will try and clear up some of what you have read, although I can be wrong in some of my information

There are more women than men diagnosed with MS, men are, regardless of age, in the minority with MS. If you have read LOMS hits faster or progresses more quickly: You can have this disease long before it's ever diagnosed, symptoms are easily brushed aside. By the time some go in for testing they may have had it most of their life without knowing. Most are initally diagnosed with Relaping/Remitting MS (RRMS). As the years go by MS can, for some, progress to Secondary Progressive MS (SPMS). If diagnosed with MS at an older age it is possible to have already progressed to SPMS.

You will find there are contradictions to everything you read or find on this disease. The MS community has lost several of it's own, some where quite young, some older and other were somewhere in between. Sadly, death, directly or indirectly from MS still happens...even in those that are young.

I am sorry about your brother. Suicide is thought of and talked about in the MS community

Optic Neuritis: Not everyone with MS will start out or even have Optic Neuritis and not every case of Optic Neuritis is MS. I have been diagnosed for 26 years with symptoms that go back to childhood and I have never had Optic Neuritis.

Your problem of confusing or not knowing if what you are experiencing is MS or related to something else is not unique to getting MS later in life. I, myself, have blown off many problems which I chalked up to the disease and have later found out my "progression" was not really progression but a result of something else unrelated to the disease, yet it did affect the MS...indirectly. I have also run across Doctors who blame the MS and we later find out it was not the MS.

Heat, viruses, overdoing it, the flu, and infections are all known to cause what is called Pseudo-Exacerbations (relapse, attack, flare-up). However, these are self-limiting. When you cool down, rest up, the infection/flu/virus goes away symptoms will return to what is normal for you. When having a true exacerbation (relapse, attack, flare-up) it can take weeks to months before seeing any improvement.

The answers of "not knowing" you are getting from the Physical Therapist and your Neurologist is not due to your age but is due to MS not being fully understood. Even after many, many, many years there are still just theories about this disease and not a complete understanding.
__________________
Dx RRMS 1985
5/9/13/ Secondary Progressive WITHOUT Progression

Last edited by Snoopy61; 06-26-2011 at 05:41 AM.

 
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