It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Multiple Sclerosis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 06-30-2011, 02:06 AM   #1
Junior Member
(female)
 
Join Date: Jun 2011
Location: South Africa
Posts: 14
rissie HB User
MS hug, headaches ans spaticity in neck and upper back? MS?

Hi, I would like to introduce myself. I am 37 and have experienced strange symptoms for the last three years.
It started as aching, stitching pain in my sternum and spred to my back, felt like a knife wiggeling between vertebrae. Then on a very hot day I participated in a cycling race when about halfway I started to feel very tired and my chest felt as if it was constricted, as if a draw string was tightening around it. It felt as is if my heartrate monitor was too tight.

I went to the emergency room three days later and they took out my gall bladder, said there was constant inflammation in my chest cavity.

Thre chest pains came and went. 10 months later it happend again, a very tight band, with burning on my back, electric tingling around my ribcage, again on a very hot day. This time they said it was reflux, it wasnt. They sent me for an MRI 3 weeks later and found a thorasic syrinx and diagnosed syringomyelia.

Three months later they said the syrinx was an incedental finding and does not match the symptoms.

This MS hug (spot on description) keeps on coming back with other symtoms.
Numbness in my arms and hands while sleeping
Spastic muscles in back and neck that flares when I get fisio
Tingling sensation wavelike from my chest to the bottom of my female parts, or running down my leg.
Blurred vision before bedtime
Bladder problems. infection, funny sensation of feeling like I am going to urinate and not urinating..
Stabbind pain in my jaw, definately not my teeth, nerve pain

The MS hug is really the biggest symtom and very painful, feels like a bear hug with electric spasm...

I was wondering if this sounds like Ms? I had a nerve conducter test withc was negative.


Thanks for listening

 
Sponsors Lightbulb
   
Old 06-30-2011, 05:46 AM   #2
Facilitator
(female)
 
Join Date: Sep 2006
Location: USA
Posts: 8,898
MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: MS hug, headaches ans spaticity in neck and upper back? MS?

Hi, and welcome to health boards!
Im not sure what you are describing is the MS hug. For me, the MS hug is a tight almost heart attack type feeling which goes across my heart area, lasts only seconds, (feels like hours), happens two or three times and then dissappears for weeks or even months before returning.

Not very many of the symtoms you listed even sound neurological or anything like MS....blurred vision and the off and on numbness, arent MS like. With MS, when you have those things, they dont come and go quickly....they would stick around for weeks or months. For me, the numbness was my onset symptom 6 years ago and it never went away. The blurriness of vision also isnt really a MS thing....Optical Neuritis, which is the big eye thing that MSers get, (ive had it 3 times) is not blurriness as much as its vertigo OR a loss of vision in a certain area, for me, peripherally. ITs incredibly painful and needs to be treated with IV steroids... its not a blurry thing usually.

The bladder problems dont fit with MS, we either have urgency or frequency problems but not what you described....the jaw thing, again, not neurological or MS like.

I dont mean to discourage you, but I dont think what you are describing is MS at all. If you are convinced that you need to rule it out, you do need to see a MS Neurologist who will order you MRIs and a host of other tests, to see if there is any reason to supsect it; however the good news is, your not presenting like MS at all. The chest pains you are describing sound so much like reflux or acid, that I would actually start with a internal doc and let him start giving you some tests again.

I hope you feel better soon
Nikki
__________________
RRMS- dx 05

 
The Following User Says Thank You to MSNik For This Useful Post:
rissie (06-30-2011)
Old 06-30-2011, 08:46 AM   #3
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,633
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: MS hug, headaches ans spaticity in neck and upper back? MS?

Hi and Welcome.

The only way to know for sure is to be seen by a neurologist who deals with MS. It sounds like you have already had a great burden to overcome.

My doctors suspected acid reflux for me, but there were no signs. My "acid reflux" problem disappeared after I started sleeping with my upper torso inclined. If I lie flat I start to choke.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
Old 06-30-2011, 09:50 AM   #4
Junior Member
(female)
 
Join Date: Jun 2011
Location: South Africa
Posts: 14
rissie HB User
Re: MS hug, headaches ans spaticity in neck and upper back? MS?

This MS hug describes my symtom exactly, it comes and goes. It is like a band constricts my breating and my intercostal ribmuscles contract. It sent me to the ER 3 times already.

I had tests for acid refllux and coctocondrites and embolism as well as EKG's and stress tests. All negative.

ANy ideas?

 
Old 06-30-2011, 09:53 AM   #5
Junior Member
(female)
 
Join Date: Jun 2011
Location: South Africa
Posts: 14
rissie HB User
Re: MS hug, headaches ans spaticity in neck and upper back? MS?

O yes I have vertigo at the moment with an internal trembling accommpanying it.

 
Old 06-30-2011, 10:51 AM   #6
Senior Veteran
(female)
 
Join Date: Nov 2007
Posts: 1,004
Snoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB User
Re: MS hug, headaches ans spaticity in neck and upper back? MS?

Hi rissie,

Your symptoms do sound neurological, is it MS? I don't know. There are numerous causes for neurological symptoms. You might do some research into your diagnosis of syringomyelia or get a second opinon.

In general, enlargement of the syrinx can cause injury to the surrounding spinal cord, compromising nervous system function. This can lead to myelopathic symptoms which can include weakness, sensory symptoms (numbness, tingling, etc.), and bowel and bladder dysfunction. The muscle weakness is generally a spastic paralysis involving areas of the body below the level of the syrinx. A low cervical or thoracic syrinx may therefore lead to symptoms of the legs while a higher cervical syrinx can cause arm symptoms as well.

As for the MS hug: this refers to a banding, tightness or hugging sensation or the feeling of having a rubber band going around you. Some say it feels like someone is sitting on their chest. This symptoms is not exclusive to MS and can happen to anyone who has damage to the spine.
__________________
Dx RRMS 1985
5/9/13/ Secondary Progressive WITHOUT Progression

 
The Following User Says Thank You to Snoopy61 For This Useful Post:
rissie (06-30-2011)
Old 07-08-2011, 01:53 PM   #7
Junior Member
(female)
 
Join Date: Jun 2011
Location: South Africa
Posts: 14
rissie HB User
Re: MS hug, headaches ans spaticity in neck and upper back? MS?

Hi,

I had an LP yesterday and got some of the results today! He says that the proptein in my csf is elevated! I will have to wait for % days for more in detail results. But I do believe that it indates MS? Am I right?

 
Old 07-09-2011, 12:25 PM   #8
Senior Veteran
(female)
 
Join Date: Nov 2007
Posts: 1,004
Snoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB User
Re: MS hug, headaches ans spaticity in neck and upper back? MS?

What your doctor will be looking for in regards to the Lumbar Puncture and MS is Oligoclonal Banding (o-bands) in the cerebrospinal fluid (CSF). Oligoclonal bands are proteins called immunoglobulins, which suggest inflammation of the central nervous system. The presence of oligoclonal bands may be a sign of multiple sclerosis.

This test helps support, but does not confirm, the diagnosis of MS. The presence of oligoclonal bands in the CSF can also be seen in other illnesses. There are several conditions a lumbar puncture can be used to help in diagnosing...not just MS.

There is no single test, by it's self, that can give you a diagnosis of MS. There are those who have MS and have either not had a lumbar puncture or the test was negative for o-bands.

In my case, it was the lumbar puncture that cinched my diagnosis of MS...unfortunately.
__________________
Dx RRMS 1985
5/9/13/ Secondary Progressive WITHOUT Progression

 
Old 07-09-2011, 12:53 PM   #9
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,633
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: MS hug, headaches ans spaticity in neck and upper back? MS?

Quote:
Originally Posted by rissie View Post
Hi,

I had an LP yesterday and got some of the results today! He says that the proptein in my csf is elevated! I will have to wait for % days for more in detail results. But I do believe that it indates MS? Am I right?
The elevated levels pushes the scale towards MS, but it has to be combined with other results before a definitive diagnosis can be given. Wait patiently to see your doctor and then discuss in detail with him. I would not want to give you false hopes nor false gloom! Hang in there- you are almost out of limbo and can get on with your life!
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
The Following User Says Thank You to MSJayhawk For This Useful Post:
rissie (07-09-2011)
Old 07-12-2011, 02:17 PM   #10
Junior Member
(female)
 
Join Date: Jun 2011
Location: South Africa
Posts: 14
rissie HB User
Re: MS hug, headaches ans spaticity in neck and upper back? MS?

Quote:
Originally Posted by Snoopy61 View Post
What your doctor will be looking for in regards to the Lumbar Puncture and MS is Oligoclonal Banding (o-bands) in the cerebrospinal fluid (CSF). Oligoclonal bands are proteins called immunoglobulins, which suggest inflammation of the central nervous system. The presence of oligoclonal bands may be a sign of multiple sclerosis.

This test helps support, but does not confirm, the diagnosis of MS. The presence of oligoclonal bands in the CSF can also be seen in other illnesses. There are several conditions a lumbar puncture can be used to help in diagnosing...not just MS.

There is no single test, by it's self, that can give you a diagnosis of MS. There are those who have MS and have either not had a lumbar puncture or the test was negative for o-bands.

In my case, it was the lumbar puncture that cinched my diagnosis of MS...unfortunately.
Thanx guys for all the support, tommorow is D-Day! I know I have been waiting for 3 and a half years but now that the time comes closer I still wish it is just something that can be treated with antibiotics or something...

I have trouble sleeping, waking up because my hands are burning, going to the bathroom 7 times per night, have the "HUG" constantly, buring on my back, vertigo and am very tired all the time.

So I really need to feel better soon.. and a DX will probably bring treatment and relief..

South africa ha a private health-care system (expensive but good), so I am hoping for the best.

I am reading alot and educating myself and apreciate all your posts.

 
Old 07-12-2011, 02:30 PM   #11
Senior Veteran
(female)
 
Join Date: Nov 2007
Posts: 1,004
Snoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB UserSnoopy61 HB User
Re: MS hug, headaches ans spaticity in neck and upper back? MS?

Good luck tomorrow with your appointment. Please let us know how it goes and what if anything you find out...we care.
__________________
Dx RRMS 1985
5/9/13/ Secondary Progressive WITHOUT Progression

 
The following user gives a hug of support to Snoopy61:
rissie (07-12-2011)
The Following User Says Thank You to Snoopy61 For This Useful Post:
rissie (07-12-2011)
Old 07-12-2011, 03:00 PM   #12
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,633
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: MS hug, headaches ans spaticity in neck and upper back? MS?

Good luck! I too hope that you have something that can be easily treated with antibiotics or other available medications. If you do have MS- no worries- come back and know that you are not alone.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
The Following User Says Thank You to MSJayhawk For This Useful Post:
rissie (07-13-2011)
Old 07-14-2011, 01:39 AM   #13
Junior Member
(female)
 
Join Date: Jun 2011
Location: South Africa
Posts: 14
rissie HB User
Re: MS hug, headaches ans spaticity in neck and upper back? MS?

Ok so my doctor (specialised physician) phoned and said that evevthough the lumber punch had elevated protein - the rest of the results confirms that I don't have MS.
But he does want to put me on steroids for 3 days.
I did not sEe the report and should be exstatic at this news! But I feel miserable, because the symptoms persist, so what to do now! I do have ano appointment with a neurologist 3 Aug, my first visit with a neurologist.

Would you think this is conclusive or should i still see the neurologist?

 
Old 07-14-2011, 04:08 AM   #14
Facilitator
(female)
 
Join Date: Sep 2006
Location: USA
Posts: 8,898
MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: MS hug, headaches ans spaticity in neck and upper back? MS?

Rissie,
I dont think there is anything at all conclusive about a LP when it comes to MS. LPs can rule out meningitis and other brain infections; they can point us towards autoimmune diseases, but rarely can they specify which one they are pointing us towards.
I have a perfectly normal LP. I also have over 50 lesions in my brain. I have a perfect Cspine MRI and until they did the brain, I was told "must be a pinched nerve" My brain MRI, along with my symtoms, is what got me my diagnosis.

It if were me, I would definately see the neuro and ask him to explain to you exactly how the LP was used as a diagnostic tool. Chances are, it was to rule out other things..... but then ask him if so many people with MS have negative LPs why does he say you dont?

If you still dont like the answer, run away and find a MS specialist! During the diagnostic phase of this, they are usually the only ones brave enough to go out on a limb and really explore every option ! Please let us know what your doctor says..
Nikki
__________________
RRMS- dx 05

 
The Following User Says Thank You to MSNik For This Useful Post:
rissie (07-14-2011)
Old 07-14-2011, 09:01 AM   #15
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,633
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: MS hug, headaches ans spaticity in neck and upper back? MS?

With your elevated LP results- something is up. Though the other tests may not reflect it, a neurologist may see things differently. I truly hope it is not MS, but a neurologist should assist you in that determination, I believe.

Why the steroids? What is the doctor intending to treat? Is he just throwing things "against the wall" to see what sticks? I would delay the steroids and wait until August 3.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Shoulder/Neck pain on Copaxone...... RobinLeigh Multiple Sclerosis 8 02-18-2010 08:43 PM
Neck problems!!! shellymay Multiple Sclerosis 11 02-01-2010 08:40 AM
Wicked Headache - with numbness and tingling brownowl Multiple Sclerosis 20 10-30-2009 06:41 AM
MRI of neck...educate me please shellyj Multiple Sclerosis 6 11-29-2007 03:09 PM
Headaches on one side of head that come and go???? shaywood Multiple Sclerosis 20 08-29-2007 12:38 AM

Tags
headaches, ms hug, numbness, tingling



Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 07:46 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!