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Old 07-12-2011, 01:01 PM   #1
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Question High Cholesterol and MS?

We have known for decades that cholesterol (specifically dense cholesterol) is the primary make-up of the Myelin sheath. Cholesterol is ALSO used to repair damage to your veins, as well as a number of other functions. The increase in cholesterol is a response by your body as it attempts to repair the damage done to the nervous system. As more REAL science is being done (instead of these B.S. "observational studies") doctors who still believe the "cholesterol is bad" myth will begin to disappear. (75% of people who have heart disease have LOW cholesterol. 21% of those were taking statins: http://www.ncbi.nlm.nih.gov/pubmed/1908140 6?dopt=Abstract)

High cholesterol, simply put, is NECESSARY for Myelin repair: http://www.ncbi.nlm.nih.gov/pubmed/1579357 9

Do NOT take statins. If you have a doctor that's pushing them, find another doctor. The cholesterol is attempting to repair the damage, the answer is not to remove the repair mechanism, the answer is to figure out why the damage exists in the first place.

A rise in cholesterol is an indicator of damage to either the nervous system, or more commonly, to the bloodstream. Reducing cholesterol is like taking something to kill your white blood cells when you get an infection.

< edited >

My cholesterol went up about 3 years ago just about the same time my symptoms started. Have anyone experienced it?

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Old 07-12-2011, 01:29 PM   #2
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Re: High Cholesterol and MS?

Hi rissie,

I have done quite a bit of research on this topic and have run across the urls you provided. I used a statin for about a year and a half...I will NEVER use them again. Statins can cause many symptoms of MS or cause the person with MS to "feel" as if they are progressing. Statins had a very profound (negatively) affect on my life and on what I believed was the MS progressing. Once the statin was stopped I have slowly been able to become "me" again.
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Old 07-12-2011, 01:41 PM   #3
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Re: High Cholesterol and MS?

Quote:
Originally Posted by Snoopy61 View Post
Hi rissie,

I have done quite a bit of research on this topic and have run across the urls you provided. I used a statin for about a year and a half...I will NEVER use them again. Statins can cause many symptoms of MS or cause the person with MS to "feel" as if they are progressing. Statins had a very profound (negatively) affect on my life and on what I believed was the MS progressing. Once the statin was stopped I have slowly been able to become "me" again.
Thanx, very insightful.I think its amazing that our bodies are trying to fix itself, we are very intricate!

 
Old 07-12-2011, 01:57 PM   #4
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Re: High Cholesterol and MS?

Cholesterol has never been a problem in me nor my family tree. It is important that all factors be considered. I think Snoopy had some good info.

I do not yet see that a rise in cholesterol means MS. I do know that for many, statins are necessary because of their genetic propensity for bad cholesterol levels. Had a friend in Texas whose male members rarely lived past 37 years of age. For him, statins have allowed him to live past 37.
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Old 07-20-2011, 02:36 PM   #5
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Re: High Cholesterol and MS?

This is a very interesting post, Rissie. If you find anything more connected to cholesterol and MS, please post it!

There are a lot of misunderstandings about cholesterol, in part because of old information going back to the 1950s that is no longer accurate, specifically, that cholesterol in food increases blood cholesterol. My understanding is this is now believed to be wrong; the cholesterol in food is broken down in digestion.

As to tests, a single cholesterol number is not of much use, according to the doctors I talked to. You probably know there are two types, HDL and LDL, but I was told that the best test breaks it down into seven types of cholesterol.

I have had absurdly high cholesterol numbers for years, recently measuring in the 200s. I just shrug it off. When I was younger, my blood pressure was actually below normal; now it is just right.

One reason I don't worry about heart disease is because my understanding is that xanthine oxidase in homogenized milk is a primary cause of the damage leading to atherosclerosis. And, as I read about this in the 1970s, I generally do not drink homogenized milk. That may be one reason my blood pressure is normal.

Another factor that can increase blood pressure is the consumption of trans-fats, or hydrogenated oils. Someone years ago theorized that trans-fats, being chemically altered fats, could lead to abnormal permeability in cell membranes (which are made of cholesterol), leading to all sorts of problems. I have never seen any scientific research on that, though.

But it seems reasonable that trans-fats could lead to problems with cholesterol, and in turn myelin sheath formation. I assume you need good fats for this. Does anyone have any insight into this?

I have been adding coconut oil to my diet lately, figuring a good complex fat might be helpful for this. A good complex saturated vegetable fat like coconut oil or avocado oil can actually be better than a rancid unsaturated fat, nutritionally, I believe. These unsaturated fats can harbor free radicals that can interfere with scar-free healing.

Speaking of cholesterol, I've also been consuming one or two raw eggs a day lately. It has helped my energy levels, unlike cooked eggs. The yolk contains lecithin. Does lecithin have anything to do with myelin sheath formation?

Normally, if you have high cholesterol levels and are worried about heart disease, I would suggest you need to get some regular exercise. This is not so easy with MS, of course. But it is still something you should aim for, especially if you do have high cholesterol and blood pressure levels.

I am not a doctor and haven't done any research on statins. But it seems to me that in light of this myelin sheath information, someone who is worried about cholesterol should start with cutting out trans-fats and getting some daily exercise, if possible.

 
Old 07-20-2011, 10:23 PM   #6
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Re: High Cholesterol and MS?

I agree with excercise and good fats! I luckily have low BP! I used to feel excillerated after excercise and was a cyclist and runneR up to 3 years ago! Unfortunately know I get this "hug" whenever I excert myself, so yoga is probably good it is just so slow! Anyway! Thanks for your insights!

Avo oil is very tasty on salads and a very natural alternative!

 
Old 07-21-2011, 08:31 AM   #7
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Re: High Cholesterol and MS?

If Yoga is too slow, you might look into Tai Chi which has different speeds and is also MS friendly.
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Old 07-23-2011, 03:38 AM   #8
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Re: High Cholesterol and MS?

I did a search for multiple sclerosis and cholesterol and found quite a bit of interesting information. A study found that statins were effective in treating MS.

 
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Old 07-23-2011, 04:25 AM   #9
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Re: High Cholesterol and MS?

Dappled,

If you search for statins and memory loss or statins and weakness you will also find alot of information that is negative about statins. I have MS and I also used a statin for about a year and a half. I became non-functioning and I believed it was the MS until I started to do reseach.

Taking a statin decreased my quality of life. I was no longer driving --- getting lost in familar places, no concentration or focus, I was afraid I would hurt myself or someone else. I had no energy, My ability to walk was decreasing --- I was sliding my feet/shuffling, I was extremely stiff to the point I tripped off 2 curbs in a row and didn't fall because my legs would not bend, I looked like the tin man. I could no longer hold a conversation, I could not remember what I was saying.

All of what I have written improved when I went off the statin. In my opinion statins are dangerous and should be used with extreme caution in someone with MS.

There are doctors who will not prescribe statins to MS patients because it is difficult to know what is a side effect of the statin and what is MS.
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Old 07-23-2011, 04:25 PM   #10
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Re: High Cholesterol and MS?

I completely agree with Snoopy on this. I have had alot experience with Statins in my family and have seen what she spoke of first hand. Its interesting though, because there were quite a few clinical trials using statins for MSers and alot of the evidence supports the use of them. Just as much eveidence supports the risks..
My Neuro is adamantly against using Statins and actually lectures on the risks associated with MS patients on them; however if you ask a Cardiologist, he will probably tell you how safe they are. Once again we prove that every story has two sides and every patient needs to do what they feel is right for themselves. Youll find someone to tell you anything you want to hear; and a trial or evidence to support anything you want to believe- however ultimately its up to us to make good decisions for ourselves.
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Old 07-24-2011, 06:01 AM   #11
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Re: High Cholesterol and MS?

I agree that if in this day and age you get a second opinion that will be exactly what you get - 2 different opinions. I find it quite scary that i can find info online that my drs know nothing about! I have been struggling with this hug for three years been to countless drs, no one even knows about it. In diagnosing this I have had. 3 .
MRI's only 1 with contrast (done by my specialist physision not by a neuro), epidural steroid injectjionn, echo, CT scan, Xraysconsults with endocrinologist, 3 emergency room visits for possible heart attack, seen by 2 neurosurgeons for Possible SMyelia and still not one of them could explain my symptoms, it took mE ten minutes after I spoke to a MS sufferer! Still dont have a DX but feel much better knowing I am not the only one with these Symptoms. I wanted to cry when I read about the MShug because I used the exact words describing it and no one knew what it was. When I asked my specialist physician he said he has never heard of it!

Anyway. So I would wait to use stAtins till I know what is is!this message board has helped me alot. I hAve severe vertigo and a funny trembling "worms" in my abdomen aS well as eye pain and headaces this last week. I feel achy and irratable so just 1week before my first neuro appointment.

I just hopE i dont expect too much! He is in Cape town and it Is 4 hours drive from here in the garden route.

Thanks for listening

 
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