It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Multiple Sclerosis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 07-28-2011, 04:35 PM   #1
Newbie
(female)
 
Join Date: Jul 2011
Location: Orlando, FL
Posts: 1
rosewood32808 HB User
Phantom smells?

I have recently been diagnosed with MS. The symptoms that I had that led me to getting an MRI were memory problems and some headaches. They found lesions on my brain and spine.

For the past 4 years, I have been having these horrible phantom smells. They come and go. I can't figure out a trigger, but sometimes they come when I am stressed. It smells like burnt oil or burnt plastic.

My question is two-fold:

1. Does anyone else with MS experience these phantom smells?
2. If you have, have you ever worked at or near a manufacturing facility? I have read the some research indicates that certain chemicals can trigger MS.

Thanks in advance.

 
Old 07-28-2011, 04:52 PM   #2
Facilitator
(female)
 
Join Date: Sep 2006
Location: USA
Posts: 8,779
MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: Phantom smells?

Hi there. Sorry to hear of your diagnosis. Especially since its new to you, but Im here to tell you, its a very livable disease!

MSers often have very sensitive sense of smells. I can smell things before anyone else can, and certain smells trigger migranes, this never happend before but its one of my triggers.

I dont know where you heard that MS can be caused by chemicals. Not likely. But I can show you where they also say its caused by not getting enough vitamin D. I grew up in a sunshine state, spending my entire summers first as a child playing in the ocean- then for 10 years working as a lifeguard. More than anything I should be worried about skin cancer, but I certainly wasnt deficient in sunlight! I got MS when I was 36. I can also show you where it says that things like eating fast food and processed food can cause MS. Ive eaten fast food maybe 10 times in my entire life. And most people eat it once a week? So you stating that breathing or being around certain chemicals might cause MS doesnt surprise me, but my point is that you will find blame for it if you look hard enough. The most brilliant minds in medicine still dont know what causes MS, and there is no cure, but I can show you 50 websites which will swear if you eat this, avoid that, take this pill or supplement or do this particular procedure, youll be cured. So, please dont believe everything you hear.

MS may or may not be hereditary, they are doing studies right now to see if there is a gene that we pass on, which makes us more susceptible to getting an autoimmune disease. They really dont know what causes it. Look at it this way, youre in good company, over half a million people are dx with MS in the USA alone- and probably another 100,000 havent been dx.
welcome to our world of support. We look forward to having you join us!
Nikki
__________________
RRMS- dx 05

 
The following user gives a hug of support to MSNik:
rosewood32808 (07-28-2011)
The Following User Says Thank You to MSNik For This Useful Post:
rosewood32808 (07-28-2011)
Sponsors Lightbulb
   
Old 07-28-2011, 09:53 PM   #3
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,473
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: Phantom smells?

Welcome.

I do not think I have phantom smells, but I know that certain odors can stop my appetite or make me feel ill. I put it up to MS. Mind you that I used to help raise hogs and part of my duties on the were to clean the holding area after milking. These never bothered me- nor did diaper duty . I think that, for me the smell problem hit me after my MS really worsened in 2002.

I wish I could tell you how to fix it! Again, welcome.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
The following user gives a hug of support to MSJayhawk:
rosewood32808 (07-29-2011)
The Following User Says Thank You to MSJayhawk For This Useful Post:
rosewood32808 (07-29-2011)
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Weird Smell Hoobie Multiple Sclerosis 11 08-22-2008 04:07 AM
Phantom Itching? april1848 Multiple Sclerosis 22 07-31-2008 09:23 PM
Is back pain common in ms? marline Multiple Sclerosis 9 04-09-2007 05:25 AM
Dr Me.. JustDave4now Multiple Sclerosis 1 01-04-2007 05:33 AM
The flare is leaving... :) Lisa_P Multiple Sclerosis 1 08-14-2006 08:05 AM

Tags
multiple sclerosis, parosmia, phantom smells



Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



MSJayhawk (1007), MSNik (526), Snoopy61 (58), J-one (13), Whimpurr (13), shahila (12), JodiH (11), MS22 (11), KingBaxter (10), LasVegasgirl (8)

Site Wide Totals

teteri66 (1180), MSJayhawk (1013), Apollo123 (909), Titchou (856), janewhite1 (823), Gabriel (763), ladybud (755), midwest1 (670), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 09:07 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!