I remember some of you from when I was here last and for anyone that might remember me. I am back.
Background: At that time (2007/2008) I was having a great deal of trouble finding a neuro that would take me seriously and I eventually gave up and just dealt with everything via my PCP. Then we moved back to San Diego (from the Minneapolis area) 13 months ago and I got a new doctor. He sent me to a pain specialist for the chronic pain in my stomach that I've had for the last 11 years since my gall bladder was removed. They give me vicodin for that plus they gave me a cortisone injection in my neck for an injury I incurred when I fell a couple of years ago. The cortisone worked for about a week and then it gradually gave out. I have decided to not do that again.
Since I was here last I have had my symptoms (sometimes only certain ones and sometimes all of them at once) come and go and stay pretty much the same in intensity until about 6 months ago. I started having symptoms again but they were getting worse than before so I found myself a new PCP here and told him about my history. He gave me a referral to a neuro and with my memory being so bad I misplaced it and when I found it again it had expired. About 6 weeks ago I went back to him to ask for a new referral and he was very excited to tell me he was certain it is Fibromyalgia and not MS. At the time I was just so happy to finally have a dx for something I felt like throwing a party! But now I'm not feeling certain it is the right one.
Most of the time the muscle spasm pain in my legs, arms, etc., is so severe that all I can do is massage the areas and cry. I am still having the other symptoms, too, difficulty with balance/coordination, severe fatigue, headaches, numbness & tingling in hands/fingers/toes, memory loss, vision & speech problems, and new symptoms of a stabbing pain in my toes, and difficulty with writing and typing. I am taking Neurontin 300mg 3x/day and Cymbalta 60mg 1x/day for the Fibro, plus I take the vicodin for the chronic pain in my stomach, which does nothing to ease the muscle spasm pain.
My apologies for getting so wordy, I got a little carried away.
Anyway, that's all I have for now! ~Kimmy