It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Multiple Sclerosis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 01-06-2012, 08:00 AM   #1
Newbie
(female)
 
Join Date: Jan 2012
Location: Pocahontas
Posts: 2
beebosgirl HB User
Fasciculations in MS

I was just wondering if fasciculations are a common symptom in MS. I am currently on a muscle relaxer due to my muscle twitching, spasms and stiffness. The twitching is pretty much daily, I may have 1 to 2 good days. If I work or walk a distance the twitching becomes worse. I have them through out the day but they get worse at night when I try to relax. They put me on the muscle relaxer after a trip to the ER in the middle of the night. My whole body was jerking uncontrollably and my head would turn to one side.

I am scheduled to see an MS doctor at a really good hospital 3 hrs from my home but That's another month away. My pcp is stone set on it being MS. The twitching is actually one of the last symptoms to come along. About a year ago my right eye became very blood shot, painful, and the whole right side of my face and head had a tingling numb feeling, I could hardly hear out of my right ear, had swooshing sound in my right ear and my face started drooping. These symptoms came in attack like form, about the same time each month. I would finally recover then it started all over.

After 6 months of that it's like I could feel it move down my body. The next set of symptoms were in my neck, shoulder and arm all on my right side. After one attack I couldn't even stir my dinner, open bottles or right with out pain in my hand. My hand would fall asleep, I'd have electric like shook feeling in my finger tips and once my arm went numb and my hand became hot. About 1 month after that is when the twitching all over started, more so in my legs. The symptoms then became weakness, numbness and pain in both my legs. So weak I felt as if they weren't there, that day was when I went to the ER over my body jerking.

Yesterday I decided to get up and rearrange my house. I went to bed twitching more than usual even after taking my meds. Woke up today and my right eye, face, ear, and shoulder are hurting. My body is twitching but it's more in my face and eyes today. I think people think I am crazy, making things up or just lazy. I don't know what is wrong but I just want to be normal again. I am concerned with the twitching in my temple that just started not long ago, twitching near my heart and my heart skipping a beat. Is that normal for MS. Trying not to freak out anymore because there as been so many strange things happen with my body in the last year but sometimes it is hard. Like seeing that fasciculations occur more commonly in Lou Garrett's and my grandma just died from that.

 
Sponsors Lightbulb
   
Old 01-06-2012, 02:05 PM   #2
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,447
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: Fasciculations in MS

Welcome

There are specific tests for ALS and Devic's (NMO) which can quickly be removed from disease possibilities. Your PCP should be able to order both of these tests for you.

That aside, I am glad you are on your way to an MS Specialist, albeit a month to wait. The 3 hours to see a good specialist may be worth the long drive. I drive nearly 2 hours each direction to see my neuro and she is well worth it.

When my body is at the end of energy reserves, I will often get the twitches. My right hand presents regularly and often daily, but the more pronounced twitches of my head and face are not as frequent. I do get them when I am really in need of rest and then at other random intervals. If I am getting adequate rest, I only endure the random intervals- (a trigger for which I am still seeking).

Droopy face is something I have often. My neuro told me to smile when I look in the mirror. She told me that I can see even slight problems because my smile droops on my right. Some days the drooping resembles a stroke.

My eye twitches continually since 2002. I can control it and the pain by wearing a pair of polarized sunglasses. I discovered that light sensitivity is my eye twitch and pain trigger. Nowadays I will get twitches, but the eye pain has not returned for a long time. I wear my sunglasses indoors and outdoors. Indoors will vary according to the room and the light frequency. My neuro looks at my right eye with the lights turned off.

Do you have MS? I hope not. There are over 400 diseases which can present with MS-like symptoms. Many of these diseases can quickly be eliminated. The Revised McDonald Criteria provides guidance for the neuro to eliminate other diseases. The MS diagnosis is reached by a process of elimination. When everything has been eliminated, MS is the diagnosis.

Again, WELCOME!
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
Old 01-11-2012, 10:22 AM   #3
Newbie
(female)
 
Join Date: Jan 2012
Location: Pocahontas
Posts: 2
beebosgirl HB User
Re: Fasciculations in MS

Thank you very much for all your help! My PCP says that they checked for ALS and my old Neuro did lots of blood work. I have had normal results for MRI on my head with and without contrast. I have had an MRI on my C spine and T spine without contrast, which came back normal as well. The radiologist did put in his notes that I need one without contrast as well. I've also had an EEG with positive and negative results, that Dr contacted my PCP saying I needed to be taken in for Neuro sight testing (what ever that means). He said I am having slight seizures but further testing needs to be done to pin point if it's in my brain or spinal-cord. My old Neuro did do a reflex text. He did become very concerned saying it went from a 1 to a 4 in just a few months and that one reflex was going the wrong way. Hopefully I do not have MS, at this point I'm just ready for some answers. 10,000 dollars in medical bills with no help because I have no diagnosis yet is becoming overwhelming for me and my family. I just hope that my first visit to the specialist gives me some answers.. Again thank you for all your help and warm welcome.. God Bless!!

 
Old 01-11-2012, 03:01 PM   #4
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,447
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: Fasciculations in MS

No worries. As to the vision testing, perhaps it means the VEP (Visual Evoked Potential). They "glue" electrodes to your scalp and then you watch a monitor with one eye at a time. It can detect minute problems which are not visible.

As to seizures, MS can cause seizures both slight and quite strong. I went through a cycle of seizures. Seizure are not "common" in MSers, but they do affect at least 5% of MSers (more or less).

Your reflex going the wrong way was probably your Babinski reflex. The doctor scrapes your foot and watches your reflex. If your big toe points up, it is usually the sign of problems.

Babinski's reflex is one of the reflexes that occurs in infants. It is normal in children up to 2 years old, but it disappears as the child gets older and the nervous system becomes more developed. It may disappear as early as 12 months. After the age of 2, however, the reflex is a sign of damage to the nerve paths connecting the spinal cord and the brain. An abnormal Babinski's reflex can be temporary or permanent AND can run on either the left, right or both sides of your body.

Potential Causes for the Babinski reflex
• Amyotrophic lateral sclerosis (Lou Gehrig's disease)
• Brain tumor
• Friedreich's ataxia
• Head injury
• Hepatic encephalopathy
• Meningitis
• Multiple sclerosis
• Pernicious anemia
• Poliomyelitis (some forms)
• Rabies
• Spinal cord injury
• Spinal cord tumor
• Stroke
• Syringomyelia
• Tuberculosis (when it affects the spine)

This simple test can help the neuro quickly hone in on possibilities. As ALS has already been tested, it would not be one of the aforementioned causes. As you can see from the list, MS is a very real possibility. I would probably eliminate meningitis as you are still with us and TB would have been determined earlier too. A brain tumor would have (should have) been seen in the initial MRI. Again another you can eliminate.

I hope you have something easily treated. If you do have MS, you are among friends here. If you have something else, there are other boards on this site too. You are moving toward a diagnosis, though you may still have a journey. Not to worry, however, as you can hang out with the MSers here and we will help you get through it!

__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

Last edited by MSJayhawk; 01-11-2012 at 03:05 PM. Reason: add

 
Old 01-11-2012, 11:53 PM   #5
Junior Member
(female)
 
cjk55's Avatar
 
Join Date: Jan 2012
Location: utica,ks.usa
Posts: 21
cjk55 HB User
Re: Fasciculations in MS

Quote:
Originally Posted by beebosgirl View Post
I was just wondering if fasciculations are a common symptom in MS. I am currently on a muscle relaxer due to my muscle twitching, spasms and stiffness. The twitching is pretty much daily, I may have 1 to 2 good days. If I work or walk a distance the twitching becomes worse. I have them through out the day but they get worse at night when I try to relax. They put me on the muscle relaxer after a trip to the ER in the middle of the night. My whole body was jerking uncontrollably and my head would turn to one side.

I am scheduled to see an MS doctor at a really good hospital 3 hrs from my home but That's another month away. My pcp is stone set on it being MS. The twitching is actually one of the last symptoms to come along. About a year ago my right eye became very blood shot, painful, and the whole right side of my face and head had a tingling numb feeling, I could hardly hear out of my right ear, had swooshing sound in my right ear and my face started drooping. These symptoms came in attack like form, about the same time each month. I would finally recover then it started all over.

After 6 months of that it's like I could feel it move down my body. The next set of symptoms were in my neck, shoulder and arm all on my right side. After one attack I couldn't even stir my dinner, open bottles or right with out pain in my hand. My hand would fall asleep, I'd have electric like shook feeling in my finger tips and once my arm went numb and my hand became hot. About 1 month after that is when the twitching all over started, more so in my legs. The symptoms then became weakness, numbness and pain in both my legs. So weak I felt as if they weren't there, that day was when I went to the ER over my body jerking.

Yesterday I decided to get up and rearrange my house. I went to bed twitching more than usual even after taking my meds. Woke up today and my right eye, face, ear, and shoulder are hurting. My body is twitching but it's more in my face and eyes today. I think people think I am crazy, making things up or just lazy. I don't know what is wrong but I just want to be normal again. I am concerned with the twitching in my temple that just started not long ago, twitching near my heart and my heart skipping a beat. Is that normal for MS. Trying not to freak out anymore because there as been so many strange things happen with my body in the last year but sometimes it is hard. Like seeing that fasciculations occur more commonly in Lou Garrett's and my grandma just died from that.

 
Old 01-12-2012, 12:02 AM   #6
Junior Member
(female)
 
cjk55's Avatar
 
Join Date: Jan 2012
Location: utica,ks.usa
Posts: 21
cjk55 HB User
Re: Fasciculations in MS

I thought i was the only one going crazy now i know i'm not alone your message sounds like i wrote it myself!the night time is the worse for me the leg twitching is about to make me go insane i can't sleep in the same bed with my husband because of it -i can't hold still! I have muscle relaxers and pain meds too but it might help a little for a little while but dear god not enough and for all your other symptoms i know how you feel i'm sorry i don't have an answer but if anyone out there does i hope they can help us both i don't know about you but i can't go on like this much longer!!!so if you think your crazy why i must be too!!

 
Closed Thread




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



MSJayhawk (998), MSNik (525), Snoopy61 (58), J-one (13), Whimpurr (13), shahila (12), JodiH (11), MS22 (11), KingBaxter (10), LasVegasgirl (8)

Site Wide Totals

teteri66 (1180), MSJayhawk (1004), Apollo123 (903), Titchou (847), janewhite1 (823), Gabriel (759), ladybud (754), sammy64 (668), midwest1 (668), BlueSkies14 (610)



All times are GMT -7. The time now is 06:05 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!