I am newly diagnosed with clinically isolated syndrome, which carries a lot of the weight of MS, without the definitive diagnosis. After all my bloodwork was completed, my neurologist suggested increasing my vitamin D. There are a lot of good properties to adequate vitamin D intake, such as increase in immune function. Thank you everyone for just good information!
CIS along with your ON will probably become MS as you mentioned other problems in your other thread. ON can be a separate disease if no other symptoms present.
Vitamin D needs to be taken carefully because you can get too much which would not be good. My vitamin D level is not deficient, but because it is low, my neuro told me she would like me to take 1000 iu of vitamin D3 each day. There are different dosages available as well as types. Also, if there is a deficiency it is important to know what your absorption levels are. For example, if you take 5000 iu daily it may or may not be adequate. For me it would be too much, hence I am limited to 1000 iu per day. Your doctor can advise as to your absorption levels.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><
CIS along with your ON will probably become MS as you mentioned other problems in your other thread. ON can be a separate disease if no other symptoms present.
Vitamin D needs to be taken carefully because you can get too much which would not be good. My vitamin D level is not deficient, but because it is low, my neuro told me she would like me to take 1000 iu of vitamin D3 each day. There are different dosages available as well as types. Also, if there is a deficiency it is important to know what your absorption levels are. For example, if you take 5000 iu daily it may or may not be adequate. For me it would be too much, hence I am limited to 1000 iu per day. Your doctor can advise as to your absorption levels.
Thank you for the info. Sometimes I wonder if a lot of MS research is a help or a hindrance. The vision disturbances are the worst part for me, because they disrupt all normal activities. I have been on copaxone for a week and a half. No changes noted yet, just a head/chest cold. Do u find yourself getting colds more frequently?
Thank you for the info. Sometimes I wonder if a lot of MS research is a help or a hindrance. The vision disturbances are the worst part for me, because they disrupt all normal activities. I have been on copaxone for a week and a half. No changes noted yet, just a head/chest cold. Do u find yourself getting colds more frequently?
I do not do meds, but if you have only started on Copaxone for a week and a half, you will likely only be feeling the side effects. For me, I rarely get a cold. When I feel a stuffy nose approaching, I will take 3000-9000 mg of Vitamin C (divided into three dosages). After 2-3 days, I stop because I feel better. My immune system is already in overdrive; therefore, I do not need it traveling at ludicrous speed (hat tip to Space Balls ).
Vision problems are probably a hindrance to most MSers. I cycle through vision problems as well as living with my daily light sensitivity. Still, you have to learn to take it all in stride. Always have alternate plans or strategies. If you know in advance what your alternate plan is going to be, you remove a lot of stress out of the situation and, I think, you recover faster.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><
I also want to add that Copaxone will NOT change your situation at all...its not meant to help with symtoms nor is it supposed to help ones which you already have....
The purpose of any DMD is to prevent progression and stop new symtoms from starting- therefore taking it is like insurance. It doesnt work for everyone and it doesnt work ALL the time, but if it works most of the time, thats better than rolling the dice and having new attacks!
As far as colds go; MSers do not get sick any more often than "healthy" people, however our immune systems ARE compromised...therefore, we may pick up something from exposure which someone else might not get.....I work in a hospital setting and am around terminally ill patients all day long. I can honestly tell you im healthier than they are!! I take a drug called Low Dose Naltrexone and I never get sick, this drug is used quite a bit in Europe to stabilize the immune system. I havent been sick in the last year since I started taking it. ITs worth talking to your doctor about however it is not approved in the US for MS.....you really have to do your homework and research if you want your doctor to give it to you!
Anyway, good luck on the Copaxone. It will take up towards 6 months before it really starts working....and during the next few months you may not feel 100% simply because your body is getting used to a new drug in your system...but once you get used to it, you hopefully will not relapse or have new symtoms develop. Best to you.
Nikki
Thank you Nikki. I too work in a hospital setting, surgery actually. For years I haven't gotten really sick, except in the last year. I wish thee was an "insurance" drug that had a better selling point then, " you may not progress." However, I am glad that getting colds lately may just be a fluke.
Thank you JayHawk, ludicrous speed these days in any form are no longer possible. I used to have more energy then everyone else at work, alas, finishing an eight hour day is a struggle. I have noticed that if I am assisting in surgery and staying in one place, my eyes do not bother me. I went from 20/20 to 20/30 in just a few months. Anti glare coated glasses seem to help. I will learn to ,and better plans and adjustments.
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