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Old 02-21-2012, 02:34 PM   #1
Join Date: Feb 2012
Location: Webster Nh
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jmelyn9 HB User
Please share your MS diagnosis story

Hi :^)
Let me start by sharing my back story. In 2004 I had reoccurant episodes of migraines, dizziness, seeing spots, weakness, fatigue. I went to my PCP who ordered an MRI and based off those results sent me to a neuro. I had two lesions according to the MRI. My Neuro at that time showed me the scan but said he wasn't concerned with them and wanted to treat me as a migraine patient. He put me on meds and sent me on my way. Fast forward to August 2011 I had another episode of migraines, dizziness, spots weakness & fatigue but it was accompanied by numbness that started in my right upper leg and hand then spread through my whole leg down to my toe and up from my hand to my shoulder & neck. The numbness/pain in my leg had me limping pretty severely. I went back to my PCP who, based on my history set me up with a new referal to a different Neuro ( my old one had left the area). This Dr actually specializes in MS. It's taken months to get an appt but finally I got one for this Friday. I feel like it's just in time because my symptoms are starting to come back in this past week and I'm finding it hard to drag myself out of bed.
So I guess what I am asking is for people to share their stories leading up to diagnosis and to tell me...does this sound like probable MS to you or something else? Thanks for any thoughts or advice!

Old 02-21-2012, 03:03 PM   #2
Join Date: Sep 2007
Location: Kansas, USA
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MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: Please share your MS diagnosis story


Rather than fill my reply with info you can find in previous posts, I would offer to you that your chance of MS is 1:400. Your previous neuro appears to have likely done you a disservice, but the good news is that you are going to see an MS Specialist. Your new neuro should be able to set you on the right path.
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

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Old 02-21-2012, 04:55 PM   #3
Join Date: Sep 2006
Location: USA
Posts: 8,779
MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: Please share your MS diagnosis story

Agreed. there are 1000 posts on here with the same question...and I know Ive answered it at least 25 times in the past year. Do a search here on healthboards for MS diagnosis...youll find them all.

And I also agree that having 2 lesions is not something to worry about. I have over 50. And i work fulltime, go to graduate school and raise a I dont think you need to panic! It is 1:400 chance that you actually have MS, a simple pinched nerve could cause most of what you are describing as well. The MS specialist is the right place to start as he or she will put you through a battery of tests...MS is based on ruling out everything else, and you have 400 diseases to rule out! Its a long battle, but hopefully this doctor will treat you with respect and get to the bottom of it- best of luck to you and remember, MS is a manageable disease!
RRMS- dx 05

Old 02-21-2012, 06:18 PM   #4
Join Date: May 2010
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Re: Please share your MS diagnosis story

I haven't been diagnosed. My problems started 15 years ago (pain and fatigue), but it took until 2011 for a doctor to order an mri of my head and neck. The results of that was over 20 lesions in my brain, something about the pons and a whole slew of cervical problems. The results said (in a nut shell) the lesions looked like they could be vascular or from demyelinating disease (ms). I also had labs done that came back normal. I was sent to a neurologist, who ordered a ct scan of my head and neck to look at all the blood vessels, that came back perfectly normal. She said she would repeat the mri brain scan in 8 months, I'm still waiting. I did see a different doctor on the 14th of this month, she said I have all the characteristics of ms and need to see a different neurologist asap, get it diagnosed and start treatment. I'm still waiting on that appointment too. I have many symptoms of ms, but they are also the same symptoms of many other things. In the meant time, I use my heating pad, am careful when I walk and I try and stay stress <---- that's a funny one!

I guess all I can tell you is too try and take extra good care of yourself and be patient, because if your dr's are as slow as the rest of ours, it make take some time to rule out ms. Good luck and I wish you good health! Do keep us posted on your journey

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