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Old 04-18-2012, 11:45 PM   #1
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Angry MS & Now L2 hemangioma

HI,
I'm 32 Diagnosis with MS by Family Doc, She sent me to a NERO who told me that I was going to have to "rule out everything else it could be." Family Doc said "I'm sending you over there for a treatment plan." I was mad, I leave the NERO with orders for 10 new tests, no treatment plan. So here it is, 2 months later 10 tests done and we still are NOT done with the first 10 tests. But I would like to ask Has anybody had a hemangioma in the L2 on the right side with MS with brain lesions also? Cause I had to go to the ER right after I had some MRIs and the Dr told me "your MRIs Look great totally clear nothing on them." So I'd like to know which ones he was looking at cause I know my brain MRIs have lesions on them????? Whats up with this?

 
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Old 04-19-2012, 10:59 AM   #2
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Re: MS & Now L2 hemangioma

Welcome. A family doctor will have had various rotations while studying medicine and there are family doctors who can certainly diagnose MS. Under what circumstances did your family doctor determine you had MS? Because your family doctor sent you to a neuro, there may have been some apprehension in the diagnosis. Also, was the neuro an MS Specialist?

Medical doctors can be like children. They do not always accept what other doctors have said. If your family doctor followed the Revised McDonald Criteria and validated the tests, then there should be no question about a diagnosis. Otherwise, the neuro really is placed in a difficult position and must start over to weed out the possibilities.

The ER doctor can easily overlook MS lesions if he is not looking for them. Considering the actual size of the lesion, this is something that non MS Specialists often miss. You should make sure that any MRI for MS is done with and without contrast in order to provide the best data for a diagnosis.
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Old 04-19-2012, 01:24 PM   #3
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Re: MS & Now L2 hemangioma

I just look'd up the Mcdonald thing, & now I see what your talk'n about thank you!
I have 3 Brain lesions last MRI that Family Doc took into account with symtoms, before sending me to Nero. Yes the Nero is MS spec. I had a MRI 2 years before this one with New family doc who will call Jo to make it easy. they found first Lesions, old Nero did, told us nothing to worry about with even with symtoms just go about your daily life come back in 2 years we will see if anything is different. 2 years went by, things got way worst, went to a new doc JO, who said you need to see a new Nero and sent me to one in her big clinic, went to him first he said, "it's all just anixity, and would not even do another MRI that the other Nero had said would need to be done." So went back to Jo told her, she then asked me if I was still have'n fatigue, numbness, dizzyness,shakes, blurry right eye or shooter & my brain power. I said yes the worse is the pain in my jaw on the right side from my eye down go's from numbness to shooting pain, she order'd another MRI, with without.
I liove my Jo, I like the new Nero when I met her but all these tests seem to be not worth it to me if my doctor all ready has given me the Dx. Then I was reading some of the other posts on here and people were saying that there is no point to the spinal tap? I put that off because I don't want it because they hurt and I think they can figure it out by all the other test they have made me do. Heres what I've done already........
1)MRI of Brain full with & without
2) 15 viles of blood
3) echo
4) Tilt table
5) Nero Memory 6 hours
6) MRI of Spine full with & without
7) Opict Nerve Test
8) anxitiy test
9) coming up 5/2-5/4 hospital stay where nero hooks lil leds to my head 24/7 while I do "normal" things test
10) 5/2 MRI brain they were to do but didn't with the spines??
11) Xrays of Kiddneys
I think thats it of corse there is the blood draws between tests and having to go into see Jo cause they make you, UGHHHHH!!!!! So overwheled, I have a wonderful husband, and some really good people who are trying to understad but they oly seem to be ******* me off. Like lil things they say.
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Old 04-19-2012, 02:38 PM   #4
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Re: MS & Now L2 hemangioma

Keep that Revised McDonald Criteria with you as a checklist and hold your neuro accountable to follow it. Ask questions. I know my neuro always welcomes my questions and we often talk about research studies which make the news.

You should always leave your neuro visit with questions answered. Your diagnosis will come, though it may seem distant now. You may be closer to a diagnosis then you realize!!

You are in my prayers.
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Old 04-19-2012, 07:57 PM   #5
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Re: MS & Now L2 hemangioma

Quote:
Originally Posted by MSJayhawk View Post
Keep that Revised McDonald Criteria with you as a checklist and hold your neuro accountable to follow it. Ask questions. I know my neuro always welcomes my questions and we often talk about research studies which make the news.

You should always leave your neuro visit with questions answered. Your diagnosis will come, though it may seem distant now. You may be closer to a diagnosis then you realize!!

You are in my prayers.
Thank You for talk'n to me and keep'n up beat, just lost sight in my eye completly tonight, can't wait for this all to be over
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Old 04-19-2012, 08:17 PM   #6
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Re: MS & Now L2 hemangioma

Vision loss is always a bummer. I have been through that cycle several times. Sometimes it has been both, but one eye happens too. When my eyes do not work, I allow myself a period of rest. When i am away from light, it seems to be most comfortable. I hope you find your answers soon.
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