Having a port placed for my Tysabri treatments this week. I am a nurse, so I have known many people with port and have accessed many, but I have never had one myself. I have had severe trouble with IV access in the past needing PICC lines for my 5 day courses of IV steroids and I did not like the way they felt...hoping the port does not feel like that. Anyone ever have one for any reason?
Our hospital is a TOUCH center, it is an MS center so I expected it would be. My MS specialist is a research doc. I had a choice between Ty and Gilenya, but ultimately decided on Tysabri due to the eye side effects. I already have severe optic nerve atrophy in both eyes from multiple episodes of optic neuritis. My neuro thought it was best for now but we would have it as an option later as well as the newer drugs coming up.
Good luck with your port. Given your choice of meds, I think you chose the least problematic of the two. Do let us know how it goes because your personal experiences and insights can help a multitude of MSers.
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><
Why would they want to do that for Tysabri treatment? Its supposed to be administered only every 28 days or not? Although I don't like needles I would prefer a peripheral venous catheter as after the infusion it gets removed. Or is that not an option for Tysabri?
It is an option, but I have had IV access problems in the past. I have had many many short-term IV steroid infusions that have required short-term central line placement (peripheral inserted central line) done by a radiologist.High dose steroids can be tough on your veins. Since nobody can get a line in, or blood for labs for that matter, a port was the next option. It is a long term solution that is sometimes used. It is not all that uncommon. I was just inquiring about the comfort level of the port as opposed to the PICC.