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Old 07-17-2012, 01:45 PM   #1
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Hi! Not dx, have lesions in brain, but negative on spinal tap. Was treated clincally for bad pain behind my left eye with prednisone which helped. Now pain coming back sporadically and I am getting distortion and the best way to describe it is "rubberband effect. It is especially noticeable with anything having straight lines such as blinds, curtains, or vents. The lines seem to "twang" like a rubberband being tapped". I found this on another thread. I am beginning to understand the process of ms and how fustratating it is. Neuro says not MS because spinal negative but we are going to do another MRI soon. What about mornig vertigo before I even get out of bed or turn over? It is just from opening my eyes? Does anyone else experience that? And, my left eyebrown and forehead are paralyzed, have not moved in months that I know of. I have non-painful electrical tingling in every finger on both hands. But!! The capper of this is I had cervical neck surgery 5 weeks ago, 3 levels, can MS, if this is the case exaggerate, if that is the right word, pain in neck from old neck injury?
Thanks!!!

 
Old 07-17-2012, 02:15 PM   #2
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Re: Newbie

Welcome.

A spinal Tap (LP) can be positive for 85% and negative for 15% of those who are later diagnosed with MS. That your neuro would base an MS diagnosis on the results of a spinal tap are unprofessional in my opinion. Please seek an MS Specialist. If your problems are vision and eyes, you may have Optic Neuritis which can be an indicator of MS OR a separate disease.

Based on your having symptoms other than just your eyes would indicate that you have something happening which, I believe, should be examined by an MS Specialist and not the neuro you had seen.

Again, welcome to the MS boards.
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Old 07-17-2012, 02:35 PM   #3
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Re: Newbie

Thanks and I will do that. I have been kind of confused about who to report my issues to. I will search for an MS specialist!

 
Old 07-17-2012, 02:44 PM   #4
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Re: Newbie

Deb: I am sorry you are going through so much. If your tingling fingers started after your neck surgery, you might suspect nerve damage. That does not explain the eye symptoms though. Do you know if any of your brain lesions are in your optic nerves? I have had optic neuritis several times but did not experience quite what you are talking about, however, each person is different and steroids usually do help.
Dizziness is very common in MS-and can be worse with the eyes closed.
I agree that you should seek a second opinion with an MS specialist. They can help sort it all out for you.

 
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Old 07-17-2012, 02:47 PM   #5
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Re: Newbie

No I had that electrical tingling before the surgery and sometimes it gets worse after taking a shower or a bath. If I can remember all the MRI said were the words, subcortical, foci, hyperintensity possibly due to chronic ischemia. I asked about that and he said not a stroke but he could not rule out MS because of their pattern

Last edited by deb1125; 07-17-2012 at 02:48 PM.

 
Old 07-17-2012, 02:51 PM   #6
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Re: Newbie

Quote:
Originally Posted by deb1125 View Post
Thanks and I will do that. I have been kind of confused about who to report my issues to. I will search for an MS specialist!
Are you in Slidell, LA?
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Old 07-17-2012, 02:52 PM   #7
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Re: Newbie

Yes I am!!

 
Old 07-17-2012, 02:54 PM   #8
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Re: Newbie

Dr. Steven Cavalier (225) 769-2200

3726 Ridgetop Dr
Baton Rouge LA 70809
United States

This doctor is listed in Baton Rouge and his only specialty is MS. If this is inconvenient, please tell me the nearest major city to you.
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Old 07-17-2012, 02:57 PM   #9
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Re: Newbie

New Orleans is closer but Baton Rouge is not that bad of a drive either.
Thank you!

 
Old 07-17-2012, 02:59 PM   #10
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Re: Newbie

I see. Then the MS Specialist on my list is : Dr. Jesus Lovera (504) 412-1366

LSUHSC-New Orleans
3700 St. Charles Ave
New Orleans LA 70115
United States

As this is part of LSU they may have more staff who are also MS Specialists.
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Old 07-17-2012, 03:23 PM   #11
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Re: Newbie

Very cool- I will call tomorrow! Thank you for such quick responses!

 
Old 07-17-2012, 04:33 PM   #12
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Re: Newbie

If this does not work for you, your local MS Association or Society office should be able to assist you further. I am happy I could help you.
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Old 07-18-2012, 11:33 AM   #13
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Re: Newbie

Hi, quick question for you, I went to my own eye doctor Monday who I have been with for years, he is leaning toward the ON because of the pain I had and the visual disturbance. My pain is sporadically returning also. He told me he is getting the evoked potential tests machine and when he gets it, he wants to test me. My question is and I am sorry I forgot to mention this yesterday, should I wait for him to get the equipment so he can test me or should I make appointment with MS specialist?

 
Old 07-18-2012, 11:37 AM   #14
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Re: Newbie

The VEP (Visual Evoked Potential) is a test that you should get. I would say that whoever can get the test for you first- go to them. The entire diagnostic process is not a quick in-out affair. Both the eye doctor and the MS Specialist will want to see the VEP results.
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