Hi! Not dx, have lesions in brain, but negative on spinal tap. Was treated clincally for bad pain behind my left eye with prednisone which helped. Now pain coming back sporadically and I am getting distortion and the best way to describe it is "rubberband effect. It is especially noticeable with anything having straight lines such as blinds, curtains, or vents. The lines seem to "twang" like a rubberband being tapped". I found this on another thread. I am beginning to understand the process of ms and how fustratating it is. Neuro says not MS because spinal negative but we are going to do another MRI soon. What about mornig vertigo before I even get out of bed or turn over? It is just from opening my eyes? Does anyone else experience that? And, my left eyebrown and forehead are paralyzed, have not moved in months that I know of. I have non-painful electrical tingling in every finger on both hands. But!! The capper of this is I had cervical neck surgery 5 weeks ago, 3 levels, can MS, if this is the case exaggerate, if that is the right word, pain in neck from old neck injury?
Thanks!!!
A spinal Tap (LP) can be positive for 85% and negative for 15% of those who are later diagnosed with MS. That your neuro would base an MS diagnosis on the results of a spinal tap are unprofessional in my opinion. Please seek an MS Specialist. If your problems are vision and eyes, you may have Optic Neuritis which can be an indicator of MS OR a separate disease.
Based on your having symptoms other than just your eyes would indicate that you have something happening which, I believe, should be examined by an MS Specialist and not the neuro you had seen.
Again, welcome to the MS boards.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><
Deb: I am sorry you are going through so much. If your tingling fingers started after your neck surgery, you might suspect nerve damage. That does not explain the eye symptoms though. Do you know if any of your brain lesions are in your optic nerves? I have had optic neuritis several times but did not experience quite what you are talking about, however, each person is different and steroids usually do help.
Dizziness is very common in MS-and can be worse with the eyes closed.
I agree that you should seek a second opinion with an MS specialist. They can help sort it all out for you.
The Following User Says Thank You to MS22 For This Useful Post: deb1125 (07-18-2012)
No I had that electrical tingling before the surgery and sometimes it gets worse after taking a shower or a bath. If I can remember all the MRI said were the words, subcortical, foci, hyperintensity possibly due to chronic ischemia. I asked about that and he said not a stroke but he could not rule out MS because of their pattern
Hi, quick question for you, I went to my own eye doctor Monday who I have been with for years, he is leaning toward the ON because of the pain I had and the visual disturbance. My pain is sporadically returning also. He told me he is getting the evoked potential tests machine and when he gets it, he wants to test me. My question is and I am sorry I forgot to mention this yesterday, should I wait for him to get the equipment so he can test me or should I make appointment with MS specialist?
The VEP (Visual Evoked Potential) is a test that you should get. I would say that whoever can get the test for you first- go to them. The entire diagnostic process is not a quick in-out affair. Both the eye doctor and the MS Specialist will want to see the VEP results.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><
The Following User Says Thank You to MSJayhawk For This Useful Post: deb1125 (07-18-2012)
Welcome. 
