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Old 07-25-2012, 11:23 PM   #1
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new to the site

I am 33 years old and have had RRMS since I was 17 so far I have been extremely lucky as far as the disability. I am in the middle of a relapse and this is the first time this has happened but I think I am getting depressed about it. I have a good life and few lasting effects as of now. My question is is there any suggestions to deal with depression.

 
Old 07-26-2012, 04:14 AM   #2
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Re: new to the site

Weebl,
Welcome to health boards, im glad you found us! Im sorry you are having a hard time right now. Depression often accompanies a relapse. Have you spoken to your doctor about this? Obviously, there are antidepressents you can get on; however they take months to really work and sometimes have to be adjusted several times until the right dosage/ drug is found.
How depressed are you? Do you think that talking to us or someone might help you, or has it progressed to the point where you really think you need medication? If its medication you seek, I urge you to call your Neurologist and get a referral for an evaluation.

A fair amount of depression is normal when you are undergoing what you are going through. If you are doing IV steroids, it may even be compounded. Being less than we expect ourselves to be- worrying about the extent of the damage- unable to carry on as we normally do, are all perfectly normal things to dwell on and think about. This is temporary however, and it will pass eventually. Alittle help with antianxiety meds, can help if this is what you are experiencing. Talking to your doctor about Ativan or Xanax may be enough to take the edge off...

we are here and we care, unfortunatly, depression is tricky. There are so many levels to it, that its hard to know how to refer/ help you. If its a matter of talking things through- let us know how we can help. I guarantee you are not alone in your feelings. But, please make sure your doctor is aware of what you are going through. There may be a simple fix just waiting for you with a phone call, ok??

One day at a time, relapses do not last forever, even when they feel that way.

Hugs
nikki
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Old 07-26-2012, 04:58 AM   #3
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Re: new to the site

well I had never experienced anything with my vision. So something new freaked me out some. Most likely being overcautious however the fear of spms is something else on my mind. And lately I just seem to be obsessing over what ifs and lack of knowledge of spms.

 
Old 07-26-2012, 05:07 AM   #4
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Re: new to the site

I know how scary it is. If it makes you feel any better...I have had MS for 7 years, have not had a single relapse or new lesion in 6.5....I just had my latest MRI and discovered ALL SORTS of new lesions....funny thing is, I feel fine. Im terrified. Why are they there? What does it mean that I dont have any symtoms? I get it...I really do.

SPMS isnt going to be the result of your first relapse. Eye issues are terrifying! Ive had optical neuritis as well...not only does it hurt but all you can do is sit around and pray that your vision isnt affected long term. 99% of the time it isnt. ON is a part of MS in some cases. (It can also be a standalone disease). But most of the time, it heals and it never returns...try to be positive.

It doesnt sound like you are depressed as much as you are scared. Thats perfectly normal. You should talk to your doctor. Alittle antianxiety medicine might take the edge off- just use it at night to sleep, or one pill in the am to help you get thru the day. You dont have to take it round the clock...but talk to your doctor, only he or she knows what wil work best for you.

Try to have a good day. Concentrate on the things you CAN do! Believe me there is always someone worse off than we are!

Hugs
Nikki
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Old 07-26-2012, 07:21 AM   #5
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Re: new to the site

I think that most MSers (if not all) can empathize with your fear over vision or other first time symptoms. Believe it or not, for me, it does get easier to deal with and many of the "severe" problems are now mere annoyances. Vision is something that really strikes us hard because we have not a clue what we would do without our sight.

Please know that most symptoms will come and go and you will grow stronger as you confront each "test".

Please be aware that fear can overtake a person- MS or Non-MS- and attack our defenses leaving us with MS like symptoms, or for MSer's- worsening symptoms. MS is not fatal.

When I was bedridden due to MS Seizures I felt as close to death as I have ever felt. I could do very little but pray and read my Bible. Each day I started counting my daily blessings and I started to discover that even confined to my bed, I was flooded with blessings each day.

I also have service dogs (one active, one retired). They do not give me any opportunity to dwell on depression. If you have a dog, spend more time with them; if you do not have a dog, I would encourage you to get one. Studies have shown that dogs help with depression. Personally I have found my service dogs to be unconditionally faithful and never judgmental! My retired service dog knows when I have vision problems and sticks by my side until my vision is better.
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Old 07-26-2012, 07:34 AM   #6
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Re: new to the site

Thank you all for responding. Yes I am scared and reading up on exactly what is happening online will do nothing but scare me more. Aside from that it wont change it. I think I am going to have a beer and stop stressing over something I have no control over.
However if anyone has any treatment ideas for stress and anxiety related to MS please let me know. I seriously do not want fear or depression to run my life.

 
Old 07-26-2012, 08:29 AM   #7
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Re: new to the site

Beer or any other alcoholic beverage is a depressant and can add to depression.

Speak with your MS Specialist regarding depression or anxiety issues. Many have a counselor on staff or can give you a referral. The counselor can help you with the depression and you can learn to channel your stress away from yourself and into a healthy activity. Lifestyle changes are often needed, but not always. I found that getting out helped as did the fact that I could continue to hunt and fish.
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Old 07-26-2012, 08:37 AM   #8
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Re: new to the site

Oh I know. I am not looking to drink it away. I am just making the point that I don't want to spend my days stressing over what ifs or will bes. Some things just are and MS is just one of um. And I for one don't want to spend my days fearing what may happen and forget to live in the now.
but you are correct drinking would make it worse if used to cope with MS.

 
Old 07-26-2012, 06:13 PM   #9
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Re: new to the site

Weebl,
You are really anxious...not depressed. I can hear it in both your posts! You need to talk to your doctor about getting on something to keep it at bay. You shouldnt be thinking SPMS- youve only had one relapse in 17 years. There is no way this is progressing, you are just having a bad relapse! BUt, stress and anxiety WILL make it worse and will make you more hyperaware of your symptoms....try to relax and take it easy. Weekend is coming- make NO plans and spend the weekend getting some extra sleep and relaxing. Rent some movies- read a book- whatever it takes to just relax your brain and NOT think about MS..
When this passes (and it will) you will be back to your old self!

Hugs
Nikki
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Old 07-26-2012, 08:28 PM   #10
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Re: new to the site

ok Perhaps I was unclear. I have had RRMS for 17 years with about one relapse a year. My concerns are I have never had vision issues before and always bounced back nearly to 100% after the steroids. This time things are not coming back as quickly. However my last treatment of steroids was just sunday afternoon. And I have very few symptoms normally.
Now I have just now learned it can change to SPMS from RRMS and I cant get it off my mind. So I did not know if there were signs aside from a MRI and that is going to be done Tuesday.

 
Old 07-26-2012, 08:38 PM   #11
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Re: new to the site

Anytime you have a relapse or active lesion there is a possibility that you do not get back to "normal". Some MSer's experience a single lesion which affects them the remainder of their life. This is the unknown part of MS. You can have RRMS and be left with a disability. While RRMS can develop into SPMS, there is always the possibility that it will never will develop into SPMS- in fact there is a greater chance that it never develops into SPMS. I would set this fear aside. I hope that your vision gets better soon.
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Old 07-26-2012, 08:58 PM   #12
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Re: new to the site

Like I said earlier today no use worrying about what I can not change. It is funny how bad the internet can be if all you are looking for is things stressing you out. It is nice to find a site where I can ask questions about MS. I have had it for over half my life and most days all I try to think about it is eather when I relapse or to take my meds.

I normally stay as busy as I can and not have time to think about it. However I could not get these questions out of my mind today so it was nice to talk. Thank you guys for listening.

 
Old 07-26-2012, 09:15 PM   #13
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Re: new to the site

You are welcome. This site is a good place to come for support, I think. There are good things and bad things about the internet, but this board is definitely a good thing. I wish I had had it in 1982! I hope tomorrow the questions stay out of your mind. If not, we shall endeavor to support you as best we can!
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